The KonMarie method

GreyQueen

It's good that you persisted and got an answer, Fen1.

I developed CFS/ME off the back of an infection with glandular fever 30 years ago. And it was a confirmed diagnosis of glandular fever by a blood test at the time. I never made a full recovery.

In that time, ME has run the gamut of medical opinions from the yuppie flu days onwards. I also later developed a condition which has seen me under the care of an endocrinology consultant for 20 years now. I have had every test that specialism can provide, and re-test on an annual basis at what I call my MOT.

I don't have anything treatable which can explain the fatigue, I do have an insufficiency which requires constant replacement therapy, but it doesn't mitigate the fatigue. A diagnosis of ME/CFS was confirmed by a specialist clinic about 18 years ago. I'd been tested for everything else which could have explained it away, several times, by some of the most renowned hospitals in the country (and the tropical medicine place in Lunnon Town).

Sometimes, it is just ME and it isn't fixable, unfortunately.:(

VJsmum

grunnie wrote: »

I have a hotpoint aquarius tumbledryer and got a phone call from them last week and I said I no longer had a dryer as I thought they were selling me something. Just watched the news and they are a fire risk and have been recalled. Oops. Guess who has KM the paperwork for it.

My crappy - had - to - be - scrapped - for - the - sake - of - ball - bearings - washing machine was a Hotpoint Aquarius. never again....

Had a lovely simple day with OH - a walk in the countryside, pub lunch, little mooch in a charity shop (bought a christmas tree decoration - the only thing i collect) and a cuppa in a cafe. Perfect. to think people spend their Saturdays shopping......

pennystretcher

I don't think I will be going to malls or normal shops now before January. Too busy for comfort, I really don't like when it's really busy, I like my space

greenbee

Fen1 wrote: »

I have read so often on these pages of posters having fatigue problems, exhaustion, brain fog. That was me too for about 5 years. After traipsin back and forth to the doctor and fobbed off with happy pills, they eventually referred me to a Chronic Fatigue / ME clinic. I knew that this was incorrect. I know my own body well enough to know that there was a real physical cause to my horrendous fatigue ( bed-ridden). The GPs couldn't find it, I had to find the cause. Through sheer determination I tracked down an Endocrinologist who realised that I had non-standard hypothyroidism that the GPS had missed repeatedly for years.
A year on, with the proper medication in place, my life is getting back together.
I am writing this because I really want to help all of you out there whose lives are being limited by fatigue. For me, it was hypothyroidism ( Thyroid UK and HealthUnlocked are fantastic resources and helped me get my life back). For others it might be the wrong contraception, or food intolerances, or even the wrong glasses prescription. Just because your GP cannot find anything and you have been fobbed off with ME, don't give up! There CAN be reasons and they CAN be fixed, but you have to do the legwork unfortunately as the GP /NHS system is hopeless with TATT.

I had undiagnosed chronic iron deficiency anaemia for years (circulating iron was always fine - it was a serum ferritin test on the advice of a reflexologist of all people that finally identified it) despite presenting with classic symptoms (exhaustion, insomnia, reflux, restless legs, sores on the corners of my mouth, tinnitus, migraine etc...) and I know that many of the symptoms people get with ME/CFS are similar to those I have when my iron levels drop.

ME/CFS is a recognised illness, but many don't take it seriously because it is used often used as a convenient label for anyone without any other diagnosis. Which isn't fair on those who do suffer from it.

My bedroom is now an oasis of calm (although I need to put clean sheets on the bed). I have finally unpacked from my last trip (probably a good thing... I have another one in just over a week, and one the week after that as well as a long-haul trip to plan for January - sadly to somewhere cold rather than the tropical locations I was hoping for!) and I have weeded 3 skirts out of my work wardrobe (which now has more in it than my non-work wardrobe, which probably isn't ideal).

Your day sounds idyllic VJ'sMum. Unlike mine. But at least I didn't go shopping!

Must go and catch the queen wasp which thinks it is going to hibernate in here :cool:

drusilla

Well I finally kondoed DD1 yesterday. She has moved into a new home and will be taking DD3 with her. Dog has also gone. Very joy bringing because with her has gone all her stuff- clothes, household and a double bed. PLUS we have given her my old chest of drawers, one of the living room settees, a fridge freezer, some bedding and all the furniture from DD3s room will also go.
Today I took everything out of the already kondoed living room except for furniture- cleaned everything and then put back only the joyful ornaments and pictures. Like Mavvymoo, I am bored of 3 pictures so will look for something else. I have put up a very joyful photo of DS when he was about 3. It makes me smile every time I look at it. A few ornaments have gone but most have stayed because they still bring me joy.

Need to redecorate and I am saving up for a new settee and chair but I am really happy with the results.

If I hadn't fallen like an idiot and banged my knee so it is stiff, I would be having a go at another room.
Great feeling though to get one room to a happy state.
Couldn't do it without you all. X

VJsmum

Still an advert, i know, but this is amazing....

https://www.youtube.com/watch?v=EQ3ePGr8Q7k

Siebrie

I am slowly working my way through the stock cupboard, which is actually two shelving units of five shelves each in the garage. Today we've baked a special kind of cookie, a national speciality, from a pack.

Charis

Fen1 wrote: »

I have read so often on these pages of posters having fatigue problems, exhaustion, brain fog. That was me too for about 5 years. After traipsin back and forth to the doctor and fobbed off with happy pills, they eventually referred me to a Chronic Fatigue / ME clinic. I knew that this was incorrect. I know my own body well enough to know that there was a real physical cause to my horrendous fatigue ( bed-ridden). The GPs couldn't find it, I had to find the cause. Through sheer determination I tracked down an Endocrinologist who realised that I had non-standard hypothyroidism that the GPS had missed repeatedly for years.
A year on, with the proper medication in place, my life is getting back together.
I am writing this because I really want to help all of you out there whose lives are being limited by fatigue. For me, it was hypothyroidism ( Thyroid UK and HealthUnlocked are fantastic resources and helped me get my life back). For others it might be the wrong contraception, or food intolerances, or even the wrong glasses prescription. Just because your GP cannot find anything and you have been fobbed off with ME, don't give up! There CAN be reasons and they CAN be fixed, but you have to do the legwork unfortunately as the GP /NHS system is hopeless with TATT.

Thank you for this very timely comment. I have regular checks at the regional rare cancer centre following treatment there last year. I had an ultrasound scan of my neck this September which revealed a multi nodular thyroid and Sjogren's Syndrome. The results were not passed to my GP surgery nor did the surgery write to the hospital to find out what was going on despite my asking them to do so on three separate occasions. In the end I made an appointment to see a GP and she did thorough blood tests, the results of which I took to my specialist today (yes, Saturday, Mr Hunt!).

I am now in the queue to see a rheumatoid arthritis specialist at the same hospital who 'has an interest in' Sjogren's Syndrome. I suspect additional hypothyroidism as I have a high TSH level and matching symptoms. For years I had been going to the doctor with individual ailments, which in themselves appeared 'not life threatening', but as a collection have been making life miserable. I hope now I have found someone who is interested enough to spot what is going on.

Incidentally the cancer itself was so rare that it was only recognised when the sample was sent for analysis. Initially the doctor was reluctant to remove it as he thought it was just a recurrence of a previous cyst. It was itching so much I threatened to remove it myself 'with a Stanley Knife'. I was only half joking . Pester power pays, as long as we do our homework (thanks for the links, Fen 1) and we are polite but insistent. For some reason the ends are never joined up in the NHS, each doctor is an expert in his field, but no other, and a body is not a collection of parts, but an orchestra of organs. We know when ours is out of tune. :rotfl:

GreyQueen

GPs aren't right a lot of good to me as they ask me about my condition, not the other way around. When a medical wallah, be it nurse or dr, sees my condition described on screen (it's so rare it doesn't even have a proper name) I hear an animated Ooooo! That's interesting!

I could do without being medically interesting, frankly, but ya gets what ya gets.:rotfl:

Am doing a few much-postponed hand-sewing jobs whilst playing around with yootubular videos. Nasty weather outside

Igamogam

Managed to konodo about 60 items today at a local NCT sale and got almost £100 for them. Just stuff that I had held onto once DDs finished that I had been using in work. If truth be know they were cluttering up the place and I havent touched/needed them now for a couple of years, so they went. Few bits and pieces left over will go to CS on Monday