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eating, working and DLA
Comments
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To employ someone three times a day to say ok it's time to eat?
Seriously?
I've never heard anything like it in my life!
Never heard of home helps preparing food for someone with dementia or other illness?
OP - you don't have to fill in every section. It's just a one-size-fits-all form. Just leave it if it's not relevant to you.0 -
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Ok, so the OP looks as if they need to employ someone to tell them it is dinner time at work then? It doesn't read as if they need help making the food, just the prompting to eat it?katrina001 wrote: »As stated in the first line of their post, yes they have autism. I suggest you do some research on it.0 -
Autism doesn't mean they need reminding to eat, one trait is to overeat as they may not feel full - but it can be one part of a larger picture of care.
Either OP has severe autism and is reading the form wrongly (ie trying to fill out all boxes rather than leave blank) or they are mixing it up with work related issues, and trying to avoid work.0 -
Part of the problem could be that because of the autism, they feel that something needs to be put there. As an example, many years ago I would do a holiday list to remind myself what to pack into the car, well one year a good friend of ours was coming along for the first time so I gave him a copy too.
His first question was what size tampax he should bring, his next, where does he get the contraceptive pill. He couldn't quite get his head around the fact that just because it was on the list, he didn't have to bring it with him, it was a general list to cover both male and female. His view was that it was on the list, ergo, he had to bring it.
He has aspergers.
I learnt for the next year, I made sure I put delete as appropriate for gender and for the female directed items, put female group members only.
Re eating times, I have two ASD children, woe betide they go over their set meal times, at home or at school. It is part of their regular and unbreakable routines where ever they are or whatever they are doing...even at the side of the road whilst broken down and no food outlets available anywhere, they have to have their food at the given time.
Most frustrating and a routine I am still trying to break.We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
I agree - the whole OP is confusing without information. DLA is not work related - but they are focusing on that, weight is unrelated etc
Until we know if they are "trying to complete all boxes" or attempting to avoid work on a work unrelated benefit no one can help really, but whatever the reason - they are completing the forms wrong as what they are saying is not correct and won't have any impact.0 -
I think everyone needs to remember that the OP has autism- this can be very complex and affects people in many different ways. I work in a supported employment project where we try to give people with various issues such as autism the chance at work experience, gaining qualifications and so on with the hope it will lead to paid employment somewhere. I work with several people with autism and aspergers. Some are perfectly capable at performing tasks at work but are completely unable to do other things such as choose clothing for that day, preparing food and eating without being prompted etc. These folk are in a really tricky situation and without projects like ours to give then job coaching, go with them to their place of work and educate colleagues on how to support them (and actually find colleagues willing to do this) it can be really difficult.
I am unsure how the OP could proceed here without the help of a specialist to teach them how to overcome the problems relating to food. It often takes someone with expertise in the field of autism to give people methods and techniques on how to handle every day life (dressing, washing, eating etc). Maybe a doctor or social worker could put a referral in for someone who can help. The DLA may help cover costs of a support worker who could provide some assistance.0 -
handlewithcare wrote: »please don't make such sweeping assumptions. Some people need reminding and encouragement because of their disability and need someone to care for them because of this. Do not judge before you know the facts
I'm simply looking at the facts as outlined by the OP!
To say the least they are stretching the 'reminding and encouragement' bit too far.
Have you not read what they have quoted?
Has Autism and doesn't work, and can't manage his eating properly, and when he has worked, he goes underweight.. but when at home and not working, then thanks to the flexibility and hours available, he manages to eat and not go underweight.. And so he hasn't gone underweight in years as he hasn't worked in years, then can it be said that he needs help reminded to eat? He would need help if he worked..0 -
I even read about someone wanting help with a mortgage to move house so they didn't touch their own savings, cobblers isn't it

https://forums.moneysavingexpert.com/discussion/4064891=
EErrr if you are going to quote one of my posts, make sure that you read it properly!
We don't have any savings that we are entitled to have or spend.
It really annoys me when people throw out comments without carefully reading the contents of the original post.0 -
handlewithcare wrote: »maybe to employ a carer or to buy gadgets to help remind them. i think that kind of thing. Sorry if i sounded a bit snappy but i've had enough of people running DLA down ( i know you weren't ) its a vital benefit thats mega hard to get. But what the OP says about Autism would fit in to this question i suspect
Whilst I agree this could apply in some cases, the OP does appear to have the mental capacity to self manage this by setting prompts or alarms on his phone. This would not incur ongoing costs, nor would it be an ongoing need. It would be more suitable for the OP to request an OT referral, who he can talk with about coping mechanisms to ensure that he remembers to eat.0
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