The (not so old) Crocks Cafe -Part 2

SingleSue

My crutch is currently decorated in pretty white organza and some roses......I did it for my brother's wedding and it looked so sweet, I haven't changed back to my normal gold foil.

LameWolf

Just realised, I haven't been back here for about a week!!:eek::D

FP if it's at all possible, Mr LW does any phone calls for me - he just tells whoever we need to contact straight out that I have a problem with phones; we also always give his mobile number if we absolutely have to provide one - if humanly possible, I just say "no" to any telephone contact, and say why.;)

I love the sound of the leopard-print crutches, btw.:o

formaldehyde_perfume

I do say that I have a phone phobia, but people still insist on having my number and talking to me if mum phones and says 'my daughter... blah blah' so it's easier if she just pretends to be me when I can't cope.

I have been meaning to try out my leopard print crutches, but for one reason or another I just haven't been well enough to go out for the sake of enjoyment, and they're a bit bulky to use with my scooter (I need one of the crutch holder things for the side/back) but it's the local HMSA meet up in Norwich next weekend so I shall use them then

I hope everyone is doing as well as possible

mary-op

Hello all
Hope I can join in from time to time although I am a bit of an ''oldie'' (67 if that counts)
I was interested in reading all about the MRI scans.
I'm currently under an orthopedic consultant after being rushed to hospital unable to walk. Numerous x rays were done before I was admitted but I can remember an MRI scan.......mind you I wasn't ''enclosed'' in anything. My discharge papers say an MRI scan was done though and am now waiting for a dexa (is that how you spell it) bone scan.
Seems my problem is degenerative discs and possible fracturs of a couple of vertabrae at the base of the spine caused by bone thinning.
I'm applying for DLA and Occ.therapist is coming out to see me on Tuesday to assess my mobility needs.........currently just have a walking frame and a commode as our only loo is upstairs.......climbing (or should I say crawling up them) is a real pain, literally.
I'm trying to keep positive about things though it would appear life won't be the same again. Its hard but you all seem to do so well.............it just might spur me on.

Good luck all

(sorry for long post)

formaldehyde_perfume

I just thought I'd mention that I bought a Yantra mat, I'd never heard of it before until my mum mentioned it was supposed to do wonders for sleep and energy levels. When I saw what it actually was I thought it would be perfect to lay on to desensitise my back as the years of muscle problems have caused it to be extremely hypersensitive to touch or heat. I've had it about a week now and have spent a few minutes on it each day and it is really helping. I think I will have to up my daily use to see if has any affect on my energy levels or sleep (20-30mins a day is recommended) but for £30 I think it was well worth it.

sunnyone

mary-op wrote: »

Hello all
Hope I can join in from time to time although I am a bit of an ''oldie'' (67 if that counts)
I was interested in reading all about the MRI scans.
I'm currently under an orthopedic consultant after being rushed to hospital unable to walk. Numerous x rays were done before I was admitted but I can remember an MRI scan.......mind you I wasn't ''enclosed'' in anything. My discharge papers say an MRI scan was done though and am now waiting for a dexa (is that how you spell it) bone scan.
Seems my problem is degenerative discs and possible fracturs of a couple of vertabrae at the base of the spine caused by bone thinning.
I'm applying for DLA and Occ.therapist is coming out to see me on Tuesday to assess my mobility needs.........currently just have a walking frame and a commode as our only loo is upstairs.......climbing (or should I say crawling up them) is a real pain, literally.
I'm trying to keep positive about things though it would appear life won't be the same again. Its hard but you all seem to do so well.............it just might spur me on.

Good luck all

(sorry for long post)

Your to old for DLA, you need to claim AA instead and it has no mobility element, DLA is only available up to age 65 and had two mobility and three care rates, AA just has two care rates.

Mty husband had a DEXA scan a few months ago, it takes ages to get the results unlike other scans.

needing-help

Hi everyone. I have been reading but didn't want to post about my daughters appointment while sunnyone was needing the support, I know you still are but I hope you are finding things easier. I was thinking about you.

Trialia thank you so much for the pm, I haven't replied yet as I am still getting my head round it.

Hello to everyone else and hope things are going ok.

The GP asked to see her after I told him about her bendy, clicky joints and said it sounded a lot like EDS. He examined her and made her do all sorts of bendy things then he said she is definitely very hypermobile but at her age she will probably grow out of it I asked about her clicky joints and he said she was just a clicky person and not to worry. I have come away feeling like I wasted his time but not happy with what he said.
I am going to see him on Wednesday and will try and push for a referal. Yesterday I heard her hips click and I was in a different room. Today she shouted at me to come and look, I went in and she was sat with both feet on her head:eek:

I'm feeling very lost now.

Careful_with_that_Axe

Welcome mary-op. I think the one thing we all have in common is we try not to let our disabilities define us.

Nice to see you again lw. Hope life is starting to calm down.

Mine is revving up significantly as I have to move by 9th March - no idea where to! I also have my DLA Tribunal on 2nd February. Luckily I have a very effective WRO helping me. Am quite chuffed to have it fairly soon so I no longer have it hanging over me.

sunnyone

needing-help wrote: »

Hi everyone. I have been reading but didn't want to post about my daughters appointment while sunnyone was needing the support, I know you still are but I hope you are finding things easier. I was thinking about you.

Trialia thank you so much for the pm, I haven't replied yet as I am still getting my head round it.

Hello to everyone else and hope things are going ok.

The GP asked to see her after I told him about her bendy, clicky joints and said it sounded a lot like EDS. He examined her and made her do all sorts of bendy things then he said she is definitely very hypermobile but at her age she will probably grow out of it I asked about her clicky joints and he said she was just a clicky person and not to worry. I have come away feeling like I wasted his time but not happy with what he said.
I am going to see him on Wednesday and will try and push for a referal. Yesterday I heard her hips click and I was in a different room. Today she shouted at me to come and look, I went in and she was sat with both feet on her head:eek:


I'm feeling very lost now.

Thank you but I feel bad now, you and your daughter need support too, Im HMS and I was diagnosed nearly 30 years ago now, the feet on the top of the head is one of my daughters favorites now where as my son likes the ankles crossed behind his neck :eek:

Being clicky was the beginning of my joint problems, the first few thousand times things are a novelty but then it starts to cause discomfort, then pain, then things go down hill very fast or at least they did in my case.

needing-help

I'm sorry I didn't mean to make you feel bad it's just I'm still fairly new here plus your problems were a lot worse than mine.

I don't know what to do now. What if he refuses to refer her? Am I just over reacting and she is just bendier than normal?