The (not so old) Crocks Cafe -Part 2

formaldehyde_perfume

bigzippy wrote: »

Formaldehyde, can you get some nice person to help you with the forms? CAB or DIAL or Welfare Rights?

Yeah, I've got an appointment with CAB next week (which took 6 weeks to get) and I've e-mailed the person most local to me on the DIAL website but only got an admin reply.

Unfortunately i wasnt very impressed with the local CAB service so I'm not expecting much; they also said that they wouldn't help with the appeal proccess (which seems almost certain for a first time applicant) so i'll be stuck on my own for that.

I don't know whether to ring up ESA and say it's now classified as EDS because my medical certificate says HMS and joint pain, could it cause more problems than it's worth? I just don't know what to do. Also, ESA want me to send them my buildings society passbooks to a freepost address, is this wise? What happens if they get lost? I could send it recorded delivery but then they'd send them back standard so could get lost then.

Indie_Kid

I wouldn't phone up ESA - your change of diagnosis doesn't change your ability (or not) to work.

summerof0763

got a small request does anyone have a copy of the book "if only i had known about that a year ago" cheapest i can see is £11 on amazon,wondered if anyone had one they have finished reading and would let me buy cheaper?

bigzippy

formaldehyde_perfume wrote: »

Yeah, I've got an appointment with CAB next week (which took 6 weeks to get) and I've e-mailed the person most local to me on the DIAL website but only got an admin reply.

Unfortunately i wasnt very impressed with the local CAB service so I'm not expecting much; they also said that they wouldn't help with the appeal proccess (which seems almost certain for a first time applicant) so i'll be stuck on my own for that.

I don't know whether to ring up ESA and say it's now classified as EDS because my medical certificate says HMS and joint pain, could it cause more problems than it's worth? I just don't know what to do. Also, ESA want me to send them my buildings society passbooks to a freepost address, is this wise? What happens if they get lost? I could send it recorded delivery but then they'd send them back standard so could get lost then.

I think you're better ringing BEL actually (Benefits Enquiry Line) -from what I recall, they're supposed to be impartial and were quite helpful a couple of years ago when I started down the benefit claiming route... Might be worth a try?
Tis funny with CABs. Mine will and do help with the appeal process, but others don't get the funding. But of a postcode lottery it would seem :cool:

summerof0763 wrote: »

got a small request does anyone have a copy of the book "if only i had known about that a year ago" cheapest i can see is £11 on amazon,wondered if anyone had one they have finished reading and would let me buy cheaper?

Can't help you...not least cos I've never heard of it Have you tried ebay/gumtree?

SingleSue

Well I am having a very bad couple of days...had hydrotherapy yesterday and was already a little eek before, something twanged during the session in my back and after that, the legs didn't want to move without me having to consciously think about the process of walking, I felt incredibly heavy and the pain hit with a vengeance.

So I am walking as slow as a snail, having to really use my crutch, taking lots of my painkillers and generally miserable.

Somehow tomorrow I have to get some housework done as my ex mother in law is round in the evening which is going to be fun as it is taking me so long just to walk to the kitchen from the hallway (going to the loo is a right palaver, I can't be desperate for it or I would have wee'd myself before getting there!), let alone from the front room to the kitchen!

LameWolf

SingleSue oh, ouch and more ouch! Can you put MiL off til another day, or better, get her to do a spot of housework?? I'm saying that a bit tongue in cheek, as my XMiL would've sooner chewed off her own leg than help me! Take care mate; are you going to see the Doc? Something going twang like that sounds very alarming.

Summer sorry, can't help with the book.

Zipster sounds like a good celebration to me!:D I'm still trying to recoup my spoons after ours:D

Having a bit of a rough day today - deffo in a lupus flare; mouthful of ulcers, hair falling out in clumps, mega-mega-tired, and my left leg hurts like hell, even when I'm lying down (what's all that about??)

Got a friend coming round Sunday:eek: - haven't seen her for about 2 years, and she's invited herself, and bringing her large, naughty Great Dane Cross, Jay with her! So I'd better buck up soon, as I need to make a cake or something.:eek:

SingleSue

Thanks LW...I did manage to get the basics of the housework done in the front room and hallway, didn't get as far as the hoovering but it was passable enough (thank goodness the boys didn't have biscuits or crisps recently!) and she came round tonight for a short while.

I am up at the spinal clinic on Monday (eekk!) so will see what they say is wrong with me first but the doctor knows I have been struggling recently as I actually went up to see her for the first time in god knows how long (I don't like going to the doctors, see enough of them with the boys) and she prescribed stronger painkillers than just ibuprofen...which she told me off for taking as I am asthmatic and not supposed to take them in the first place (allergic to paracetamol).

The back twanging is not as unusual as it sounds, it is quite a regular occurance and has been since my mid teens (40 now) with my first slipped disc..it's just that it is harder to deal with now, or seems to be more frequent than it used to be and the effects lasting longer than they used to...and this one seemed especially more severe than previous ones.

Thankfully, I have managed to put my brother off coming up tomorrow morning to do my garden, I am thankful that he does it but the having to get up early, run after small children while he gardens and then making everyone a breakfast bap (more like a lunch bap to be honest), does me no favours and tends to set me up wrongly for the whole weekend and with how I am at the moment, I just want to rest and get my back better (more activity does not ease it off, it just makes it worse) so that I can care for the boys easier.

bigzippy

LameWolf wrote: »

Zipster sounds like a good celebration to me!:D I'm still trying to recoup my spoons after ours:D

Haha, I *wish* that was what I was recouping spoons from!!:rotfl:

Hope you (LW) and SS feel better soon.

MIL's moving day tomorrow! :shocked: Not gonna be able to move next week, never mind walk! And AF will be visiting shortly too...:cool:

soolin

dad collapsed again in his dementia home yesterday so I spent most of the night with him in hospital and I'm feeling sort of irritated today.

He is 84, severe dementia several other health issues but actually very happy and content living in a twilight world where I'm his mum and he lives in a hotel (his words!) He hates hospital and it was a bit of a struggle last night as he kept asking to go home and they wanted him to be quiet as they prefer even their A and E patients asleep. Then had a series of doctors, all different specialities come and see dad all wanting to do different things, the last of which was a surgeon who said Dad needed to stay in to have a pacemaker inserted as he has a poor heart rythmn. I told him that Dad refused to consent to a pacemaker in 2007 (before he got dementia) as he is hospital phobic and preferred to take the health risks but surgeon said I could now consent as dad has no mental capacity. I said that I also refused consent as dad was happy and content and apart from the little blackouts he gets for a second or two occasionally his quality of life is good.

I basically then got lectured, they even sort of suggested in a round about way that they would try and get consent some other way as they wanted to operate (the surgeon I was speaking to wasn';t even a cardio man!) , they said that if a cardio surgeon turned up he could make a decision as it was unlikely they could contact me with enough time for me to attend the meeting in order to give consent, so it could be done in absentia-which I know is rubbish.

Ended up deciding that as I was un co operative and dad was trying to escape to go home that at 3am they would bung him in an ambulance and send him back to the home, which they did but i couldn't go with him as i wasn't booked as a passenger.

What a palaver. I have warned the home that the hospital might contact them and to let me know if they hear anything about an op, but this sort of treatment is realy not right. They didn't see Dad as 'dad' they saw him as a candidiate for a procedure that he even declined when he lived independently.

hannahO_2

I can understand why you would feel irritated!
Has your dad got a living will? If so, you could use that to re-instate his wish.