don't know who to turn to regarding DLA

~Chameleon~

Parva wrote: »

Dovobet is the first line of attack, it's part attack and part steroid to reduce the inflammation. There is no cure currently, though holidays in the sun also work very well as sunlight creates vitamin A which is the key issue with people suffering with psoriasis.

Not always! My ex suffered a very rare form of psoriasis that was actually made worse in sunlight and UV treatment. He had to cover up from head to toe in summer which, as you can imagine was extremely uncomfortable for him.

nannytone_2

i use dovobet for my omtermittant break outs. but the OP is asking aboyut psoriatic arthritis... not just psoriaisis

mazza111

nannytone wrote: »

i use dovobet for my omtermittant break outs. but the OP is asking aboyut psoriatic arthritis... not just psoriaisis

I know hon, I raised that point in my first post on this thread.


Chameleon I know someone like that too. She'd to wear factor 50 suncream that she got on prescription in the summer months, even on hazy days. At least the sun helps my dd

GlasweJen

I don't see why someone who is bed bound couldn't supervise sensible school age kids. Surely just having the kids play within eye line of dad would be enough to keep them safe for a few hours after school? They could do homework while waiting on mum coming home/get a cold snack from the fridge and sit with dad playing cards or a board game.

In our house you didn't disturb dads sleep unless you couldn't breathe or were recovering from a seizure as dad could have seizures himself if he had to work with a lack of sleep. Most of the time the school sent us home to cover their own backsides rather than because it was a genuine medical emergency. If the kids don't have medical problems (the OP doesn't mention any) why should mum be worrying about a what if that might never happen?

Parva

Horseunderwater wrote: »

Sunlight does not create Vitamin A - it is Vitamin D.
Psoriasis is partly made worse if you get upset and stressed about it. What can help a little is bathing in a warm bath of Lavender oil, You do not need very much approx 5 drops in a bath of warm water. It helps the skin heal and stops the itching and irritation - it is a natural healing agent. Also helps with Excema. Get rid of any perfumed soap powders/liquids and use non bio or one with little smell. Sainsbury basics range good for a bio and if you add soda crystals to soap drawer in machine it helps clean stains at very little cost. Or buy some of those washing balls that agitate without soap to wash your sons clothing.

You are absolutely correct, my apologies for getting the wrong letter.

Tehya

Hi Sunshine,

Gosh :eek: at some of those prior posts.

My hubby has both conditions too, like your other half he was in full time work and the joint side came on very quickly (within a few short months) going from being able to hike cross country to not being able to walk the length of the living-room or get upstairs unless on all fours.

His hands and feet both curled up, the bones are now deformed; again this all happened in less than six months. Then his rib cage also chaged shape as did his spine and hips. He takes methotrexate, sulfasalazine and enbrel injections along with all the pain meds and a shed load of other stuff too.

Like you we put in a claim for DLA but while we were waiting to hear we visited the GP and explained the situation and problems that my husband was having. We believe it was this consultation that got my husband the correct level of DLA and also meant he was put in the Support Group for ESA.

So my advice is to definitely see your GP with your husband and explain everything. If you are awarded middle or higher rate care you should put in a claim for Carer's Allowance as it sounds like you're doing more than the required hours and it'll help take the pressure off your family while you decide what you want to do and also see what/if/which meds work for your husband. good luck.

~Chameleon~

GlasweJen wrote: »

I don't see why someone who is bed bound couldn't supervise sensible school age kids. Surely just having the kids play within eye line of dad would be enough to keep them safe for a few hours after school? They could do homework while waiting on mum coming home/get a cold snack from the fridge and sit with dad playing cards or a board game.

You're making a huge assumption that the children are little angels that never squabble or fight and behave perfectly 100% of the time. How do you know they're not little devils that would take advantage of the absence of mum to create havoc? (sorry OP, not saying your children definitely are devils, just playing Devil's Advocate).

Any sort of stress could exacerbate her husband's condition. Do you think it's fair to place that responsibility upon him, given the extent of his illness?

Only the OP knows her children and to what extent they may be left unsupervised by a healthy adult so I don't feel it's fair to judge her in this way or to put unfair pressure on her to find work that would entail leaving her children at home, effectively alone.

mazza111

I don't think I agree with you on this one Glaswegen. If the OP's kids are anything like mine, they couldn't sit still for 2 minutes, never mind 2 hours. Maybe that's why they were so accident prone

It is hard finding a job that suits school hours when there's no one else to take them, been there, done that. Was great when I moved home and had some back up from my parents, the school could always then put the child in a taxi to their house rather than home. Which happened on several occasions, the worse one being a broken bone, the most minor being a stomach bug. If my mam n dad hadn't been there I would have had a few times of having to leave work early. Even with them there I sometimes had to do it. And finish my delivery when we were done at doctors etc.

So for me, I wouldn't leave my accident prone children (when they were younger) with someone who is bed bound. It was just 3 weeks ago since my last A&E trip! So much for them being all grown up now

GlasweJen

Our school phoned an ambulance for a real emergency. Anything like recovering from seizure, had an asthma attack but is ok now or is complaining of being ill but not actually been sick all fell into the "send home to dad" category.

As for running riot in the house while dads in bed, we wouldn't dare. Is it acceptable to stay home all day on the basis that your kids are unruly?

It is the OP who specifically asked for advice on working.

At the moment depending on where she lives the OP is going to have to prove that her husband has been this ill for 3 or 6 months (depending on DLA or PIP) and will be this ill for another 6 months, something that could induce doubt into a decision makers mind if the treatment plan is still being tweaked.

letthemeatcake

OP how long since he visited the GP? Is the GP aware of his suicide attempts? He may not be aware of how bad your husband is and if he sees him he might hurry that DLA report along. It also gives your husband an opportunity to ask his GP if he received the request in the first place as it may have been 'mislaid'.

If you get awarded middle or higher rate DLA don't forget to make a claim for carers.