7 year old tube fed child DLA renewal refused :(

nottslas

Bumpmakesfour wrote: »

WOW where did I say we couldn't afford it??I said the DLA enables me to stay at home to care for my daughter but IF I did have to I would return to work.My hubby works 50 + hours a week so pays plenty of tax thankyou!People like you make me SICK to my stomach.. not even going to say anymore because narrow minded prats like you are not worth any more of`my time or energy :mad:

OP grab a cup of tea and ignore these comments.

Pretty obvious from their posts they probably have no idea about the financial implication a disabled child can bring.

I hope you appeal and win your claim for DLA.

x

Bumpmakesfour

Tx Nottslass xx
And HAAAA at "financial gain" you really ARE deluded ..the money goes on CARING for them,paying for activities/therapy etc..you are an IDIOT!:rotfl:

Bumpmakesfour

Hey clap clap..so we know you can do basic maths..now to work on the compassion bit Just trying to find out how to block you and your vile posts,if I can 't I shall be ignoring you from now because quite frankly I've had enough of listening to you ..bye

Bumpmakesfour

Thankyou Mutleythefrog..can a mod help?

Muttleythefrog

I suggest people just report the offending poster. I think the be nice to new poster expectation has now expired here.. they've been directed to where they can give their views and they're instead trying to provoke irrelevant debate.

Bumpmakesfour

Appreciate the support thankyou xx:beer:

kingfisherblue

I knew that there was a chance that my son would be born needing surgery - I found out at 29 weeks pregnant. I was told that he would have the operation and apart from a few minor problems, all would be well. I could afford to have my son - I was working part time and my (now ex) husband was working full time. He wasn't well paid, but we were careful with our money and we had no debts (I still don't have any). I didn't even know anything about tax credits, much less DLA. The only benefit that we claimed was child benefit for our daughter, and maternity benefit for me.

Fast forward six weeks - my son was born. He required the surgery that I had been told about, plus three other operations - all when he was nine hours old. He also has Down's Syndrome. The surgery left him with an ongoing list of problems, and DS itself can cause many care needs. He is having further surgery next month and I'm dreading it, although it is a short operation to improve the quality of his life.

My son has always received HRC and HRM from the appropriate ages. HRM pays for a car that helps me to get him around, to Scouts and deaf youth club as well as the many appointments in various clinics and two hospitals (one in our home town and one in a nearby city). HRC pays towards the additional costs of his care, including the high amount I pay for petrol to get him around, higher gas bills (due to needing heating on overnight during winter months - otherwise his breathing is compromised), higher electricity bills due to extra washing as a result of double incontinence and frequent vomiting (and the cost of drying them in the dryer - I can't hang things in the house as damp air affects his breathing), new bedding because his is ruined frequently by the vomiting, etc.

Then there are other costs - such as his communication aid, which costs just short of £1000. As my son's carer, I can't work. His dad has a new family and pays the bare minimum that he has to, so I have had to apply to a charity for help towards a device that will help my son to be understood by others. His speech is very poor and lacks clarity, due to both his learning disability and also because of physical abnormalities.

I could go into more detail about my son's disabilities and the costs incurred, not to mention the effect that they have on the family as a whole, but I won't. I'd be typing all day.

There have been some very nasty comments on this thread, but those who have a disabled child will understand why DLA paid at the correct rate is important for families. Most other reasonable people will also understand that DLA is needed for disabled children.

To the poster who made such nasty comments - I didn't expect to have a disabled child. Nobody that I know expected a disabled child. Many of us had one, some disabled from birth, like my son, and others whose disabilities became apparant as they failed to develop normally. Then there are yet more children who develop disabilities through illness or accident.

As parents of children with special needs, we do not need bigoted, uninformed comments from posters who just want a big wooden spoon to stir things up. We just want the help that is needed for our children. And remember, for many of us, our children will remain dependent for life, through no fault of theirs, or ours.

To all those parents who are doing a great job with their kids - hang in there and ignore the poster who seems to enjoy making life so unpleasant. To that poster (whose name I forget), I sincerely hope that you never end up in the position that you have a disabled child, or a relative that needs substantial amounts of care.

Bumpmakesfour

Thankyou so so much everyone...seems the nasty comments have vanished.So..half seven..lines open at DWP..here goes! x:eek:

Bumpmakesfour

40 mins going through the reconsideration process...detailing our day in minute detail..now to wait approx 8 to 11 weeks.Just sat here in tears because it's all so unecessary:( Everything I just told him was on her claim form but the reasons the decision maker gave were that all night care was done before bed time.Apparently I change her nappy check her tube and go to sleep..so me writing about pump alarms, retching, soaked beds etc?? What a flipping joke :mad::mad::mad::mad: So now we have to sit and wait..again..
I asked him at the end what the criteria was,their OWN criteria,for higher rate care...and he said attention for periods over the day and night..I asked him how I hadn't clearly demonstrated that already..he couldn't answer:mad: Totally and utterly hacked off!!!

SuziQ

Kingfisherblue-it must have hurt so much posting all of that-my heart goes out to you .

What some of these ignorant people posting on this type of thread don't take into account, is that in our society, Disabled people are not supposed to be discriminated against. They have rights to have as 'normal' a life as possible-and our Welfare state was set up almost 60 years ago, so that we as a society help one another to support those that are less fortunate-whether that be due to financial issues, disabilities, mental health problems-etc etc.

If these dissenters don't like the fact we are a welfare state, maybe they need to think about where they would prefer to live-and then pray like crazy they never need any sort of support themselves! I have a friend in America who has lost her home, everything she owns following her husband developing a brain tumour. Their insurance was limited and everything had to go before she could claim any sort of state help with his huge medical bills. Is that really the sort of society we want here?

It takes money and a lot of extra care, and in many cases, equipment, to try to 'normalise' a disabled person's life-and that is recognised by the welfare state so that extra benefits are available.

It makes me sad to see this forum reduced to one where people with major problems and heavy care loads get criticised and sniped at. There are other areas of the board where this nastiness can go pretty much unchallenged, but that is not enough for some people-they have to spoil a thread where people are trying to offer support and advice, with nasty comments. There seems to be a lot of jealousy about families receiving DLA etc-and I fully appreciate that there are some people receiving it who seem to have acquired it in a dishonest way-and who don't spend any of it on the person who was awarded the DLA. However they are not the majority, and I would give up every penny I receive to have my child not have the issues he has-which will probably stop him having an independent life as an adult.

OP- I really hope this initial reconsideration will be all that's needed to end this nightmare for you, so that you can get back to looking after your children without this added stress. Please let us know how you get on?