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Nice people thread part 6 - thrice by twice as nice :)

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  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    michaels wrote: »
    Used to have a lot of need for a gown when I was younger (in freezing parents house), now plenty warm enough in t shirt and jama bottoms (would be fine in less tbh but we have kids...)

    Ski jacket is a waterproof windproof shell with no padding then adjust the number of layers underneath depending on temperature.

    Me and my brother and sister in law decamp to our parent's house in the winter when we have a real freeze going on, it is much warmer than our own homes and of course, free of charge with a cup of tea and dinner thrown in :rotfl:
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    zagubov wrote: »
    I'm pleased how this is turning out, but obviously wishing it was resolved faster for you and the boys. When DS's old school closed at short notice we were delighted to get him enrolled in another one that seemd excellent (but more expensive)and they would take him before the end of the academic year, which we thought would speed his transition.

    To our horror it all went pear-shaped and he took it very badly and we had to take time off work to visit the school and spell out what was promised but not delivered and guage it at the right level to win them over.

    To their enormous credit, they took it all on board and quickly turned things round.

    You're fortunate to be somewhere where the LEA seems to support students with needs. W'd never be able to get DS statemented; we're trying hard to find a state school in our area who can help him after his GCSEs in two years time, when we hope he'll be more able to cope with a large school. One's looking promising, so fingers crossed!:)

    Edit; I've got deja vu that I posted this before
    but can't recall if it was here or on one of the other threads that has to suffer my incessant ramblings.

    They haven't always been supportive, it was a real fight to get his statement through and I think it was because not only us but his school, the outreach service and his consultants were all screaming "HELP!" at the same time, so they were quite literally forced into a corner.

    I think though, that it is much harder to get statements now which is a real shame because it makes everything official (the school was already providing the support to youngest without the statement but of course, it could have changed at any point with a change of head) and it does ease the way for those children with differing needs and for some, helps them to stay in mainstream education.

    I was pretty lucky in that I found an excellent junior school with a head teacher who just would not give up on youngest, he made it his personal battle to succeed in keeping youngest in the school, even when the going got very very tough. That school changed everything to enable him to stay and implemented things purely for youngest which involved building work! But he has left a legacy, the special area is named after him and other autistic or differing needs children are benefitting from it.

    But it has been a constant fight, right from playgroup age to have him remain in the mainstream system and not in residential school drugged upto the eyeballs (at one point the doctors wanted to put him on medication as he does have some ADHD tendancies as part of his complex autism) as it would make it easier...easier for who? The teachers? Certainly not for youngest, there are alternative ways to calm a child enough to learn and ways which also teach them coping mechanisms for the future rather than to drug them up to the eyeballs and ignoring everything else that could be beneficial.

    But then, I have always been swimming against the tide when it comes to my views on behaviour problems and education........but then, I only have to look at the boys now to know I was right in their case.

    Sorry, got on my soapbox a bit there :rotfl:
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • LydiaJ
    LydiaJ Posts: 8,083 Forumite
    Part of the Furniture Combo Breaker Mortgage-free Glee!
    Just wanted to thank the NP for their support last term when DS had such a disastrous meltdown over leaving primary school, and report that he seems to have been absolutely fine with starting secondary school - done 4 days now. :)

    Really pleased Sue has got some improvement in the situation, especially the turnaround for middle son - great result there! Hope youngest manages to adapt eventually to the new deal for him, too.
    Do you know anyone who's bereaved? Point them to https://www.AtaLoss.org which does for bereavement support what MSE does for financial services, providing links to support organisations relevant to the circumstances of the loss & the local area. (Link permitted by forum team)
    Tyre performance in the wet deteriorates rapidly below about 3mm tread - change yours when they get dangerous, not just when they are nearly illegal (1.6mm).
    Oh, and wear your seatbelt. My kids are only alive because they were wearing theirs when somebody else was driving in wet weather with worn tyres.
    :)
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    Me and school ..... it never worked. That was back before things were known about, so I was just a problem child and school was horrible. :(

    Still not over it...
  • lostinrates
    lostinrates Posts: 55,283 Forumite
    I've been Money Tipped!
    silvercar wrote: »
    I possess dressing gowns in different weights.

    Very useful when you are working from home and often do an hour or two work before getting dressed.

    Essential when you have teenage/ young adult children at home and associated friends visiting at all hours.

    One of my best childhhod friends, her family were naturists. Pretty sure thats where i picked it up from. He teenage brother opted for clothes, but he parents and grandparents did not.
  • lostinrates
    lostinrates Posts: 55,283 Forumite
    I've been Money Tipped!
    LydiaJ wrote: »
    Just wanted to thank the NP for their support last term when DS had such a disastrous meltdown over leaving primary school, and report that he seems to have been absolutely fine with starting secondary school - done 4 days now. :)

    Really pleased Sue has got some improvement in the situation, especially the turnaround for middle son - great result there! Hope youngest manages to adapt eventually to the new deal for him, too.

    Well done to ds.


    I think even for people with no dramas in their past transition can be hard, so why should ds be calmer than all of them? :D

    Its fantastic that the first 'week' has gine well. Its always so exhausting too.
  • lostinrates
    lostinrates Posts: 55,283 Forumite
    I've been Money Tipped!
    I think i was premature blaming my el night repair. My skin has been fine since i stopped using it.....until this morning, whene its scratchy and scaley as it was before. I have the left eyelid of an alligator ir something.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    I see your area's got a mention in the papers today LIR.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    I have the left eyelid of an alligator ir something.
    awwww :(
    ----
  • lostinrates
    lostinrates Posts: 55,283 Forumite
    I've been Money Tipped!
    I see your area's got a mention in the papers today LIR.

    Ohhh, i've had a quick look. Fire?
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