Nice People Thread Number 10 -the official residence of Nice People

lemonjelly

silvercar wrote: »

I'm not grumpy, I look on it as a challenge, finding people a path out of the !!!!.

I can however understand lj saying enough is enough - some people just don't want to be helped.

Finding people a path out is fine, interesting & challenging.

Dealing with abusers of help is another thing...

bugslet

lostinrates wrote: »

Ah.....so this is how it starts?

Did you find the same, that mr bugs was able to drive and be ok 'in the Monet with 'skilled tasks'?

I'm sorry bugslet, this is probably all close to the bone.

No problem lir.

Mr Bugs had a very aggressive form of dementia ( the home said they hadn't ever seen anyone detiriorate so quickly).

Those were the types of things that brought it home to me that things were not right, forgetting stuff, cutlery draw was always open, it quickly moved onto stange dress decisions and losing sense of time. I'm not sure about the driving as he had sold his car and not got another one - we live close to the things he needed and he'd get a taxi to any appointments or the pub.

As with PN, looking back, he'd become cantankerous and dogmatic prior to me noticing anything that you could pin to one of the cognitive diseases.

This is from the Alzheimers website, which I found useful

http://www.alzheimersreadingroom.com/2007/01/seven-stages-of-alzheimers.html

though some things were applicable and others not so for example I saw things that were described as stage 5, but nothing from stage 4.

Of course the parent may just be getting forgetful - I think the key is how it is impacting on you, are you getting drained and if their actions are dangerous to themselves or to others.

lostinrates

silvercar wrote: »

Then you are extremely nice to entertain the idea of RP living with you. Far nicer than I could be.

Perhaps its easier because of it? I've not lived with RP really since I was eight

lostinrates

Just got my email.....

Turned down to donate blood.

Generali

lostinrates wrote: »

Egads......typical for this area......services are in the local cities, and we fall in a sort of twilight zone covered by none of them really. But probably still worth a call you think? I suppose I'd call the one of the city of hospital I'd most likely I go to.

I'd give them a call and ask for some advice then get in touch with the two nearest groups. The local groups are very varied in what they do and offer just by the nature of the people who are in them really.

One thing that Mum's local Alzheimer's Association was that the lunch they had was with the local Alzheimer's co-ordinator woman who could keep them up-to-date with rules and the way bureaucracy dealt with things. TBH that woman was amazing: she guided people through the bureaucracy to get the best possible outcomes. If you can, find someone that can help you to do that. Again, if it comes to it I'm sure my Mum would be happy to give advice from her situation.

lemonjelly

Nikkster wrote: »

And I'm sure they'll grow up to be lovely men.


Sadly even that still doesn't guarantee that they won't get themselves and others into awkward situations.

For the record, I know that women can be equally as bad.

lostinrates wrote: »

Aren't we all pretty much guaranteed to put ourselves and others in awkward situations occasionally? I mean. Some more than others sure but.....I do my best:o

I wish I could just get myself into an awkward situation...:o

lemonjelly

Generali wrote: »

1. You get used to it.
2. It's rarely above mid-30s
3. Everywhere has air con

I really noticed #3 in London last (your) summer.

The weather said it was going to be 30C. Ok, thinks I, hot but not that hot. As long as I walk across London and avoid the Tube I'll be laughing.

Stone me! Nowhere has air con. It was horrible. How can you have a pub with no air con in the middle of a city? Crazy idea.

That's the thing in Sydney and indeed most of Australia. You get pretty hot at times but it's easy to cool down again. It's perfectly normal to duck into a shop for a few minutes just to cool down a little. In London everywhere was stifling. The only place that wasn't baking hot was a Pret a Manger I went into.

I understand the reasons. Sydney is a pretty unpleasant place to be in the cold. It doesn't make it any better though! The only time Sydney is unpleasant in the heat is if your air con breaks down on a stinking hot day. Having said that, I did a few days in the tropics without air con and managed just fine. Lots of cool showers was the key there.

You're definitely turning. This is such an aussie post...:rotfl:

lostinrates

bugslet wrote: »

No problem lir.

Mr Bugs had a very aggressive form of dementia ( the home said they hadn't ever seen anyone detiriorate so quickly).

Those were the types of things that brought it home to me that things were not right, forgetting stuff, cutlery draw was always open, it rp has ALWAYs left drawers and doors open. Non RP and now I have had silly tears of frustration over this. I know it sounds stupid but closing the kitchen cupboard doors upward of half a dozen times a day is really frustrating. This is nothing to do with any dementia its just laziness.quickly moved onto stange dress decisions and losing sense of time. ah. Ah, this makes sense. Not getting up till later and later...like a teen. Most unpleasant. Let dogs out at four am this morning......when the door was left open and the dogs were left shivering. . I know I should care more about RP, but the impact on dogs and the rest of us is not small. To clean bare concrete floors after huge muddy feet have ben trampling in and out for hours is no joke either. I'm not sure about the driving as he had sold his car and not got another one - we live close to the things he needed and he'd get a taxi to any appointments or the pub.

As with PN, looking back, he'd become cantankerous and dogmatic prior to me noticing anything that you could pin to one of the cognitive diseases. has always been cantankerous and dogmatic, and frankly so am I. I think impossible to notice. Apart from, more overt picking...in the past has been more manipulative and subtle. Also.....a few aggressive outbursts, but frankly I have sympathy with them, I think.......I think I feel like having more of them myself frankly! Its not ideal, the house, no heating and someone saying...'you forgot this, you forgot that....:D

This is from the Alzheimers website, which I found useful

http://www.alzheimersreadingroom.com/2007/01/seven-stages-of-alzheimers.html

though some things were applicable and others not so for example I saw things that were described as stage 5, but nothing from stage 4.

Of course the parent may just be getting forgetful - I think the key is how it is impacting on you, are you getting drained and if their actions are dangerous to themselves or to others.

Yes, its impacting. I was talking about it a bit with Lydia j on the way to visit pastures before Christmas (she too has experience of dimntia). The things like gates and doors and cookers are dangerous, taps and electricity usage (seriously, sometimes every light on the house is on, for someone as tight as i am it hurts!) are just expensive. Until I lose my temper that is, then its dangerous



Thank you for letting me talk about this. I'm not sure what to do. I know RP is getting vacs for travel next week from private doctor (because didn't make an appointment with GP in time despite me trying to organise ....I was yelled at for nagging and was wrong that vacs were needed ....only, I'm not wrong ) and RP has said will talk to private GP about it. Whether that will happen or not, and whether private GP will act or not.



There are a few other things of course....things that add up here but seem silly by themselves.....but.....I guess we have to wait and see.

ATM things are fine. If my health gets worse again things become more challenging. The situation was that RP and I were meant to be helping each other out. I am advised to have help or not to live alone if possible because of my brain, and sometimes meds (there was the sic week suicide watch of 2013 which was nothing, they aren't bothering me more than life itself might I don't think ) but I don't think if I'll I can also be a carer at those times. Its always been my plan to care for my parents, but......it wasn't my plan to have a broken brain either.

I suppose.....we wait and see.

lemonjelly

lostinrates wrote: »

Just got my email.....

Turned down to donate blood.

Did they say why?

(edit, don't worry if you don't want to post why publicly - afterthought)

lostinrates

lemonjelly wrote: »

Did they say why?

(edit, don't worry if you don't want to post why publicly - afterthought)

Not in detail. They said I can go if I am asymptomatic but not while I am medicated. Which is odd because the medication itself didn't seem a problem yesterday. .

I am not symptomatic to worry about mentioning any symptoms