Aspergers/ASD support thread

fallen_angel_69

I think the urine comes from brainiacs they are doing some sort of thing where there is 100 different uses for urine and they are going to test them out
if your thinking of coming over to coventry and going to drayton manor to do thomas ,at the birmingham hippodrome between wed 19th march and 22 march thomas and friends is on stage i emailed them yesterday about another show and if you ring up and say your child is in reciept of dla a carer and a child can go in half price (cant do it online) wish i knew this before it would have saved a fortune going to panto to see jb at xmas (no reply back yet to letter or picture)She's back to definately driving me mad about him can't listen to anything other than him in car have to watch all torchwood and dr who repeats i'm really glad i never bought them on dvd or nothing else would ever be on
I'm really having crap day today over last 3 mths dd1 has ran up mobile and house phone bills of over £1000 it's all down to her sky phone bill is itemised and so is mobile she using it when i'm in bed asleep and sneaking it from the side of my bed have now got to lock it and my purse in safe £5 here or there missing and dd2 has just been turned down for a statement on the ruling that camhs have put her file in sleeping mode and she is making some progress in school she is coping the only reason she is coping with school work is through a friend who leaves us work and comes and works with her using her resources from her school which suit her better.

Snaggles

You're kidding me - Doctor Who on dvd was the best thing ever invented - I get a good 45 minutes peace while DS watches an episode! :rotfl:

He does watch it on the laptop with the earphones in though.....and I recorded it off the TV for free!

blue_monkey_2

FA - good grief, what are you going to do? I think you have done the right thing though, however hard, in locking them both. Have you spoken to phone company about having some sort of lock on the phone once it gets to a certain level? have you confronted her about it?

I was going to ask how the thing with JB has gone, whether he had replied. What happened about the theatre, how did that go? As they say, no news is good news, maybe they are waiting for him to reply personally and that is why no reply yet, you could have got a bog standard reply which would have been worse for you. Keep on hoping

JOT, could be the brainic thing but you should say something otherwise it could get quite nasty. I cna;t beleive they put stuff like that on Brainian - maybe you should send them an email. The fact he has it hidden means he knew it was/might have been wrong to do it (??).

As for us, just got a letter and they are starting Choice based Lettings around here from 7th March so rather than keep on calling the council and asking 'have you anything for us' it means there will be 2 lots of 'choices' out before we have to attend court so we *might* get somewhere as our points are quite high - and the better news is that on the letter they have specified that our requirement is 3 bedrooms. So they HAVE determined that Ryan needs his own room which is a HUGE weight off my mind in all honesty!! he has started waking earlier (morning are getting lighter maybe) and gets in bed with us and spends the whole time kicking, etc... My husband is always moaning at him (in a bad way if you know what mean) and me being pre-menstral and tired shouted to him this morning 'he can't help doing it, what do you want to do to stop it, put him in a home?'. Ah, hubby seemed to be a lot more tolerant for the rest of the morning and rightly so I've told him over and over in nice way, sometimes brutal is best. Ryan refuses to stay in his own bed, we can't very well lock him in his room and we definately can't let him downstairs or near Mya's room so we should just put up with it. He kicked me in the face this morning when i had my glasses on - ouch. Does anyone else sometimes feel like they are doing this on their own?

enough ranting, I've a huge ironing pile to be getting on with once the biscuits from my new 'Value Challenge' have gone down, LOL. We are trying out bits and bobs of the Vlaue range to see if they are palatable. Now I just feel plain sick as it was biscuits from the Tesco delivery today, LOL!!

justontime

blue_monkey wrote: »

Does anyone else sometimes feel like they are doing this on their own?

Yes, I know that feeling! My first husband is dead now, but when my son was smaller I would be tearing my hair out trying to cope with a full time job and a child who never slept and he would just keep telling me that he was fine and he would grow out of it. Quite a few of the men in our family seem to suffer from 'ostrich syndrome' Even now my brother thinks there is nothing much wrong with my son, but he he is very reluctant to look after him even for an hour!!

At least you now have a glimmer of hope re the housing situation, I hope you will have some good news soon.

fallen_angel_69

have rang phone companies up and they say they can't do anything other than make phones incoming calls only which isn't much help when i need to use phone so only thing i can do is keep them in safe at night and in jeans pocket during day the bills i have managed to pay because they come out the bank monthly but if i have another high one car may ahve to go off the rd for while tax and mot due in march the rows we have had over the phone have been terrible she is 15 and should understand i'm on my own i can't afford it she is grounded for life no pocket money and she is going to have to pay some of it off her nan has savings account for her and has taken some of that to give me to help out but i can't seem to get through to her i just get a load of cheek back and rolling of eyes 'its just mum of on one again' The first time the bill came in i got i didn't realise i thought all your calls were inclusive i said thats only 100 mins and one of your calls lasted that and i thought i had got through to her but 4 mths on i'm still having massive bills It's terrible i feel awfull having to lock everything away but don't know what else to do I want to be able to leave phone out and stuff and be able to trust her but no matter what i do i'm going to lose lock stuff away shows i can't trust her leave phone out have huge bills no win either way

One bright point dd2 goes to a camhs social group every other week and we were talking about it on way home she said she really enjoys going because all the children have autisim like me and they actually understand me not like at school it's like we're all on the same level and it doesn't matter if we get things wrong or say the wrong thing because we all have the same thing wrong with us.It seems a shame it's not on during school holidays and it's only for 1hr every other week because she really likes going has made 2 really good friends both live other side of town though she isn't bothered by her being the only girl So with her dancing 2 nights a week as well she seems happy

justontime

blue_monkey wrote: »

JOT, could be the brainic thing but you should say something otherwise it could get quite nasty. I cna;t beleive they put stuff like that on Brainian - maybe you should send them an email. The fact he has it hidden means he knew it was/might have been wrong to do it (??).

He hides everything so that just means that it was important to him. It will be a relief if it is something to do with Brainiacs. At least I would understand it then. He loves Brainiacs, and sometimes he does try out mad things, but I don't think the program does any harm.

Thanks blue_monkey and fallen angel for the info about Brainiacs, my son gets home from his trip tomorrow so I await his explanation with interest!

shazrobo

blue_monkey wrote: »

Hi Lily and Annie, nice to see you on the board, you are always welcome if even to have a little moan.

It was nice to read about your son adjusting in his new school as we are in the same situation - our LL (Mother) is evicting us to sell the house and DS has a lovely school at the moment who go all out to help him, the council tell us there is nothing available here for us at the moment, so who knows. It is nice to read that your son is doing well though, it gives me some optimism.

Shaz, I am sorry to hear about your son having another meltdown. Have you been back to the doc? Do they adjust his meds or anything? I don't know what else to say, did you speak to SS again since they refused you respite?

SDW, did your son propose to J in the end, that is so lovely. At the end of the day, I don;t think it matters how old you are they are clearly made for each other and they could well be engaged for a long time rather than being together for a few months and jumping in feet first. I don;t think you ca ever tell but they clealry adore each other and it is wonderful that he wants to show that commitment to her. Bless his heart.

What I find with Ryan is that he does not understand humor at times, yet if everyone else laughs then it is a key for him to laugh.

For the rest of you with kids that are obessed with Thomas I came across this on the website yesterday:

http://www.thomasandfriends.com/uk/thomasland.html

There is a huge 'Thomas Land' opening at Drayton Manor. I have emailed them to ask about exit passes as it says you need 'official confirmation' of disability - whatever that is, so I have asked what that is and if it means we can get passes for the busier rides we might make a weekend of it as it is quite a journey for us. if anyone knows of any cheap hotels/travelodges in the area that would be most appreciated. not sure where it is anyway!!

Edit: Just seen, it;s the other side of Coventry - not really THAT far but too far for a day out. Might be nice to get a weekend away with everything that is going on at the moment!!

hi bm, both kids are due back at the pyschiatrist on 10th march, so he may increase meds then.
not getting any further with social services yet, but we keep on at them
shaz x

Savvy_Sue

To be fair, Brainiacs do quite often say "Don't try this at home." and then Richard Hammond says "No, really!"

BTW, DS1 has just had an assessment which seems to say "He looks as if he was a child who had AS but has learned to cope with it. But he still has AS type problems."

LilySue

blue_monkey wrote: »

Hi Lily and Annie, nice to see you on the board, you are always welcome if even to have a little moan.

It was nice to read about your son adjusting in his new school as we are in the same situation - our LL (Mother) is evicting us to sell the house and DS has a lovely school at the moment who go all out to help him, the council tell us there is nothing available here for us at the moment, so who knows. It is nice to read that your son is doing well though, it gives me some optimism.

Yes it looks like we had very similar situations, I had to take Hamish out of a school that was well known for being special needs friendly over to the opposite side of town where the best of the three schools available had only ever had experience of one autistic child in the past. That first year was just hard all round on all of us, and I hope that it doesn't work out that way for you, but long term for us it has worked....having financial independance from my Mum has improved our relationship, and the local middle school that Hamish transferred on to had a learning resource centre for special needs and behavioural problems attached to it ( Hamish isn't in the resource centre any more but it's good to know that it is there if he needs it and that there are some specialist staff within the school) I think the only thing I regret is that this is definitely the wrong side of the tracks side of town LOL, but maybe that's not all a bad thing...there are definitely more pound shops and charity shops here:D

I did write Hamish a little picture story book for when we moved, so he could see what was going to happen, and I had a Thomas balloon tied to his bed in the new house for when he went up to bed on the first night

Oh and Blue Monkey, just wanted to say, be vigilant if your Mum or her solicitor want you to sign any papers. I was stupid and signed a solicitors form saying that I would leave without waiting for an eviction notice...it meant that we were not eligible for re-housing from the council and had to take on a private rented tiny house while I got us on to the shared housing scheme. I'm sure you wouldn't be this naive, but I thought it wouldn't do any harm to mention it.

duchy

My son was "the first" at his primary school too. We all learned together-along with some courses for the SENCO and in all honesty we got fabulous support as it's all about the willingness of the school rather than resources in the end.
I'm having a REALLY bad day too-Josh's Dad has a newish girlfriend moved in-and Chris announces out of the blue-in an email no less that he can't handle Josh (truth being he can't handle both Josh and very young GF both wanting his full attention) so wants to reduce his visits from every fortnight to every 3 weeks. Just what my already insecure and stressed by upcoming GCSEs son with poor self esteem needs.........Oh and the best bit he cancelled THIS weekend's visit today but snuck it into an email he sent yesterday and I only skimmed so missed it so we only knew it was cancelled when he didn't ring to confirm the train times with Josh tonight and we rang him as Josh was all ready to leave. I had alreadytold him that it was up to HIM to explain to Josh why he was changing how often he saw him-but of course this left me no choice but to explain to Josh as best I could without hurting him.
am FURIOUS !!! (but as Josh is here can't say a word out loud-so thank you for listening)