Here we can all be heard for a little while. Part 3

Pyxis

TamsinC wrote: »

Yes she is, and in therapy

How are you getting on with her at the moment. Is she compliant?

I think one of the worst aspects of this illness is how it affects the people around the sufferer. It really strains relationships, doesn't it?

Unlike a physical illness, it's very hard to live with for any length of time. :A Let alone if the personalities concern clash at the best of times. :A

Does she respond to being cuddled?

jobbingmusician

OMG loads of cuddles for WaSP. Sending good dispersal thoughts his way! xxxxxx


Also good thoughts for you as I know it can be difficult living with someone in a lot of pain

Torry_Quine

WaS Hope he soon gets better. It's not easy.

Pyxis

jobbingmusician wrote: »

OMG loads of cuddles for WaSP. Sending good dispersal thoughts his way! xxxxxx


Also good thoughts for you as I know it can be difficult living with someone in a lot of pain

That's a good idea!

Collectively we could all imagine the clot gradually melting away and dispersing as a harmless solution.



Stranger things have happened! The power of collective thought is supposed to be huge.

I won't call it prayer, though some people would see it as that. You could call it collective willing.





Hi, Torry.....have a hug. ((((((((((Torry))))))))))))

Torry_Quine

My head hurts and I feel sick.

Stressful day yesterday and got the form in for voting. Awful with just my name.

My dad is waiting for an operation and is worrying about me.

jobbingmusician

Hugs, Torry. And lots of positive thoughts beaming towards your dad. xxx

TamsinC

Waves_and_Smiles wrote: »

Could I ask for some good thoughts for WaSp please? (that is my partner for those not familiar with that name). He has a deep vein thrombosis in his thigh between the femoral artery and the vein below it. They do not want to risk surgery so he is on strong blood thinners and we are hoping it will disperse. He is in an awful lot of pain. Thank you all.

Many thoughts for WaSp - I had two DVTs - not nice - hope the thinner s work. Once it's gone see if you can get physio on it. I never did and my arm (I had the clots in my armpit) has never regained the strength I once had.

Pyxis wrote: »

How are you getting on with her at the moment. Is she compliant? She is slowly compliant - I have to drip feed info and suggestions and let her think about them etc. She often goes off line the moment I message her and then comes back 1/2 an hour later when she has calmed down - she won't talk on the phone as she ends up crying

I think one of the worst aspects of this illness is how it affects the people around the sufferer. It really strains relationships, doesn't it? It does indeed

Unlike a physical illness, it's very hard to live with for any length of time. :A Let alone if the personalities concern clash at the best of times. :A

Does she respond to being cuddled? I am only just now, after 8 years, allowed to touch her. (teenage years were hell) Sometimes I can cuddle her, sometimes not - she never responds back but I stop if she stiffens. I still do it if allowed.

Many hugs for Torry too - I cannot imagine how hard it is for you at the moment ((((()))))

Pyxis

Tamsin, you are doing what you can.
You are sensitive to her mood and her body language, and not just steaming in with the big guns, which is great.

It may sound trite, but ensuring she gets good food, and drinks enough water etc., will help too, as that will help the brain too.

Have you read about the effects of gut probiotics on brain function? It's very interesting. I believe it can help with mood and some mental illness too, believe it or not.
Obviously, it's not a short-term thing, but might be worth looking into.

I have been taking good probiotics for a couple of years, and more recently have started drinking kefir water (not the milk-based one, which I didn't like).

I'm sure you've looked into it, but it is worth noting the side effects associated with the medications she is taking. Sometimes they are surprising.

System

So....i lasted 4 hours at work.Got to the point where i felt unsteady on my feet, spaced out and couldnt understand what customers were saying so got sent home early. Have taken the decision to call in sick tomorrow and saturday whilst my body and brain adjust to the medication and side effects.Feel like such a failure but i just couldn't cope with feeling so bad. probably going to get a disciplnery when i get back. Bu i'll just have to deal with it. Going to Swains tomorrow for some love and much needed TLC.

Pyxis

You'll be ok, MessedUp. You've had blips before and come through them, and your work are very understanding and supportive, I believe. :A

Just one thing that does concern me a bit, though. Am I right in thinking that these blips seem to occur when you run out of your meds, or decide not to take some for some reason?

Correct me if I'm wrong.....I think you mentioned running out in your post. That worries me bit. I am wondering why you might run out?

Is there any way that that could be remedied? I know from experience that it is easy to forget these things, especially when busy, and when you are very 'up' it's so easy to think that the meds might not be important or needed, and so it lapses.

And then the 'downs' come.

I don't know what your current system of repeat prescription is like, but it might be worth discussing with your pharmacist if there is a better system for you, so that you don't begin skipping doses?

Whatt do you currently do about repeats?









Hugs to Torry and Tamsin.