Nice People Thread Number 10 -the official residence of Nice People

lostinrates

Generali wrote: »

LIR. Talk to your local Alzheimer's Association: they're amazing as a rule and really helped my mum through the process with my Dad.

If that's no good, PM me and I'll put you in touch with her. Since Dad died she's tried to help other people through the journey of Alzheimer's.

IIRC, one really important thing is to get this down as a medical rather than a social problem if possible. That way the NHS will provide resources and they're rather richer than the local council.

Alzheimer's is not a fun disease at all. You have my very great sympathy.

Just tried looking at that, thanks...
Got this with first part of my post code, so will have a play with town names on map."
No services where found covering the postcode you entered. You may want to try entering a nearby postcode or by navigating via our map of local services."


Can they help before any diagnoses?


Its a relief to know none of you think I'm overreacting. RP is obviously defensive. GP brushed it off.



Egads......typical for this area......services are in the local cities, and we fall in a sort of twilight zone covered by none of them really. But probably still worth a call you think? I suppose I'd call the one of the city of hospital I'd most likely I go to.

PasturesNew

lostinrates wrote: »

.... able to drive ....

You know those occasional news stories where "76 year old man/woman has been driving 500 miles round the M25; last heard of 3 days ago when they set out to visit their daughter 30 miles away"?

That's them!

They can drive....... but they've no idea who they are, where they're from, or where they're going.

Might have to look at GPS tracking methods of [a] car person. Person is harder, you can get watches, but then you rely on them having put the watch on the day they go walkabout.

Obviously you're not at that stage.... and hopefully won't be. But you need to be aware of what's possible and what's in your power.

PasturesNew

lostinrates wrote: »

Its a relief to know none of you think I'm overreacting. RP is obviously defensive. GP brushed it off.

You're not. You're ahead of the curve. Yes, as GP says "it's normal".... yeah, normal for old people who are dropping marbles...... which doesn't help AT ALL.

Many of us here have seen/done these things.

lostinrates

Oh, that makes a lot of sense pastures.

I have had to ask RP to stop being negative about non RP several times now. Seems cannot resist making horrid comments at times. Before to left last time we even rowed about it, (RP never rows just pretend has no emotions) but then RP did something UNPRECIDENTED, admitted to DH that it was wrong, that's the nearest ever made to an apology in entire life! ) that said....first hour back made a jibe at non rp's expense again.

Its very difficult.

I'm not 'emotionally close' to either of my parents really, not like one would like to be, but I'm ok with that. but I obviously don't like this sort of thing. If RP 'cannot help it' it makes more sense.

Generali

lostinrates wrote: »

Just tried looking at that, thanks...
Got this with first part of my post code, so will have a play with town names on map."
No services where found covering the postcode you entered. You may want to try entering a nearby postcode or by navigating via our map of local services."


Can they help before any diagnoses?


Its a relief to know none of you think I'm overreacting. RP is obviously defensive. GP brushed it off.

I don't see why not. The thing about the Alzheimer's Association isn't just the charity itself, it's the network of patients' families that is so helpful. The local one to my mum had regular (monthly?) lunches so you had 20-30 people around the table each of whom wanted to share their experiences. Of that lot you'd get some diagnosed early, some late, all sorts.

My Dad was diagnosed with stress and then depression before Alzheimer's was diagnosed. He was in his 50s which probably didn't help.

lostinrates

PasturesNew wrote: »

When I asked my mum 2 weeks ago what the new year will be she said she didn't know.... then she guessed. 1971. Have another go .... 1973?

I said the same, at the time, about my mum - she'd have known all the stuff asked.... but I think their test is cleverer than that.

One of the issues I have to deal with now is that mum appears full-functioning. e.g. if you phoned her now and asked her what she did yesterday she might say "I went to my daughter's for lunch; a lady taxi driver picked me up. We had beef to eat". Now, that sounds coherent, but compared to my version it's loony tunes. My version is: "2 weeks ago I picked up mum and took her for Xmas dinner at sibling's.... we had turkey".

Only I would know what she said was loony tunes; anybody conversing with her would say she was playing with a full set.

I think RP would be close to the accurate still. I really think we are very early stages. It think RP knows what is going on, just not the little I between stages....like.....eat a meal yes, but.....turn the cooker of no,

tomterm8

On completely unrelated news I've finally got round to joining the donor register.

It's actually easily done online from http://www.organdonation.nhs.uk/how_to_become_a_donor/ .

lostinrates

tomterm8 wrote: »

On completely unrelated news I've finally got round to joining the donor register.

It's actually easily done online from http://www.organdonation.nhs.uk/how_to_become_a_donor/ .

I want to find some one who wants my extraordinary brain when I kick the bucket. My neurologist refuses to point me in the right direction, one of the reasons I don't get on with her. I think its been so very adaptable and surprising to all the experts it might hold many answers or interesting questions for research.

I understand this all has to be in place before you die. Some dept wanted it before but isn't interested now :rotfl:.

silvercar

I'm not 'emotionally close' to either of my parents really, not like one would like to be, but I'm ok with that.

Then you are extremely nice to entertain the idea of RP living with you. Far nicer than I could be.

GDB2222

One test used is the MMSE. You can find a copy here. http://www.guysandstthomas.nhs.uk/resources/our-services/acute-medicine-gi-surgery/elderly-care/mini-mental-state-evaluation.pdf


One of the questions reads:
Repeat "No ifs, ands, or buts"

I tried that out loud and duly messed it up the first time.