Parking with a blue badge when looking "normal.."

Ellejmorgan

FleurDuLys wrote: »

I agree with Lum. Disc problems affect different people in different ways. Some people who have problematic discs will have minimal problems and will fully recover, while others can be in agony with nerve pain 24/7. It's really unfair to say that someone can't be having great problems just because you yourself have found things a lot easier.

I have had a 16 level spinal fusion, with discs removed and vertebrae fused throughout my thoracic and lumbar spine apart from the L4-L5 and L5-S1 discs right at the bottom, the only part of my back that can move. Those discs are degenerating fast but I have no real problems from them - I can walk for miles, climb mountains etc. Yet a friend of mine had one disc bulging that left him in completely agony and unable to work until he had surgery to fix it. I'm sorry you're suffering, Elle.

Thank you that's kind, have arthritis in lower spine, and they say it's wearing away, my surgeons registrar has discussed a lumbar fusion..really don't want to have that done, but got to have neck fused..

I really hope you are getting enough support and aren't struggling and getting everything that you are entitled to..
I do hope your health improves it sounds excrutiating...

24skins

Brassedoff wrote: »

A slipped disc is not a herniated one. Spondylosis is through wear and tear. IBS from discs? You have the wrong condition there, you mean QES, a problem that comes from damage to the nerves at the tail of the spine, something I have too. You cannot even put the right terms in. Its like saying you have a cut finger and that you have had your arm cut off! Honestly, get it right!

'Slipped disc' is a commonly used term for a herniated disc and it's CES [Cauda Equina Syndrome], not QES.

:rotfl::rotfl::rotfl::rotfl::rotfl:

FleurDuLys

Hi Elle, my back doesn't cause any real problems, hence I've never tried claiming anything for it. I'm on DLA now though, but that's because I have cancer. Don't be scared about having a fusion, I know lots of other people who have had spinal fusions and are out living their lives without giving it a second thought

LadyMorticia

Lum wrote: »

Not commenting directly on this, but another one that really winds me up, and it happens on this very forum is "I have X condition/medication and I manage just fine so you can't possibly have a problem".

E.g. I have seriously epic chronic eczema that covers my entire body. It has nearly killed me on a couple of occasions and caused several long hospital stays, but most people are all "oh, what's your problem, my baby had that on his elbow for a couple of days so stop moaning, why don't you try hydrocortisone cream". Please just shut up and go away.

Related: If you have multiple conditions, you'll get the same crap from NHS doctors, e.g. my GFs physiotherapist looking at her foot, which has CRPS, telling her to use crutches without taking into account M.E. or hypermobile shoulder joints that randomly subluxate.

I hate it when people compare themselves or someone they knows experience to your's.

I have severe M.E and the amount of times someone just says "Oh, everyone gets tired" or "I know someone with M.E. They manage without aids just fine and can work so you should too" really !!!!es me off.

kingfisherblue

LadyMorticia wrote: »

I hate it when people compare themselves or someone they knows experience to your's.

I have severe M.E and the amount of times someone just says "Oh, everyone gets tired" or "I know someone with M.E. They manage without aids just fine and can work so you should too" really !!!!es me off.

I know just what you mean. My son has Down's syndrome and a number of rare congenital conditons that affect (mainly) his digestive tract. He is doubly incontinent and a SENCo once told me that he shoould be toilet trained because the books say that children with DS are trained by the time that they are six years old. Yes, that's true for most children with DS, but when you are born with several conditons that even Alder Hey hadn't seen all together in one child, you don't necfessarily follow what the books say - especially when one of the conditons is a rare bowel condition. At 14, he is still doubly incontinent.

It also bugs me when everyone assumes that he is very loving (he can be, when he wants, but so can my other two children. In fact, my younger son is more likely to want cuddles than my son with DS). Another assumption is that he has heart problems, but luckily he doesn't. In fact, I've only ever met two children with DS who have heart problems, although official statistics are that one in three has a heart problem (the same statistics for having a problem or conditon of the digestive system - which few people know).

Even those with thhe same conditon and similar severity might cope differently, such as positive or negative mental attitudes, pain threshold, support available, etc.

Brassedoff

24skins wrote: »

'Slipped disc' is a commonly used term for a herniated disc and it's CES [Cauda Equina Syndrome], not QES.

:rotfl::rotfl::rotfl::rotfl::rotfl:

Yes 24 skins (where did you think that name from?) late night, no real sleep, but conceed your point.

dori2o

Lum wrote: »

Not commenting directly on this, but another one that really winds me up, and it happens on this very forum is "I have X condition/medication and I manage just fine so you can't possibly have a problem".

E.g. I have seriously epic chronic eczema that covers my entire body. It has nearly killed me on a couple of occasions and caused several long hospital stays, but most people are all "oh, what's your problem, my baby had that on his elbow for a couple of days so stop moaning, why don't you try hydrocortisone cream". Please just shut up and go away.


Related: If you have multiple conditions, you'll get the same crap from NHS doctors, e.g. my GFs physiotherapist looking at her foot, which has CRPS, telling her to use crutches without taking into account M.E. or hypermobile shoulder joints that randomly subluxate.

If only it was confined to this forum. I have been the focus of such comments at work of all places.

Some ignorant woman I work with told me to spot being 'soft' and stop faking as I only have a bit of pain.

Afterall she's had 4 kids and the pain can't possibly be worse than childbirth.

The best thing to do with idiots/bigots is ignore them. they soon go away.

As an aside however for any idiots/bigots on here who believe childbirth is worse than CRPS/Causalgia/RSD or any other form of Neuropathic pain, may I refer them to the McGill Pain Questionnaire and it's accompanying index.

http://www.chcr.brown.edu/pcoc/MCGILLPAINQUEST.PDF

http://web.me.com/medicaljustice/MEDICALJUSTICE/McGill.html

Ellejmorgan

dori2o wrote: »

If only it was confined to this forum. I have been the focus of such comments at work of all places.

Some ignorant woman I work with told me to spot being 'soft' and stop faking as I only have a bit of pain.

Afterall she's had 4 kids and the pain can't possibly be worse than childbirth.

The best thing to do with idiots/bigots is ignore them. they soon go away.

As an aside however for any idiots/bigots on here who believe childbirth is worse than CRPS/Causalgia/RSD or any other form of Neuropathic pain, may I refer them to the McGill Pain Questionnaire and it's accompanying index.

http://www.chcr.brown.edu/pcoc/MCGILLPAINQUEST.PDF

http://web.me.com/medicaljustice/MEDICALJUSTICE/McGill.html

Childbirth has different degrees of pain anyway, i've had 5 babies all by different methods of delivery..the 1st was natural, the rest were sections..The 5th baby was the worst out of them, so it's objective..

I'd rather go through childbirth with all that pain relief than a day of having the pain I feel, I feel so many areas of pain that theres always something hurting..My collarbone feels like it's permantly broken..

Now gallstones that's pain wouldn't wish them on anyone not even my ex husband

selene16

This is a situation I'm worried about I found out this week I have got my blue badge on a good day I can walk not brilliantly but I manage to stand on two feet and move one foot in front of the other while on other days I have to have my wheelchair with me.

Part of me thinks on the good day should I park in a normal space but then, a 'good day' can quickly change to a bad day meaning a quick exit is needed.

I had never even thought of having a blue badge till I was told it was probably a good idea to look into one.

Oh to not need these things and be fine.

The_mangler

Ellejmorgan wrote: »

Childbirth has different degrees of pain anyway, i've had 5 babies all by different methods of delivery..the 1st was natural, the rest were sections..The 5th baby was the worst out of them, so it's objective..

I'd rather go through childbirth with all that pain relief than a day of having the pain I feel, I feel so many areas of pain that theres always something hurting..My collarbone feels like it's permantly broken..

Now gallstones that's pain wouldn't wish them on anyone not even my ex husband

I have had 4 children - yes they were immensely painful but at least you knew that within a few hours (or days ) the pain would disappear.