reduced tax credits

DorsetGirl_2

pipkin71 wrote: »

Is there a reason why your daughter has to be woken up to take the drink, minx 101?

Although it must be difficult because she doesn't like it, can you not time it so that she can have it before bed time, or must she have it during the night?

Its probably about timing - if your asleep 8 hours its quite a long time to go without the drink.

I would think the ££££ are for other parts of the diet. My son has autism but his diet is quite limited and expensive. It bumps our shopping bill up by a good £30 a week.

Sam____2

DorsetGirl wrote: »

Its probably about timing - if your asleep 8 hours its quite a long time to go without the drink.

I would think the ££££ are for other parts of the diet. My son has autism but his diet is quite limited and expensive. It bumps our shopping bill up by a good £30 a week.

Just because I'm curious, what kind of food do you need to get for him that's diffrent/more expensive than other kids would normally eat?

DorsetGirl_2

Because he doesnt eat most things that other kids would eat .

His diet consists of Blueberries,Organix noughts and crosses crisps, Laughing Cow cheese triangles, hobnobs and dried cranberries. Thats his entire diet and all the coaxing and encouraging in the world wont get him to eat anything else. He struggles with drink but will drink Innocent smoothies, which cant have any bits in as he can only drink through a sippy cup. Because that is all he eats he has to eat it in volume which can be really expensive. He can tell if I have tried to replace something with an alternative and can refuse to eat for days.

DorsetGirl_2

He is under a dietician but all they can offer is food supplements like regain as he is very small for his age.

krisskross

Sam___ wrote: »

Maybe I'm just not understanding how it all works, but what difference is it going to make to anyone if more money is awarded for having to wake a child up during the night to give them a drink? if that's the main issue, I don't see what difference income makes in this situation...if you get another £x per week how is that going to change the situation or help it? would the OP then pay for someone to do the night drink for them? I just don't get how more money will make a difference...

It serves to strengthen my conviction that many people see DLA as some sort of compensation for the illness. Plus DLA sometimes means higher rate child tax credits. It can be quite lucrative. Certainly lucrative enough to encourage exaggeration.

mum24boys

krisskross wrote: »

It serves to strengthen my conviction that many people see DLA as some sort of compensation for the illness. Plus DLA sometimes means higher rate child tax credits. It can be quite lucrative. Certainly lucrative enough to encourage exaggeration.

Just out of interest have you got a child with special needs, disability or illness?

My son has systemic juvenile arthritis and receives DLA and we receive the extra CTC payments. I have had to give up work to look after him as he has severe disease and has to attend alot of appointments but i also have to to physio every day sometimes at night trying to manipulate sore joints is the most horrible thing to do, you try sitting on the floor at 3 in the morning doing phsio on a screaming 3 yr old who is in massive amount of pain. Not great.
I have to inject him every day he screams because the drug is like a bee sting, 2 injections on a Monday and prepare a tray full of drugs twice a day for him, he has the rash and fevers because of the disease, he has a permanent limp because he has sore joints and he has more than 10 joints affected. He has gone through most of the drugs available for treatment because nothing works and there is 2 drugs left to try before we have to think about bone marrow transplant. He is in pain daily and requires constant supervision as his joints give out under him and falling on swollen sore wrists is not a great thing to happen. He is 3yrs and 4 months but is the size of 18mth baby because he has been on steroids constantly for the past two year as he keep failing the steroid taper which have stunted his growth, he has grown 2cm in the past yr.
It is not likely my son will get better and bone marrow transplants are not usually successful and could kill him in the process. He has to see a consultant, have his bloods done monthly because of methotrexate, eye tests, shoe fittings at the hospital, physio, hydrotherapy, speech therapy because he is behind cause he was so ill when other children were in there pushchair looking at the birdies my son was curled up on the sofa crying in pain and refusing to move. I have to monitor him at all times, check for symptoms of a flare, he has special help at pre-school so he can get about.
Systemic JIA has taken over all our lives and we live and breath it 24/7 the worry and the stress of making sure everything is in place for him is unbelievable, he cant get up and down stairs and we had to move house so he could have a downstairs toilet to try and give him some dignity which bought about extra cost but had to be done. I could go on and on and on about how we live and what we go through.

To top that off he has been in life threatening situations twice because of the disease. 1st time he was in Birmingham children's with Macrophage activation syndrome which is fatal if not detected and the 2nd with pneumonia when he had to be resuscitated because he stopped breathing. He is at constant risk of serious infection because his immune system is shot.

Some of us don't claim because its lucrative but because we have to. we lost a full income when my son was taken ill and the DLA ect have balanced it out or we would not survive. We don't all exaggerate symptoms and i certainly don't see it as compensation. I would give every penny back if it meant my son had a normal life and was able to to things other children his age can do. Your comments are really unfair and have really upset me. You have no idea!

DorsetGirl_2

krisskross wrote: »

It serves to strengthen my conviction that many people see DLA as some sort of compensation for the illness. Plus DLA sometimes means higher rate child tax credits. It can be quite lucrative. Certainly lucrative enough to encourage exaggeration.

Oh yes, the MRC my son gets really compensates for the lack of sleep, the meltdowns, the expensive diet, the equipment and therapy that we have to pay for, the nappies he needs or all the extra washing because he wets the bed. It compensates my other children for the lack of normality in our house.

You sounds like you are talking out of your bottom and you are quite welcome to borrow my son if you like. You will need to prepare yourself with plenty of strong coffee and some ear plugs.

DorsetGirl_2

Sorry to hear about your son mum24boys.

minx_101

I totally agree!! Having a child with a serious illness is certainly not an exaggeration, as some people like to think, and unless you go through the struggles and worries every day looking after them, you can't begin to understand what it is like. The money from DLA helps my child to make her life a little easier, and it is definetly NOT LUCRATIVE!! My daughter didn't choose to have this condition, and like the above poster would swap the money any day if my child was to have a normal life!

DorsetGirl_2

My sons ASD is with him for life. However I would give all the DLA and extra tax credits we receive back if we got adequate support from our local council and NHS trust. We dont get speech therapy so we have to pay for it. We didnt get an OT so we had to go private. Had to buy a special needs buggy because the NHS were dragging their feet. Its not compensation for having an illness or a disability, its compensation because the government do a poor job of providing these services.