"Tough Love" Cuts for sick and disabled!

dori2o

tiddlertot wrote: »

Me, I take 180mg of morphine (MST) daily as well as copious amounts of Oramorph plus 200mg of Sertraline.

I seem to be able to function quite well on them.

Having the pain reduced by 50% is fantastic and what with the side effects, I feel 'on top of the world'.

And before you say that not everyone is the same, I know. I work round my disabilities. Sleep in the day as best I can, and am bright and breezy for most of the night - generally go to bed at about 5am enabling me to work from home for maybe 8 hours a day.

I function OK, but only because I (basically) self prescribe in order to get the best balance for me.

It's pointless me taking more than 160mg Morphine a day because it knocks me for 6, and it's pointless trying the patches because I don't cope on them (I've tried Morphone, Buprenorphine and Fentanyl and I was sick as a dog with all of them for days).

I have been prescribed 1 30mg tablet of Dihydrocodeine every 4-6 hours, that a max of 180mg (which my GP says is the max doseage), but I take around 270mg a day, sometimes more sometimes a little less.

The pain Dr knows I do this and is happy for me to do it. His advice is to take what is needed, as long as there are no adverse side effects, even if that means prescribing above recommended maximum dosesm, which is something he freely admits to doing.

I get less than a 5-10% reduction in pain and TBH even increasing the Morphine wouldn't result an much more relief, certainly nothing like 50%, I've been up as high as 300mg a day and it make little difference.

I take the medication in such a way that allows me to function enough to get to work. Thats it.

covlass

Well i would love to see what they come up with to cure/improve my DD's autism and learning difficulties

tiddlertot

Parva wrote: »

Massive applaud there, that's some stamina you have. Oh wait, you're offline at 4.18am as I type. I guess you have to be up early to pour in your tax contribution to the disabled here, I'm awake because of damned phantom pains, it's wierd how you get pains in a leg you no longer have.

I am however intrigued in this business that you have where you pay all of this tax to help us shysters, I would like a job like that, one where I can sleep when I want, wake when I want and attack others in my free time.

Please do enlighten me about this job that you do that supports by way of tax us shysters that are fiddling the system as I would dearly love a job that I can do from my bed or wheelchair.....

It's called working on a laptop in bed!
I earn fees for providing financial solutions to people and businesses that are in difficulty.

That is a rather wierd posting. I have two legs, not one!

Karena_3

Poppie68 wrote: »

I have worked for the NHS for the last 25 years, the last 7 have been spent trying to get 'The blaggers' shall we say, to comply with treatment, turn up for GP and hospital appointments etc all they want is a sick note.

Gp's are now starting to question them more closely and in some cases refuse further sick notes until patient has been assesed, they dont turn up and register with new GP's.

We do regular prescription audits checking the figures for prescriptions issued and prescription filled, that too has been enlightning.

Health authorites are getting wiser as they start tightning their belts and rightly so, millions is being wasted on people that think nothing about wasting these millions that could be spent on treatment for the people that desprately want and deserve it and not on the people that just want to blag a few quid from benefits.

Just one example i will give, and only because this patient is no longer with our practice..

5 years this patient had been coming in and getting sick note for numerous back pains for IB had all tests nothing was found, patient comes to the surgery in tears etc with pain so she must be in pain.

3 years into it they turn up in a wheel chair and with a carer (spouse) asking the GP to do a letter of support for their DLA claim.

GP completes the letter, patient comes in about 4 months later to thank the GP for their support and hands them a bottle of whiskey, lets GP know they have been awarded HRC and HRM and had a lovely new shiny car outside.

1 month later same GP visits a sunday food market and comes across the patient running a stall, lifting boxes walking to and from a van without any sign at all of pain.

Patient never saw the GP, GP calls patient in the week after for a 'review' in they are wheeled by their carer.

GP tells patient it was nice to see them up and about last Sunday,but didnt want to bother them to say hello as they were busy, nice to see she was feeling better and that he would no longer be supporting her claims for IB by issuing sicknotes.

Never saw the patient or spouse ever again.

Some people act like it doesnt happen or an 'oh well' approach, well these people have helped to bring the NHS to its knees.

As for not being aware of peoples health problems from the outside, the 35,000 patients i deal with i am aware of.

Someone looking at me wouldnt know i took 37 tablets a day , had a butrans patch stuck to my backside and drank oromoph like it was pop, or that i have to walk with 2 sticks and use a wheelchair some days.

It is not clear what job you do in the NHS but whatever job you have you should be aware of patient confidentiality.This does not become irelevant because the patient is no longer with your practice.:mad:

I hope nobody I know is one of the 35,000 people who's history you know as I don't wish to see them treated with such disrespect as to have their medical history gossiped about on an open Forum.

paddedjohn

Karena wrote: »

It is not clear what job you do in the NHS but whatever job you have you should be aware of patient confidentiality.This does not become irelevant because the patient is no longer with your practice.:mad:

I hope nobody I know is one of the 35,000 people who's history you know as I don't wish to see them treated with such disrespect as to have their medical history gossiped about on an open Forum.

I see no names..

Karena_3

paddedjohn wrote: »

I see no names..

You demonstrate a very naive understanding of confidentiality.I know there are many organisations who think as long as a name is not included they can print whatever information they like but this does not apply to any organisation within the NHS.

Also when I last worked in the NHS there were more appropriate methods of empowering patients to take responsibility for their own wellbeing than lableing them ''blaggers''.

krisskross

Karena wrote: »

You demonstrate a very naive understanding of confidentiality.I know there are many organisations who think as long as a name is not included they can print whatever information they like but this does not apply to any organisation within the NHS.

Also when I last worked in the NHS there were more appropriate methods of empowering patients to take responsibility for their own wellbeing than lableing them ''blaggers''.

This is entirely the wrong board to suggest that DLA/ESA/Ib claimants could be telling porkies.

We are told often enough that the fraud rate is infinitessimal, in fact hardly exists:rotfl: In point of fact I doubt there is hardly a one of us that doesn't have at the least suspicions about the validity of someone we are aware of's claim.

Historically these benefits have been so easy to get there was bound to be lots of abuse. Hopefully now the criteria is tighter and planned to get even tighter still there will be less fraudulent claims.

Karena_3

krisskross wrote: »

This is entirely the wrong board to suggest that DLA/ESA/Ib claimants could be telling porkies.

We are told often enough that the fraud rate is infinitessimal, in fact hardly exists:rotfl: In point of fact I doubt there is hardly a one of us that doesn't have at the least suspicions about the validity of someone we are aware of's claim.

Historically these benefits have been so easy to get there was bound to be lots of abuse. Hopefully now the criteria is tighter and planned to get even tighter still there will be less fraudulent claims.

I think perhaps I am on the wrong Forum.
I thought this Forum was to advocate for the rights of disabled people.There appears to be more backbighting than is good for me.
I think Iwill go back to OS where I am less likely to put my foot in it talking about slow cookers or bread.:)

I think I did not put this very well or you have not understood.I don't post about benefit fraud .I come to the Forum with an interest in disability and in this case the confidentiality of patient information.The post followed my previous one but I have not figured out how to link them.:o



The role of health professionals should be to provide appropriate health care and maintain high professional standards including confidentiality.

Jemma-T

Poppie68 wrote: »

I have worked for the NHS for the last 25 years, the last 7 have been spent trying to get 'The blaggers' shall we say, to comply with treatment, turn up for GP and hospital appointments etc all they want is a sick note.

Gp's are now starting to question them more closely and in some cases refuse further sick notes until patient has been assesed, they dont turn up and register with new GP's.

We do regular prescription audits checking the figures for prescriptions issued and prescription filled, that too has been enlightning.

Health authorites are getting wiser as they start tightning their belts and rightly so, millions is being wasted on people that think nothing about wasting these millions that could be spent on treatment for the people that desprately want and deserve it and not on the people that just want to blag a few quid from benefits.

Just one example i will give, and only because this patient is no longer with our practice..

5 years this patient had been coming in and getting sick note for numerous back pains for IB had all tests nothing was found, patient comes to the surgery in tears etc with pain so she must be in pain.

3 years into it they turn up in a wheel chair and with a carer (spouse) asking the GP to do a letter of support for their DLA claim.

GP completes the letter, patient comes in about 4 months later to thank the GP for their support and hands them a bottle of whiskey, lets GP know they have been awarded HRC and HRM and had a lovely new shiny car outside.

1 month later same GP visits a sunday food market and comes across the patient running a stall, lifting boxes walking to and from a van without any sign at all of pain.

Patient never saw the GP, GP calls patient in the week after for a 'review' in they are wheeled by their carer.

GP tells patient it was nice to see them up and about last Sunday,but didnt want to bother them to say hello as they were busy, nice to see she was feeling better and that he would no longer be supporting her claims for IB by issuing sicknotes.

Never saw the patient or spouse ever again.

Some people act like it doesnt happen or an 'oh well' approach, well these people have helped to bring the NHS to its knees.

As for not being aware of peoples health problems from the outside, the 35,000 patients i deal with i am aware of.
.

Most of that is rather disgusting. Not sure what your job is but I can't think of any worthy position in the NHS that brings up some of your bile.

At the very least you're a jobsworth with poor grammar and spelling.

Poppie68

Jemma-T wrote: »

Most of that is rather disgusting. Not sure what your job is but I can't think of any worthy position in the NHS that brings up some of your bile.

At the very least you're a jobsworth with poor grammar and spelling.

Please point out to me what is so disgusting in my post!
Also 'brings up your bile'???

And as for the poor grammer and spelling, well maybe that could be down to all my medication,who knows?