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Me "I want referral back to Rheummy", Doc "Not a chance"
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I must admit the thought has crossed my mind but I haven't yet voiced it to anyone...although the geneticist made a pointed look at me when he said it was hereditary.
I now have to use my crutch daily, I did try after being seeing the spinal service last Monday afternoon, not using it (I got it into my head that it is all in my head!)....by Thursday morning, I could barely walk a step and was in agony 24/7 so the crutch was re-introduced. However, that has its own problems, even with the new funky handle which is meant to distribute the weight better for arthritic hands, my wrist is a lot worse and now sports a lovely bony bump but I can't wear the splint I am supposed to on that wrist to prevent the problems because then I wouldn't be able to use the crutch!
Me and eldest having a discussion today about disability, he was saying I was, I was saying I wasn't....he pointed at the crutch and said "You think? You can't walk around without it and you still say you are not disabled?"
Still don't think I am though......We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0
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