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fairclaire

Late night catch up for me.....had my iPad taken by one of kids again:mad:......but no school run tomorrow:j

Sorry I missed birthday wishes skinand blister. Happy belated birthday:)

missy.moo_3

wendyak wrote: »

I know how you feel, I had a badly slipped disc two years ago, overmedication messed my kidneys and at the same time I realised I was in pain all over.
Turned out it was osteo arthritis and had loads of procedures with no relief.

Dad is quite ill with half a lung, spinal surgery, etc and when I collected him from the airport on saturday (Went to Benidorm with his "gang") had to get him to hospital straight away as had a kidney and lung infection.
He shouldn't have gone out but stubborn is not the word!!!
He says he might as well make the most of what he's got left.
Also works four days a week in a manual job.
)

I feel for you, my medication gave me a cyst on my pancreas the size of a football and it took 18months for them to find it! :eek: Ended up with major surgery 6 weeks before I got married to try to fix it! Now I can't take any pain relief for arthritis except joint injections. Ouch! Problems are all ongoing but there are plenty of people worse off than me so I try to just smile and get on with it. (Difficult sometimes!)

Your dad sounds like a real trooper! To do what he does with those health problems he has my utmost respect. I'd tip my hat if my arm would reach that far!! :rotfl::rotfl:So instead :beer: to him. Good on him.

Fudge_Cake_2

Thank you for the new thread Snap :heart2:

silverhairgranny

zagubov wrote: »

My local waitrose is too small for a cafe!

Judging by the age discussion I must be one of the oldest on the thread. Hail form the 50s I do!:D:D

me to, dont feel that old and so lucky:)

sarahfitz

missy.moo wrote: »

:eek::eek::eek::rotfl::rotfl::rotfl: I'm a very old 29! I got rheumatoid arthritis at 22, usually in my pj's by 7pm with a blanket over my aching joints! :rotfl:I totally hate the thought of having to go out and socialise / stay awake!! :rotfl:

:T:T:T to your mum and dad!

Hi, excuse me butting in and off topic, but I noticed your post about having RA at 29. I'm 30 and have Anklosing Spondalitis, and taking Humira injections. The results are amazing, like I have a new body. I can get of bed with no aches and even go to the gym 3-5 times a week. It's also given for RA and was wondering if it's ever been mentioned to you.

missy.moo_3

zagubov wrote: »

My local waitrose is too small for a cafe!

Judging by the age discussion I must be one of the oldest on the thread. Hail form the 50s I do!:D:D

:eek::eek::eek::eek::eek: How old?!!! :rotfl::rotfl::rotfl::rotfl::p

Fudge_Cake wrote: »

Thank you for the new thread Snap :heart2:

:hello: Fudgey. Hope you're OK? Lovely to see you posting again. xx

elsie1969

3Dogs wrote: »

Evening everyone, I am just catching up, so thanks so much for the new thread Snap-Ant - great well thought out title :j :j



Lovely to see you posting again Elsie :j :j You have certainly been missed and thank you for thinking of me too :A The dogs are settling in a bit better now, but still a few accidents but no more mice, score still stands at 3Dogs 5 v Mice 0 :rotfl: :rotfl: Sorry to here that things have been so hard for you. Fantastic that your Mum recovered after what she has been through. Mr 3Dogs fell out of bed onto the hard floor overnight too when he was in the palliative care unit. They hadn't put side rails up as they hadn't been told by the hospital that he kept trying to get out of bed. No damage done for him other than a few bruises and, of course, distress

Stick with us this time hun, as together we are better than on our own :j :j

Thanks so much 3Dogs......
The worst of it was she had Chemo which knocked her for six, much worse than it was supposed to, and the radio therapy had burnt her 'entire' pelvic area to a crisp..... I'm sure if anyone does, you know the results from this kind of intensive treatment..... Well on the oncology ward they were doing what they could to treat the burns, even though she was still being blasted 5 days of the week. :eek:
Then came the fall early hours of Thursday, surgery to fix the fractured hip friday am, (same side as knee replacement and weak side due to a stroke 5 years ago!) then a weekend on the orthapedic ward with barely a doctor in site, (they don;t do weekends!)..... the staff had not one idea about treating radiotherapy burns, the only concern was getting Mum mobile within 48 hours of the surgery, 'coz this is what is done', even though Mum was almost completely immobile before the fall, :eek:
Her raw skin wasn't being treated, and because they were pumping her full of pills on the bone ward, they put her in with dementia ladies as i'm sure they thought she was too. :eek:
We were terrified of her getting an infection like MRSA as they were just dragging bed pans in and out from underneath her. They said well she'll see a doctor on monday and probably be sent back to oncology tuesday. The 2 wards couldn't have been further from each other, 1 at one end and 1 at the other end of the hospital with no communication. :eek:
Well me and my sis who was visiting from away were up that hospital for almost the whole saturday night seeing one person then another, I think we left about 4am. But we managed to get her back to oncology by the tea time of the sunday, and seeing a specialist skin nurse on the monday.
Slowly, very slowly, things have got better, but she is still to have her follow up scan.
I don't know how she did it!

missy.moo_3

sarahfitz wrote: »

Hi, excuse me butting in and off topic, but I noticed your post about having RA at 29. I'm 30 and have Anklosing Spondalitis, and taking Humira injections. The results are amazing, like I have a new body. I can get of bed with no aches and even go to the gym 3-5 times a week. It's also given for RA and was wondering if it's ever been mentioned to you.

Hi sarahfitz, you're certainly not butting in and nothing is off topic here! :D My mum and grandad have ankilosing spondilitis but I have never heard of those injections. I have been on all sorts of horrible medication, sulfasalazine, (which caused my pancreas problems) methotrexate, stacks of morphine and steroids to name a couple.

I'm going to delve into my bnf to see what I can find out about this. Thank you. I have to be really careful about what I take now as my pancreas is severely damaged and they've had to put a tube from the cyst to my stomach (sorry tmi!) but worth looking into it. So thank you again. I love this thread!!

missy.moo_3

sarahfitz wrote: »

Hi, excuse me butting in and off topic, but I noticed your post about having RA at 29. I'm 30 and have Anklosing Spondalitis, and taking Humira injections. The results are amazing, like I have a new body. I can get of bed with no aches and even go to the gym 3-5 times a week. It's also given for RA and was wondering if it's ever been mentioned to you.

Hi again, a quick delve into my bnf and it reveals that it's for patients that have not previously been treated with methotrexate can cause pancreatitis and can cause gastro intestinal haemorrages

There's no way they'd let me have that now!! :rotfl::rotfl::rotfl:

A big genuine thank you anyway though.

sarahfitz

missy.moo wrote: »

Hi sarahfitz, you're certainly not butting in and nothing is off topic here! :D My mum and grandad have ankilosing spondilitis but I have never heard of those injections. I have been on all sorts of horrible medication, sulfasalazine, (which caused my pancreas problems) methotrexate, stacks of morphine and steroids to name a couple.

I'm going to delve into my bnf to see what I can find out about this. Thank you. I have to be really careful about what I take now as my pancreas is severely damaged and they've had to put a tube from the cyst to my stomach (sorry tmi!) but worth looking into it. So thank you again. I love this thread!!

Ouch that sounds nasty. As AS and RS are auto immune diseases the Humira injections work by lowering the bodies immune system, and has it fair share of side effects because of this, but for me they have been amazing, turned my life around.

Now because of your internal complications they probably wouldn't give you them, because they lower your immune system, but it's worth asking about them. I had never heard of them until recently after switching hospitals from London to Belfast. They sound a bit scary if you read up online about them, but for me they were life changing.

Ps thanks for being so friendly