reduced tax credits

krisskross

mum24boys wrote: »

Out of interest does your DH claim DLA for his RA?

My husband claims high rate AA as he is over pension age.

RA is not his only health issue.

nannytone_2

krisskross has said time and again that she has the utmost sympathy for all parents of severly disabled children. unfortunately parents with disabled kiddies are the same as the general population in as much as some will do and say whatever they need to for financial gain.

and before you ask me if i have a disabled child, then the answer is yes, a very severely disabled grandchild. he sadly died a year ago.

he was born perfectly healthy, but at 18 months, contyracted viral encephalitis. he was left severely disabled and epileptic. they said he was a 'body in a bed' but through the families hard work and refusal to accept that they knew our boy better than we did, he came on in leaps and bounds. he couldnt talk,walk or even sit unaided. he had very little voluntary control of his limbs or hands. the effort it took to watych him open his hand to touch you was heart breaking.
we fought for every little bit of help he received. eventually he had a special walking frame ( cost £1200, funded by tghe family) and had a degree of independance at nursery.

on Mayy 22nd 2010 my daughter went to get him up. they were going swimming and then we were having a family barbeque.
sadly none of that happened as he never woke up again.

maybe people that DO try to claim for every penny they can squeeze from the system should just think a bit. and be thankful that they still have their kids!!

minx_101

What a load of nonsense!! Does it really matter what time of the night I get up, or if I have to set an alarm!! The fact is that this poor child is struggling during the day to drink 4 supplements, which taste revolting. And yes these drinks have to be spaced out regularly so due to this particular child's circumstances it involves getting up in the MIDDLE of the night several times, and even then it takes a lot of encouraging. If the correct amount of supplements are missed it means having to drink more to balance it out, so that is even harder for her. So please do not judge others until you are in the same situation. Off course I could choose not to get up in the night to do this, but where would that leave my child?

mum24boys

krisskross wrote: »

It serves to strengthen my conviction that many people see DLA as some sort of compensation for the illness. Plus DLA sometimes means higher rate child tax credits. It can be quite lucrative. Certainly lucrative enough to encourage exaggeration.

This was your first post in the entire thread. Antagonistic at best. Maybe i am being emotional but as i keep saying you made the sweeping generalization. As i said in one of my other posts in society a few people take advantage of the system but to say that "many people" take advantage of DLA for their child is frankly outrageous and as i'm not the only mum you have managed to upset on this thread i'm not being ridiculous. Your words, not mine.

Apart from that im leaving this thread now. Good luck OP with your little one. Unfortunately these boards sometimes go off at a tangent with others sticking their ore in on subjects they know nothing about or if they do know something about it, just want to put you down. I don't usually comment but this today has really got to me. Maybe because i was up in the night with my son its made me more emotional than usual.

nannytone_2

minx, i have every sympathy for your child. if i'm honest, each successive post of yours, looks like you are trying to justify the HRC. you could encourage her to drink the drinks before bed.
you are CHOOSING to get up at night. surely it is easier to 'encourage' an awake child rather than a half asleep one?

krisskross

mum24boys wrote: »

This was your first post in the entire thread. Antagonistic at best. Maybe i am being emotional but as i keep saying you made the sweeping generalization. As i said in one of my other posts in society a few people take advantage of the system but to say that "many people" take advantage of DLA for their child is frankly outrageous and as i'm not the only mum you have managed to upset on this thread i'm not being ridiculous. Your words, not mine.

Apart from that im leaving this thread now. Good luck OP with your little one. Unfortunately these boards sometimes go off at a tangent with others sticking their ore in on subjects they know nothing about or if they do know something about it, just want to put you down. I don't usually comment but this today has really got to me. Maybe because i was up in the night with my son its made me more emotional than usual.

Whether you like it or not the OP's first few posts on this thread were solely about how much money she was losing and how she hoped she could recoup it by claiming extra on another benefit.

mum24boys

People who have opinions like that tar us all with the same brush. Its hard and difficult enough as it is without uneducated drivel like that. Its really unhelpful for those of us who do need the help. Its not just DLA you have to jump through hoops for its the education system, the NHS fighting for funding for drugs its a constant strain and to have someone who obviously knows nothing about looking after a very sick child make daft comments like that got my goat, that's all.

Sam____2

I fail to see how having to get a child to take a drink 4 times a day warrants any kind of benefit, surely there must be more to the condition than that and diet supervision?

minx_101

krisskross wrote: »

Stop being so emotional and ridiculous.

I did not say that ALL parents of disabled children use them to make money, however I did say that I am convinced that some parents exaggerate their child's needs to gain higher awards because they lose a lot of the family income if the award is lowered........as the OP said.

I would like to remind you that my child's claim was not exaggerated just to get a higher award, much as you would like to think. As you are aware she had already received the higher award, for the last 7 years, and only now has it been lowered. All evidence in the claims have been exactly the same, and the condition or circumstances have not changed.

krisskross

mum24boys wrote: »

People who have opinions like that tar us all with the same brush. Its hard and difficult enough as it is without uneducated drivel like that. Its really unhelpful for those of us who do need the help. Its not just DLA you have to jump through hoops for its the education system, the NHS fighting for funding for drugs its a constant strain and to have someone who obviously knows nothing about looking after a very sick child make daft comments like that got my goat, that's all.

Errr I did paediatric nursing for a couple of years and also A&E nursing so I know more than a little about caring for sick children