ESA refusal Blah!!

sunnyone

Mazza, people with HMS/EDS get osteo arthritis because of the history of dislocations/abnormal joint movements which means you have to have that first so I cant see how arthritis in older relatives can be related to your dd getting a HMS diagnosis.

HMS/EDS does run in families but to have it severe enough to cause osteo arthritis at a very young age (I was in my late teens when I was diagnosed with osteo arthritis) you have to show hypermobility symptoms in childhood.

Dunroamin

schrodie wrote: »

Oh so you're all immune form getting sick and or disabled then!!

....a super family!!!! :rotfl:

Being disabled doesn't preclude working.

clemmatis

Dunroamin wrote: »

Being disabled doesn't preclude working.

And working doesn't preclude receiving a disability benefit. But zoominatorone would appear not to know that.

plum2002

Dunroamin wrote: »

Being disabled doesn't preclude working.

some disability benefits are paid to those disabled and working, some/many disabled people can work however some cannot they are not lesser human beings for that, they just have less money to live on.

mazza111

sunnyone wrote: »

Mazza, people with HMS/EDS get osteo arthritis because of the history of dislocations/abnormal joint movements which means you have to have that first so I cant see how arthritis in older relatives can be related to your dd getting a HMS diagnosis.

HMS/EDS does run in families but to have it severe enough to cause osteo arthritis at a very young age (I was in my late teens when I was diagnosed with osteo arthritis) you have to show hypermobility symptoms in childhood.

I know dear, we had all the symptoms of it without diagnosis. We all scored 9/9 on Beighton score. And probably about 3-4 on Brighton criteria. Of course there's more known about it these days then there was 30 years ago when I started getting problems, or 60 years ago, when my mother started getting problems. As an HMS/EDS sufferer yourself I'm pretty sure you will be aware of how under diagnosed it is. I've never had a full dislocation, but loads of subluxing (partials), my old mam did have dislocations, but they said it was due to the arthritis... We still laugh at my old mam when she drops something, she bends from the waist straight down to the floor with no problems, it's quite obvious now looking back, of course we knew nothing about it back then. I now only score about 4/9 on beighton score, due to the arthritis stiffening things up and only have hm on the left hand side of my body these days (thankfully). The only part of me I have been told is hm is my elbows and my knees, although I can do the thumb on one side too. My old mum (78) still scores 9/9 on Beighton score, and who knows, if she had been diagnosed younger she could probably have had the right help to prevent her getting so bad.



I don't class myself as disabled. I can still walk, albeit slowly to the specified ranges. I'm a part time crutch user. On my bad days. I do not claim DLA. The only personal care I need is to get my socks on and bra fastened due to my arm, so wouldn't claim it, I manage perfectly well.

My dd however is a totally different kettle of fish. They are doing a wheelchair assessment soon, but don't know if she'll be able to self propel or not, due to the wrist and shoulder dislocations. The doctor at the WCA didn't think she would be able to self propel, and then ended the assessment, which I'm taking as a good sign for her ESA. She tries her best to be as independent as possible, showers herself, although not when alone. Dresses herself.

I'm still awaiting answers to my questions from those critical as to what they would like her to do.... Trust me, my dd would love to be able to work rather than be stuck in a flat she hates every day. Friends have been lost due to her condition and her not being able to go out with them when she wants to but isn't able. This is a lass who's come from a family who's always worked. I wouldn't wish her illness on anyone.

mazza111

I also find it quite remarkable that some on here had nothing to say when she was being treated like a piece of rubbish by ATOS, but as soon as she may be starting to get what she needs they jump on the band wagon..... sad gits

Dunroamin

plum2002 wrote: »

some disability benefits are paid to those disabled and working, some/many disabled people can work however some cannot they are not lesser human beings for that, they just have less money to live on.

And many people on disability benefits have more money than those who work.

Nobody except you has suggested that anybody might be a "lesser human being" for being too disabled to work.

plum2002

Dunroamin wrote: »

And many people on disability benefits have more money than those who work.

Nobody except you has suggested that anybody might be a "lesser human being" for being too disabled to work.

I haven't suggested they are, I've said they aren't, slight difference.

Nobody on benefits is better off than someone working, unless they are on disability benefits AND working. Although quite frankly if someone was born/became so disabled it was impossible to work, then no human being should want them to not have state support in order to cope, even if that was more than 'those who work'. Imagine being born so disabled that there is nothing you can do yourself in order to improve your lot in life - any monies available in order to make life easier should not be begrudged, only a disgusting excuse for a human being would think that someone in that position should be worse off because they are disabled and unable to help themselves!

juanmanuelmarquez

atrixblue.-MFR-. wrote: »

its past the 6 month in wich to re claim anyway, they can only look at claims at time of claim everything alse can and will be ignored.

so with the new developments in condition i would reclaim this would make the case stronger.


when you say re-claim, can you do a rapid reclaim esa which is on jsa or just restart a new claim from scratch and do the whole process of going to atos etc...

im in a similar position as i have a tribunal hearing on monday.

mazza111

The only way a person who's ill or too disabled to work is better off than someone who's working is because you are counting DLA as income, whether it should be or not is a different matter, but the authorities don't count it as income.

Not all people on ESA get DLA.

Remember DLA is to give disabled people a better quality of life. If they can't use a bus, they can then afford to get a taxi. It could help pay for carers. Pads. Extra heating. Extra clothing. Extra bedding. Incontinence can take it's toll on clothes.


It's taken the pressure off me immensely that my dd got DLA last year. Now I know that if she's got a hospital appointment that I can't take her to when my own health is bad, she can afford to get a taxi instead of having to cancel the appointment. I'd still rather she had use of her legs, then she wouldn't need me to take her to hospital appointments and would be more than able to walk across the road to the hospital.

This week we've been there 3 times. Next week it will be 5. Now how on earth would someone getting £56/week be able to afford that? They couldn't. Thank goodness for DLA and mother's taxi service.

Latest update is: Her brand new sparkly wheelchair arrives on Monday :T This will be her assessment chair to see how she gets on with it. If nothing dislocates when using it she'll stick to that, if it doesn't work, she'll move to a power chair.

See the final surgeon on Monday, with the hope that surgical intervention can save her knees. They are too far gone for physio to do any good. He may even say no to the surgery, 2/3 prior surgeons have said it may not be worth while. But I do feel we have to take a chance on this guy if it saves her going into a wheelchair full time, she may even be able to work after it! (that's a long shot but we can live in hope!!!)