Aspergers/ASD support thread

quietheart

Purplewombat, if you want your child to have a statement you can self-refer. If i were you I'd speak to your LEA's Parent Partnership and get them to support you through it. My son's school would never have had him statemented and still wouldn't but I'm really glad he's got it. For one thing it gives more choice on secondary schools and that's gonna be a major thing going from a caring primary out to the big bad world. Statements cost a lot of money and everyone you meet will try and tell you it's not necessary but you will be the best judge.
Best of luck

Carrera74

Received a letter last week saying DS's hours on his statement had gone from a band B to a band D

Friday he was excluded for continued disruptive behaviour I thought we were getting somewhere at school but they have said he has been on the edge all week and he flipped on Friday. It seems that something really small has triggered it but he went into meltdown and lost it. We can't refer him back to the short stay school (they said to ring them at the first sign of him of him going back to being disruptive before he got excluded again) but they have changed the rules and now they only give places to children who are permantly excluded. I could cry. Just when I think we're getting somewhere it goes pear shaped. I was at school for 2 hours on Friday trying to coax him out of the cloakroom then waiting for him to calm down whilst he was in the playground and school field. The Head threatened to ring the police at one point to have him removed and he lost it again and ran onto the fields and found a stick outside and attempted to put the window through as they wouldn't let him back in

I went to give the development history for his ADOS screening in the afternoon but came out of their feeling even more deflated as I'm back to feeling like a useless parent not a parent trying to cope with a child with an ASD. The other week I was worried that he would be diagnosed with an ASD but now I'm worried that he won't

shazrobo

Carrera74 wrote: »

Received a letter last week saying DS's hours on his statement had gone from a band B to a band D

Friday he was excluded for continued disruptive behaviour I thought we were getting somewhere at school but they have said he has been on the edge all week and he flipped on Friday. It seems that something really small has triggered it but he went into meltdown and lost it. We can't refer him back to the short stay school (they said to ring them at the first sign of him of him going back to being disruptive before he got excluded again) but they have changed the rules and now they only give places to children who are permantly excluded. I could cry. Just when I think we're getting somewhere it goes pear shaped. I was at school for 2 hours on Friday trying to coax him out of the cloakroom then waiting for him to calm down whilst he was in the playground and school field. The Head threatened to ring the police at one point to have him removed and he lost it again and ran onto the fields and found a stick outside and attempted to put the window through as they wouldn't let him back in

I went to give the development history for his ADOS screening in the afternoon but came out of their feeling even more deflated as I'm back to feeling like a useless parent not a parent trying to cope with a child with an ASD. The other week I was worried that he would be diagnosed with an ASD but now I'm worried that he won't

my sons sound just like yours, something small, and if its going on for a while, tips them straight into a total meltdown, which can take hours for them to calm down. both were assessed for asd, but didnt get the diagnosis.
instead they both got a diagnosis of adhd, both are now statemented and in special schools.
one special school where twin1 goes is a really good resedential school, the other is a short stay school for most pupils, til they are allowed back in mainstream, twin2 is there permanently.
both sons doing so much better than they were in mainstream primary. mainstream secondary, they both lasted less than a week
shaz x

Savvy_Sue

Also remember IPSEA - they may be available when the LEA Parent Partnership isn't, IYSWIM.

purplewombat

Thanks for the replies

I had a look on the IPSEA site and gave them a ring earlier. Spoke to a lovely bloke there who has given me some good advice on what I could do next and I'm going to look into applying for a statement myself as it can't hurt to try.

seven-day-weekend

Just want to say, not very loudly, yet....our son and his girlfriend are staying here with us in Spain this week- it's the first time we've really met her. She is diagnosed Aspie and has had problems with education/employment. They are great with each other, they make a lovely couple....he encourages her to come out of herself a bit (like tonight we were all going to a local bar, she wanted to take her sketch pad, Ben said yes, she could take it, but after half an hour she must be sociable. When we got there she drew a picture of Amador, the bar owner and gave it to him. Very good it was too.). Being nearly eight years younger than him, she inspires him to look after her, so that is good for him, and she makes him wear a coat and eat his broccoli!

He has told my husband he is thinking of proposing to her. We are pleased with that as they suit each other, but of course it will come with its worries, like, will they cope? She is only 20, is she too young? Where are they going to live?

He and my husband are going to have a chat this week before Ben and J*** leave.

Prayers, thoughts, vibes, opinions welcomed please!

Snaggles

Awww SDW, I think it's lovely! Of course, there will be lots of concerns, and yes, it could all go horribly wrong, but if we didn't take risks every now and again, life would be a bit dull. All you can do is support him, be happy for him, and be there if he needs you. And she does sound soooo perfect for him. I will be sending you all the positive vibes I can possibly muster.

seven-day-weekend

I agree Snaggles and we will of course support them all we can (assuming she accepts of course!).

Can't say a lot really about the risks as my husband and I got married four months after meeting on a blind date! so haven't got a leg to stand on really. I'm sure outr parents must have been worried!

Thanks for the vibes.

Snaggles

I'm with you on that one. Stu proposed to me just a few weeks after we met too and, er, I was pregnant 6 weeks after coming back from honeymoon - we don't like to wait... :rotfl:

Still hanging in there 10 years later though, despite the ups and downs - I still love him and still think he's got a cute bum!

Savvy_Sue

sounds like an ideal relationship ... really!