Me "I want referral back to Rheummy", Doc "Not a chance"

cally6008

Thank you everyone

TOBRUK

cally6008 wrote: »

In 2004, all my pains and problems started. I was literally walking one foot in front of another, very slowly and could not stand without leaning against something. (think old woman stooped over n shuffling along without moving her feet very far). I was like this for 3 years. Then I left my full time job, took some time out and my health slowly improved although not to the point of pre-2004 which was pain free and fully active.

Several doctors later ...

In August 2010, my doc told me I was having an irritable bowel syndrome flare up. This was after me having excruiating stomach pains within minutes of eating anything. I did not know what was wrong and only seen him after symptoms carried on for 10 days. I did not self diagnose myself.

In Sept 2009, my doc said I had fibro. He prescribed codeine. I am now on my 3rd lot of 100 since Sept 2009.

In Sept 2010, my doc now says he only thinks I may have fibro.

Anyways I dont have to explain myself to you

Hi Cally6008, I don't understand why your doctor can give you a diagnosis of fibro but then a year later says he only thinks you have fibro. When he told you that you had fibro in 2009 he should have referred you to a specialist to confirm the diagnosis and hopefully be able to give you something to help with the illness/condition, or advise how to cope with it.

cally6008 wrote: »

Me - I want to be referred back to Rheummy cos he said to go back if I felt I was getting worse

Have you contacted the rheummy consultant yourself yet - phoned up the secretary and ask if you can see him again - especially if your GP will not help you and refer you.

I know that you want a firm diagnosis, it does help if you do, so that the health professionals can help with treatment, whether it is only to treat the symptoms.

hannahO_2

Everyone please read this article which I came across yesterday.
OK, she may not have been on MSE and have signature voicing her concern that something was wrong with her but none the less she pursued and got dxed in the end.

And I was even visiting a brittle bone community and read a story about a person with broken bones that were undiagnosed and in pain for weeks due to nature of cracks being so fine and slightly angled in a x-ray which could have gave them a wrong diagnoses.

So it's not just this OP's condition that are difficult to get diagnosed but there are many others and many others wrongly diagnosed cases. It happens

"The problem is that even if PMR is diagnosed properly, GPs might not be aware of guidelines from the British Society of Rheumatology for patients to be referred to a rheumatologist."

Indie_Kid

hannahO wrote: »

So it's not just this OP's condition that are difficult to get diagnosed but there are many others and many others wrongly diagnosed cases. It happens

I agree. 3 years ago, I went to see my GP about neck pain. 3 years later and after seeing other GPs, it's finally being investigated. The first GP just sent me for physio, the second just gave me medication and the third has sent me for injections plus investigation. (well, he said injections, saw neurologist yesterday who diagnosed me with something and agreed with injections)

I've been wrongly diagnosed too - but I think most of that is down to having rare and misunderstood conditions. I'm also not sure if there's a test for either condition.

bassetbertie

prettypeach wrote: »

Are you for real?

Can you really not see how rude you have been??

I think you are rather twisting things that the poster has said and there really was no need to lecture her/deride her/call her a hypochondriac. Why do all that and then act innocent as you are in the above post?

And FYI, I only criticise people's spelling and grammar when they've been nasty in the first place and need taking down a peg or two.

And well said CatValou!

I also agree with your views.:T:T

LittleTinker

prettypeach wrote: »

Are you for real?

Can you really not see how rude you have been??

I think you are rather twisting things that the poster has said and there really was no need to lecture her/deride her/call her a hypochondriac. Why do all that and then act innocent as you are in the above post?

And FYI, I only criticise people's spelling and grammar when they've been nasty in the first place and need taking down a peg or two.

And well said CatValou!

If I have twisted things that have been said, I would like to see which bits. I also dont recall any lectures coming from my direction......which post is lecturing? As for calling someone a hypochondriac, do you know what one is? It isnt an insult you know.

I dont have to act anything especially not "innocent". I am not 'guilty' of anything other than curiosity and wanting an understanding.

You are not the voice of all who come to these boards and neither is it your place to "take someone down a peg or two". As I said previously you are coming across much nastier and seem to relish it, basking in the thanks of others even.

Not all people are the same. We do not all respond, speak, talk or act the same as everyone else and it ought to be something that you take into consideration when visiting a disability board especially as you really do not know whether the posters you are attacking are fit and well, autistic, had a stroke, blind, mentally ill or a combination of things.

If I post that I do not mean to be rude then that ought to be enough.....regardless of whether or not my typed out words read differently.....maybe I have difficulties you do not understand. Even so, I dont think it gives you the right to be nasty yourself.

To the OP....it seems that the other posters who have said as much as I have have gone un-noticed for some reason. Anyway, I apologise if my post has come across as rude. It is not my intention and as I have said several times, I am only curious as to why anyone would want to state that they have certain illnesses without diagnosis...which if you choose not to answer, thats fair enough. I would not and have not pressed you for one. I have replied on this thread only because of others directing their posts at me.

hannahO_2

I think that LittleTinker may be genuinely trying to understand why one wants to 'declare' etc.... There is no doubt that there are others who blatantly 'attack' those who are ill and claiming benefits or even free prescription. I was reading this thread and conversation turned into the tune of "people who have thyroid conditions shouldn't have been given free prescription"

Anyway back to the topic, LittleTinker may be finding it difficult to understand why some ill people 'declare', I can kind of understand his/her difficulty as I would wonder about people 'declare' about their weight problems, pregnancy trys or debt amount. Even though I talk about my condition to seek advice and share, I may not have it in my signature but that's me and who knows I might change in the future if I find any good reasons to do so.

prettypeach_2

LittleTinker wrote: »

If I have twisted things that have been said, I would like to see which bits. I also dont recall any lectures coming from my direction......which post is lecturing? As for calling someone a hypochondriac, do you know what one is? It isnt an insult you know.

I dont have to act anything especially not "innocent". I am not 'guilty' of anything other than curiosity and wanting an understanding.

You are not the voice of all who come to these boards and neither is it your place to "take someone down a peg or two". As I said previously you are coming across much nastier and seem to relish it, basking in the thanks of others even.

Not all people are the same. We do not all respond, speak, talk or act the same as everyone else and it ought to be something that you take into consideration when visiting a disability board especially as you really do not know whether the posters you are attacking are fit and well, autistic, had a stroke, blind, mentally ill or a combination of things.

If I post that I do not mean to be rude then that ought to be enough.....regardless of whether or not my typed out words read differently.....maybe I have difficulties you do not understand. Even so, I dont think it gives you the right to be nasty yourself.

To the OP....it seems that the other posters who have said as much as I have have gone un-noticed for some reason. Anyway, I apologise if my post has come across as rude. It is not my intention and as I have said several times, I am only curious as to why anyone would want to state that they have certain illnesses without diagnosis...which if you choose not to answer, thats fair enough. I would not and have not pressed you for one. I have replied on this thread only because of others directing their posts at me.

Putting you on ignore as I have no wish to encounter you again due to your posts on here.

Trialia

bigjl wrote: »

The phrase pot and kettle comes to mind, it is spelt hypercondriac, in medical terms "hyper" is high and "hypo" is low.

If you want to criticise somebodies spelling please have the good grace to check that you are correct, as the poster you are saying spelt it wrong actually spelt it correctly.

Actually, no, they did NOT. It is hypochondriac, do your research before posting.

The etymology of the term "hypochondriac" does not agree with what you assume it is. Knowing the difference between "hypo" and "hyper" doesn't mean you understand the rest of the root of a word, and assuming that you do just makes you look stupid.

1839, "illness without a specific cause," earlier (1668) "depression or melancholy without real cause," earlier still (1373) hypocandria "upper abdomen," from L.L. hypochondria "the abdomen," from Gk. hypokhondria (neut. pl.), from hypo- "under" (see sub-) + khondros "cartilage" (of the breastbone). Reflecting ancient belief that the viscera of the hypochondria were the seat of melancholy.

bigjl

CatValou wrote: »

You can't always trust the tests. Just because they come back negative it doesn't mean you don't have it. I know that sounds demented but that seems to be the experience of so many people I've spoken to.

The test for inflammation is conclusive, but the inflammatory markers can also indicate an infection, hence why after a positve or raised inflammatory marker is noted other tests are done to get a more accurate diagnosis.

GPs have had a marked reluctance to refer people for anything for the past year or two because of the way that funding is arranged these days.

As far as I have been led to believe GP's are actually rewarded financially for correct referal to a Consultant.

I know people who needed a double hip replacement who were never referred because they were still managing to get about somehow.

THR's are expensive and it is also a very risky procedure, sometimes a surgeon will only do it as a last resort, not fair in some cases, but better to have reduced mobility than not survive the surgery.

I know people who needed hearing aids who were never referred because they wouldn't argue with or put any pressure on their GP and just meekly accepted being fobbed off.

I know people who had stage three bowel cancer and had lost a third of their body weight but were never referred to an oncologist because the test came back negative. (12 weeks before dozens of small tumours and one the size of your fist were removed after they collapsed.) :mad:

Bowel cancer is normally suspected when there is a sudden change in bowel function, the first investigation would normally be a colonoscopy or sigmoidoscopy, one test that would also be done would be a stool sample, checking for blood in the faeces for example.

One of these people almost died and some of the others attempted suicide so I have nothing but sympathy for you OP and I deplore the posters whose unpleasant attitude would have been a roaring success in the gestapo.

So you think that because the GP didn't refer her to a Rheumatologist, due to the OP not having raised inflammatory markers, is wrong, the Rheumatologist would not have accepted the referal anyway, they don't blindly accept patients. If I was the OP's GP and gave it the old " whatever" statement as the OP admits to doing I would have her taken off my list.

My inflammatory markers are almost normal, I will see my Rheummy once more then all care is transferred back to my GP, blood tests every three months from now on, and I will be refered to my consultant if my blood test results change, and not before.

NB
I have posted with the different colours so as to make it clearer which comments I was replying to.