Confused, Angry and Clueless

southoftheriver

Yes reading more, it seems as though she wasn't told that PCOS is a spectrum? Her age is in her favour and although it doesn't mean you won't have difficulties conceiving you have time on your side.

I would have been devastated at 17 if I had been diagnosed with PCOS. Even though I knew I wanted a very demanding career and have persuade that, I want to have a family more than anything.

Try and put the anger aside and focus on the future.

meritaten

I used to work for a 'no win no fee' company - and tbh would struggle to find a case here. misdiagnosis, unless it involves physical suffering is a tough one to prove. doctors are not 'infallible'!
I would just be thankful that the tests now indicate that everything is ok (there may have been a problem in the past which has now cleared up), and go ahead and try for a child.

zaksmum

Surely you should just be thanking God that the diagnosis was wrong? I would!

ash28

ilovelondontown wrote: »

Er actually, I was 16 when I was diagnosed with pcos, and it wasn't because I wanted to have babies at 16, but looking after your fertility is like looking after any part of your body, prevention is better than cure. Irregular cycles are a b!tch and incredibly stressful when you don't understand why it's happening.

Exactly, my daughter was diagnosed at 17, she went to the GP initially to try and find out if having the odd period a year was normal......obviously it wasn't normal. She was referred to the hospital for an ultra sound and then on to a clinic for women with PCOS....which she attend regularly.

She has been receiving treatment since then....the first treatment was the contraceptive pill and over the years metformin and then a medication for horomone imbalance added to the metformin.

When she decided she wanted a baby she went to her GP who referred to the hospital for another ultra sound and things were pretty much unchanged. He did blood tests for hormone levels.....that was when the second medication was added. He told her that, instead of waiting 2 years before being given any help to conceive she would only have to wait 6 months because of her history. And that the treatment initially would be clomid.

However she got pregnant within a couple of months of taking the medication to try and balance her hormones.......and had a lovely little girl in May of this year.....she was 31.

Ronaldo_Mconaldo

Some people really are contemptious. So why don't we put the facts down about thie original post:

A 17 year old was told that she would struggle to have a baby

3 years later she was told that she could have a baby

20 something year old hisband thinks they can sue the NHS


I'm sure that this would be thrown out by any ambulance chasing solicitor whose advert that they've seen while watching the Jeremy Kyle show but really, does anybody else find this whole thing strange and unbelievable? What 17 year old's life is turned upside down finding out about not being able to have kids?

southoftheriver

Ronaldo_Mconaldo wrote: »

Some people really are contemptious. So why don't we put the facts down about thie original post:

A 17 year old was told that she would struggle to have a baby

3 years later she was told that she could have a baby

20 something year old hisband thinks they can sue the NHS


I'm sure that this would be thrown out by any ambulance chasing solicitor whose advert that they've seen while watching the Jeremy Kyle show but really, does anybody else find this whole thing strange and unbelievable? What 17 year old's life is turned upside down finding out about not being able to have kids?

Like I said earlier, I don't find it unbelievable although sad that the original OP suggested legal action. At 17 I definitely knew I wanted a family, ended up becoming a nursery assistant for a while and was broody even though. Being told I couldn't conceive then would have felt like the end of the world. It's still something that concerns me now and will do until I have a family.

FBaby

Being told I couldn't conceive then would have felt like the end of the world.

But it is highly unlikely she would have been told that, that's the whole point. There is a big difference between being told she might struggle to conceive if the condition didn't improve and told that she would never ever be able to conceive no matter what.

southoftheriver

FBaby wrote: »

But it is highly unlikely she would have been told that, that's the whole point. There is a big difference between being told she might struggle to conceive if the condition didn't improve and told that she would never ever be able to conceive no matter what.

Yes fair point. But for me being told that I would have struggled to conceive would have been bad enough, especially at 17 with hormones raging and everything else. That however is no ground to sue. And I was addressing the point that it seems unbelievable, and I don't think it does.

When you ask a patient about their consultation it is common to forget parts that you were told whilst focusing on other bits. These may be over or underestimated depending on the person. That is human nature. We don't know what she was told, doctors tend to steer away from absolutes for this exact reason but I don't know on what ground they made their statements in the first place.

duchy

peachyprice wrote: »

I guess I'm peculiar then as I didn't find it soul detroying to be told te same thing at a young age, it was a bridge that would be crossed when I came to it. Life is what you make of it and if you choose to dwell on the negative then yes, you will suffer years of heartache, if you get on with your life regardless you won't.

Maybe

I had a friend who was told at the age of 17 she has no chance of babies and her womb needed to be removed. Ironically she was training to be a nursery nurse.

It destroyed her - for her family and children were very important and she felt that she couldn't marry and deny a man the chance of children. Logically she knew differently but deep down she couldn't accept it ....... and she remained single. Very sad.

Most young women assume they will be able to have children when they are ready even if that time seems distant....to be told something you always assumed you would be able to do (and probably had never given much thought to) is impossible can be earth-shaking.