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Mooloo's New Home, New Year and New Start part 3

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  • Mooloo you are a fantastic, loving, caring mum! If you withdrew your services completely that would be inhumane. We all like to depend on our families in times of need. The twins have very special needs and must be cared for. It is unfortunate that the system has let them down, so to top it of they must not suffer feelings of abandonment from their own mother. I think it is only right that you are there to help them in the ways that you can without making you and DGD suffer. You must not be made to feel guilty for being there for your own children.
  • Of course I understand why you pay for things for the Twins and DS and I have done the same in the past for my parents and my brothers and of course I will do the same for my children.

    I have seen too many times people helping their relatives for far too long so they get used to it and then when something happens to the money giver it is quite a shock to the system.

    Unfortunately supported housing is either very good or useless, unfortunately Twin 1 seems like she has a useless one.

    Sorry if I upset/angered you with my previous comments (((Mooloo)))

    EE
  • When you word it like that Mooloo it seems so wrong that you cannot get carers allowance for the twins! I know you've tried in the past (I think?) but I feel annoyed on your part that the twins do not 'fit' into any system that we have so they are left vulnerable. You are right you cannot leav ethem completely vulnerable but you are right to always check what they 'can' do and pay for themselves as in the past you have literally left yourselfd scarily vulnerable by helping them too much and that is no use to anyone.

    Take care
  • Molly41
    Molly41 Posts: 4,919 Forumite
    Part of the Furniture 1,000 Posts Name Dropper Photogenic
    I doubt that you have upset Mooloo as such. We regularly have this very conversation as I still help my eldest son a lot too and have both decided that we are stuck to some extent. I have to say though we are both trying with our respective children and have tightened up considerably on what we give and when!
    I must not fear. Fear is the mind-killer.
    Fear is the little-death that brings total obliteration.
    I will face my fear. I will permit it to pass over and through me. When it has gone past I will turn the inner eye to see its path.
    When the fear has gone there will be nothing. Only I will remain.
  • I think it is great that Mooloo and Molly have met on MSE, live not too far from each other, have similar disabilities and also have children who require their help and so are able to support each other in real life :T

    I can't imagine the number of times you have had these conversations about your children.

    ((Mooloo and Molly))

    EE
  • Molly41
    Molly41 Posts: 4,919 Forumite
    Part of the Furniture 1,000 Posts Name Dropper Photogenic
    Yes our friendship was definitely "meant to be" thanks to MSE x
    I must not fear. Fear is the mind-killer.
    Fear is the little-death that brings total obliteration.
    I will face my fear. I will permit it to pass over and through me. When it has gone past I will turn the inner eye to see its path.
    When the fear has gone there will be nothing. Only I will remain.
  • Savvy_sewing
    Savvy_sewing Posts: 11,580 Forumite
    Part of the Furniture 10,000 Posts Photogenic Rampant Recycler
    Molly41 wrote: »
    Yes our friendship was definitely "meant to be" thanks to MSE x

    Hi, thanks for that Molly. I agree. MSE did us the biggest favour, and finding you for a friend came at the right time, when I was in the cottage and lost..
    I am feeling stronger, healthier, and more hopeful of late.
    The summer helps of course.
    The medication is reasonable, but doesnt clear all the pain alas.

    The twins are just the twins. Always will be. I will continue to battle the powers that be, but I am always refused.
    I fear the worst at times.

    EE nobody has upset me. I may give back a reason, etc, and I sometimes am exasperated, but I KNOW that the comments are becuase the people I have met on here, are my virtual friends and that they care about what is happening, and know that when I started out, I was looking for help with funding etc, after the bankruptcy, moving, the babies, etc etc.
    I have to adjust my budget, up, down, depending on so many situations. At least the one thing MSE has taught me, its how to live on not a lot, and not really suffer for it.
    I doubt I would have been able to do any of this if i hadnt come across here, and the help, practical, supportive, knowledgeable, etc that the collection of people are able to contribute.
    To the links for the flights, to the rants! Its all on here.

    Today, I was frustrated with the kitchen, and BLITZED it.
    I have changed the things on the work surface around. Decided that the stainless steel bread bin was just too big, ended up with junk in it instead of bread. So it had to go. Along with loads of knives and forks. Why do I have to have more then 6 of each????? There is never more then 3 of us? But just incase I do ever get anyone around, I have kept out 6.
    I have set up the table back in the kitchen. Its a bit of a tight squeeze, but it enabled me to make playdough with DGD and she could sit there and play. Reducing the risk of Playdough being ground into the sittingroom carpet.
    I am going to get BF to remove the door between the kitchen and the sittingroom, as i hardly ever close it.
    That will make moving around so much easier. And save the dent in the fridge door from getting any bigger!!
    I have washing on the line, but it is drizzeling on and off, so thank goodness for the cover over it.
    I was sitting on the new swing seat, when it started to rain, but it was still light enough, that I could sit in the swing and not get wet, so I managed to still have my cup of tea in peace.
    Molly's daughter took DGD to the park for me, so I was able to relax for about half an hour.
    Boy did i need that, as I was getting rather sore from my efforts. The only problem now is that i want to get the rest of the house blitzed as its driving me nuts, but I cannot over do it, (If i havent already), or I will suffer for it tomorrow.
    I also finally dyed the other chair cover, and have that now on the chairs in the sitting room. So we are full of chairs and tables now.!!
    I also received my new lampshade, bought from Ebay this week. (usuing my refund from printersink, via paypal). Its a Cath Kidston one I think, anyway, when it arrived, Molly's daughter pointed out that it was the same as her mum's one. (I rarely go to Molly's house, its usually her coming here, and I hadnt realised it was exaxctly the same one!). Great tastes etc. Anyway she helped me to put it up, and DGD created that she didnt like the new one, liked the old one, and boy has she been creating today!! We have had tantrum after tantrum today!.:o

    Apart from cooking some pasta for tea (cos DGD fancies that), I am probably not going to do much more today.
    When I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.
  • Hope you are okay Mooloo. Noticed you hadn't posted today, which isn't like you. xxx
  • queen_vi
    queen_vi Posts: 996 Forumite
    Part of the Furniture Photogenic Combo Breaker
    are you okay Mooloo
  • Savvy_sewing
    Savvy_sewing Posts: 11,580 Forumite
    Part of the Furniture 10,000 Posts Photogenic Rampant Recycler
    Sorry folks,
    Yes I am here.
    I am rather fed up and cross at the moment. Didnt want to winge and whine.
    I have been to see my eldest today, and the lovely baby. Had a small cuddle, we shared some lunch, and then my "freedom" was over and I was summonsed by the twins to collect DGD. How time flys.
    Anyway, we are back home, and I got the post greeting me at the door.
    TAX PAYE demand, for the carers allowance, that was paid, returned to me, and now demanded again. So been tearing my hair out on the telephone etc. Have now got the Independant Living Team, who give me the details to pay, to deal with the tax office. so several emails passed between us all now.
    Then the next letter was the tax credits, changed, as they were overpaying me. So thats gone down to £50.13 a week. Not a problem.
    That has lead to the next letter, two letters from the Council tax/housing benefit. One said I was owed money/then the second in the same envelope said I owed them money!
    So I am fed up to the back teeth. Alas its the fact that I owe them, not the otherway around.
    This has meant that I now have to pay £50 a week rent, (so the tax credits wiped out,). And now the Council Tax benefit, demands £59.00 a month back.
    So thats the £60 I was getting to save from my finally paying off Npower. Wiped out.
    The long and the short of it all, is that I am going to be £50 a week worse off now, as I have been getting £49.77 tax credits anyway, since April.
    They are absorbed in my budget already.
    Twins are going to loose all their help now. I dont have any choice.
    Thats going to mean they will be without TV and Computer access and telephone now. Thats not going to go down well. But I dont have much choice.
    I could have just done without it, as the Car Mot is also due the day we return off of holiday.!
    Oh well, I will just have to get sewing massive amounts, to make the income go up.
    (then the Tax Will go up, the tax credits will go down, and the housing and council tax change all over again!! is it worth it???????

    Sorry, after not wanting to winge, I just did!
    When I die I will know that I have lived, loved, mattered and made a difference, even if in a small way.
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