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The Nice People Thread, No.16: A Universe of Niceness.

16526536556576581094

Comments

  • Pyxis
    Pyxis Posts: 46,077 Forumite
    Ninth Anniversary 10,000 Posts Name Dropper Photogenic
    Sue!

    My goodness!

    Dear oh dear!



    Your neighbour sounds like a right Pita. :(


    However..........if they can move you to a bungalow, would that be :j or :( for you?

    To start with, it would get you away from your neighbour.

    I'm feeling that it might be :j
    (I just lurve spiders!)
    INFJ(Turbulent).

    Her Greenliness Baroness Pyxis of the Alphabetty, Pinnacle of Peadom and Official Brainbox
    Founder Member: 'WIMPS ANONYMOUS' and 'VICTIMS of the RANDOM HEDGEHOG'
    I'm in a clique! It's a clique of one! It's a unique clique!
    I love :eek:



  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    edited 11 August 2018 at 10:24AM
    It would be :( as they would only rehouse me and not the boys.

    I saw a move to a bungalow in the future, a fair way in the future to be honest. For all it's faults, this has been my home for 20 years and I still need to provide somewhere for the boys to come home to when they are not at university. However, because they are over 18, there is no duty to rehouse them. Goodness knows where they expect them to go, Josh can't live independently (hence why he is back in supported living at university).

    The other issue is that there just isn't any bungalows (or even ground floor flats) available, they are like gold dust here so I could be sat waiting for a good couple of years to get one whilst also not being able to access wash facilities, having toileting issues, being trapped either upstairs or downstairs or just inside whilst doing so.

    To give an indication on waiting times, a friend was in an accident last year and had to have his leg amputated. He is still waiting to be rehoused into a suitable property and is having to split his time between being at the hospital and living in a care home sort of setting until they find him somewhere.
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • ivyleaf
    ivyleaf Posts: 6,431 Forumite
    Part of the Furniture 1,000 Posts
    Oh, Sue :( I'm so sorry. Perhaps you could speak to the OT about the ideas you'd had but were unable to tell the surveyor and contractor about when they were there?
  • GDB2222
    GDB2222 Posts: 26,498 Forumite
    Part of the Furniture 10,000 Posts Photogenic Name Dropper
    bucket.jpg
    No reliance should be placed on the above! Absolutely none, do you hear?
  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    I keep meaning to but I admit my concentration levels have been a bit skewiff since and when that happens, I lose the power of speech. Plus I need to trust myself to do it and not burst into tears.

    One bit of good news though, my PIP was up for review, sent the form back in mid June and heard absolutely nothing. Rang early July and they had received the short form and warned I would probably be called for a face to face. I sent some more evidence towards the end of July and today I have received the letter informing me I have been awarded enhanced on both again without needing a face to face assessment.

    I can now order my new car, or at least start looking at cars as I extended my lease by 6 months to give more time for some of the advance payments to come down/have a perfectly suitable car for a longer time.
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    I'm rubbish at shopping.

    Had a short "housey stuff" list and went out..... returned home 3 hours later, having driven 10 miles to one place/parked in their car park, clutching just one 2.5m of net that I knew "wouldn't actually quite fit, but it'll have to do". Window recess is 129cm drop, net was sold in 122cm drop... using expanding poles, so I can put them anywhere... but it was getting that mix right top and bottom over where the gap should be.

    But, while out, I think I've spotted the correct doormat. Criteria was: cheap, large, will fit into the space without too much spare around it ... and palatable enough visually for the area... found one at £30... so that'll be on the back burner for a long time while I mull it over. £15 I'd have bought one on the spot .... but £30's really really really pushing it for "a big door mat".
  • GDB2222
    GDB2222 Posts: 26,498 Forumite
    Part of the Furniture 10,000 Posts Photogenic Name Dropper
    Bursting into tears is okay, actually. You are in a Catch 22 situation.
    No reliance should be placed on the above! Absolutely none, do you hear?
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    SingleSue wrote: »
    .... having to split his time between being at the hospital and living in a care home sort of setting until they find him somewhere.

    This is where joined up thinking is needed, but all Depts work to their own little mini worlds.

    Financially, he should've leapt to the front of the queue - it's not as if his condition is in any way choice-based, e.g. such as being super-obese, or because he did something to make himself homeless or legless. That'd have then reduced the NHS/care bills.

    But they don't do joined up thinking.

    Having said that, maybe there are 4-5 other amputees ahead of him even in the "lost a leg" queue!
  • Pyxis
    Pyxis Posts: 46,077 Forumite
    Ninth Anniversary 10,000 Posts Name Dropper Photogenic
    GDB2222 wrote: »
    bucket.jpg

    Those make all other lampshades pail into insignificance.
    (I just lurve spiders!)
    INFJ(Turbulent).

    Her Greenliness Baroness Pyxis of the Alphabetty, Pinnacle of Peadom and Official Brainbox
    Founder Member: 'WIMPS ANONYMOUS' and 'VICTIMS of the RANDOM HEDGEHOG'
    I'm in a clique! It's a clique of one! It's a unique clique!
    I love :eek:



  • LydiaJ
    LydiaJ Posts: 8,083 Forumite
    Part of the Furniture Combo Breaker Mortgage-free Glee!
    edited 11 August 2018 at 1:13PM
    Pyxis wrote: »
    Or a satellite?
    You wouldn't get out much, though.

    You'd have to be a long way out - much further than the ISS. They get "days" and "nights" of 45 min each.
    SingleSue wrote: »
    My retched house strikes again.

    Had the surveyor and contractor out for a visit for the proposed adaptations and it didn't go to plan.

    Oh Sue. It sounds so depressing. Sending thoughts and hugs and prayers.
    hugging.gif
    SingleSue wrote: »
    One bit of good news though, my PIP was up for review, sent the form back in mid June and heard absolutely nothing. Rang early July and they had received the short form and warned I would probably be called for a face to face. I sent some more evidence towards the end of July and today I have received the letter informing me I have been awarded enhanced on both again without needing a face to face assessment.

    I can now order my new car, or at least start looking at cars as I extended my lease by 6 months to give more time for some of the advance payments to come down/have a perfectly suitable car for a longer time.

    Glad there's some good news amongst the gloom.
    SingleSue wrote: »
    It would be :( as they would only rehouse me and not the boys...

    The other issue is that there just isn't any bungalows (or even ground floor flats) available, they are like gold dust here so I could be sat waiting for a good couple of years to get one whilst also not being able to access wash facilities, having toileting issues, being trapped either upstairs or downstairs or just inside whilst doing so.

    Does your tenancy allow you to do a swap? Might you be able to find a wheelchair accessible home with space for your boys on a social housing swapping website like this one?
    GDB2222 wrote: »
    bucket.jpg

    Thinking of getting some of those for your place, GDB?
    [X-posted with Pyxis]
    Do you know anyone who's bereaved? Point them to https://www.AtaLoss.org which does for bereavement support what MSE does for financial services, providing links to support organisations relevant to the circumstances of the loss & the local area. (Link permitted by forum team)
    Tyre performance in the wet deteriorates rapidly below about 3mm tread - change yours when they get dangerous, not just when they are nearly illegal (1.6mm).
    Oh, and wear your seatbelt. My kids are only alive because they were wearing theirs when somebody else was driving in wet weather with worn tyres.
    :)
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