Here we can all be heard for a little while. Part 2

happilymarried2013

Some days I eat both..... lol.

I've just discovered that Iceland sells frozen ones that defrost in half hour..... dangerous.

faerielight

hi happily and welcome.. waves has co created this hidy place, there is plenty of room for you Sorry to hear you have PTSD too, it's an awful condition .
I got my parcel back yay!!! It was really nice to see the hate crimes officer again. It's been 5 years and she was really good to me back then.We had a good rapport. She said that it was a battle to get him to give it back. He was righteously indignant,very stubborn and not intimidated by police, he was wanting to keep to see me face to face and dredge up the abuse. He apparently is still raging because when I first had to get a care agency, he was under the delusion that he was my carer, because he used to get me milk and a paper sometimes and he felt jealous as if he had been replaced, and that's how the abuse started.
I asked if he was receiving any help for his mental illness , she said that he has been given an ASBO and is under the anti social behaviour team of the council.She probably wasn't meant to tell me, but she did, just like she told me back then that he was being charged wit racial abuse. I think she told me, to validate what I went through with him. m I do feel sorry for the couple sharing a hallway with him.

Anyway, I am so glad I didn't have to deal with him and I got the parcel back, which means I can give the presents to my friends .. I do feel relief!.

But.. I had the care assessment today and the social worker tried to cut my care from 45 minutes to 15 mins a day, , trying to make me eat ready meals or meals on wheels instead of proper cooked meals. I was trying to get more care so they could wash my hair, but she refused, saying that it would be too risky, with my arthritis to try and bend my head forward over a sink. She told me to pay a hairdresser to wash my hair! That's what rich people like my mother does, but there's no way I can afford that.. so it's freezing cold showers that set my pain off, and create more damage by standing up, like more hernias, and accelerate my spine probs.. Great! ?Woohoo!

I won't know til they've had a meeting if they will cut it down to 15 mins, but they are definitely taking away my cleaning once a week call.
I am not going to fair well without that. I'm so dyspraxic, , my flat descends so quickly into chaos if it's not tidied up. The flat is so small,it's the vortex of mess.
, I have 3 cats ,I drop things, I have a bad grip due to the arthritis in my hands and I can't bend down to pick things up..

The care manager said that the carers have reported my cats having fleas and they are being bitten, but I thought they were clear. at the moment.. They never scratching , and I've got no carpets for them to live in. She said because of that, plus the clutter is risky for carers to trip over thing mean that is is dangerous for them to come in.. I* feel really upset as I love this care agency . I asked my carer after a flea episode last summer to remind me to treat them every month, So I'm scared I'm going to lose this agency .. The assessment was really stressful and I'm terrified of it getting it cut etc.. There's no way I can afford a cleaner, which means I will try and do it myself and it will injure me, more hernias, worse spine issues. The crappy thing is that when they cut care, you still have to pay the same amount. It's wrong.

I long for that day when I don't have major stress on my plate, so I can get on track, give up smoking, tackle my eating disorder., Lose the weight as I've got so big . I can't sort things out when I am constantly in survival mode. Life is so tough right now.
So I'm glad about the parcel but not so glad about the care situation .x

Torry_Quine

Faerie glad you got the parcel, you will be relieved.
Terrible about the care assessment though,.15 minutes is nothing.

happilymarried2013

15 minutes is rubbish. Surely they should be able to get someone, from a different funding pot maybe, to help you?

Waves_and_Smiles

Good afternoon all! I am replying to people in separate posts so that I don't give you all RSA with scrolling down one novel!

Don't worry Sue, there are lots of reasons why memory can worsen, as Pyxis says sometimes through less use. In my case psychosis, jabbering voices, medication and immune diseases all make a perfect storm of forgetfulness. There are memory techniques that you can use to strengthen it available online if you get bored? Look for one that relates to how you remember things, some people remember in pictures, some sounds, some numbers. I remember everything in pictures, I have always had a bit of an odd memory in that I see words written on paper in my mind and then I read them. So if I think of my address I immediately see a piece of paper with it written on in my mind and read it off as if it was in front of me. It worked great for exams because I could easily memorise pages of text and just read them back to myself, I needed to revise very little because I would just see the books in my mind and read them! It always felt a bit like cheating. I have a lot of problems remembering speech and sound though unless I can imagine it written on a piece of paper. Everything is visual for me.

Waves_and_Smiles

Hello Happily! Can I call you that, please? I will never remember your full name and then I will get confused which bits need to be capitalised and my ocd will come out to play. How brave of you to join us! Sorry to hear that you have a voice, I have a few of them, annoying little wosits aren't they? Quite a few people here including me have PTSD too, we under stand what it's like. Don't worry, we aren't scary, we are a bunch of big fluffy bunnies really (apart from me, I am a sloth). I love custard slices! Anything custard!

Wishing you lots of energy today Melly! Also wishing you a less hectic time with Boo!

Torry, I hope things are a little easier today. Big hugs.

I am glad you got your parcel, Faerie. Now file the whole incident away in your brain and lock it somewhere where it can't hurt you anymore. It is over now. So sorry to hear about your carers, hopefully they still leave you with a bit of help for a decent time. I no longer have carers, largely because I have WaSp as my carer so stretched resources go to others who have no one. I do understand it but it's a pain because it means I can't do my physio exercises properly. They involve manipulating my limbs, I mustn't use muscles to help them move so it is all on the carer to lift and turn them. Poor WaSp has such a bad back that he cannot do this properly, bending for 5 minutes is too much for him. So they aren't as efficient as they were and also I am having to be really strict with myself about washing, getting dressed and eating because my carer used to prompt (read force me out of guilt) to do these things. If WaSp tells me to I ignore him because my anxiety takes over! Crossing everything for you that they realise your difficulties and give you the help you need.

tea_lover

How is Wasp's blood pressure now WaS? Or if that's a bit personal just talk about sloths instead! Was just wondering how he was getting on after his spell in hospital a while back.

happilymarried2013

Hello WavesandSmiles, yes please call me Happily. I hope one day to be permanently that. Thank you for welcoming me

I'm sorry to hear about everyone's carers being cut, its a pity that we don't seem to have the same community spirit as we used to. Its really sad actually.

I'm about to leave work for the day. I can't focus and I'm just sat here staring at the screen, DH is taking me out for ice cream as I lack the energy to go to my second job tonight which will be nice but I'm exhausted and just want to hibernate. I can't do that to hubby - he's going out of his way to make me smile and I should appreciate it more.

I'll check in with you all in the morning, have a nice evening all - I hope the sun is shining with you as it is with me.

Hugs and cwtches xx

Waves_and_Smiles

In my news I slept for 8 hours! An ordinary 8 hours like everyone else! I am so happy! Aren't days long? After sleeping so much being awake for this long feels like it should be midnight around now!

My american friend met with colleagues yesterday about the crisis line. They have a first draft which is open to change but it is a basis to work from. She is going to go through it with me later and ask me for ideas. This makes me really happy because although I am not part of arranging it I still feel included and it makes me far more confident about taking part when it is all up and running.

WaSp needs to have another round of blood tests because his blood pressure is still high and they can't figure out why. Like me he has diastolic hypertension which means the top number is ok, the bottom one is high. It is hard to treat because the medication to drop the bottom number also affects the top one which then causes dizziness, headaches and fainting. Mine is controlled with 2 medications, WaSp is on 3 and it still isn't coming down. They are reluctant to increase the dose because it will drop the top number too low. Good thoughts for WaSp please?

Tea you are psychic! How did you know I was going to talk about WaSp's blood pressure? :rotfl::eek:

tea_lover

10000th post WaS!! I wonder how many we've had in total... is this our second thread or third? I know it's called part 2 but I'd got in my head there was another one... may have dreamed that!

I've got randomly sweaty palms - how weird is that?! My hands (and the rest of me) are usually freezing cold. The rest of me is a perfectly normal temperature but for some reason my hands are nervous lol. I can barely grip a pen :rotfl:.