The (not so old) Crocks Cafe -Part 2

Careful_with_that_Axe

I am certainly odd, Trialia *g* I wonder if maybe some of the symptoms are common to Auto-immune type thingies which would be why I could tick so many off. That being said, I really wouldn't want yet ANOTHER dx! *g*

Jojo_the_Tightfisted

Careful_with_that_Axe wrote: »

I am certainly odd, Trialia *g*g*

Be that as it may, we still love you!!!


Managed to play tonight. Amazed I even managed to get there, but I got a seat on the bus and got stranded onstage for an hour as no other bassists turned up (gits). Then ended up playing something I didn't recognise and I've Got Rhythm in double time. Repeatedly. With lots of soloists needing a strong bassline to follow.

Ended up on the last one sitting on the amp, my shoulder burning and my index finger blistering. Oh, and my temperature spiked so high, I think I would have keeled over had we not finished when we did. Wobbled my way offstage to get a couple of people saying really nice things about how I did, which was nice, but I had to come straight home. Downed 2 pints of soft drinks, painkillers, antiDs, antihistamines and antisicky things and called it a night.

Now tucked up in bed with the cat snoring happily beside me, the fan on, DD ready for her EEG tomorrow morning and me typing without the use of my shoulder or my index finger on the left.

Trialia

Careful_with_that_Axe wrote: »

I am certainly odd, Trialia *g* I wonder if maybe some of the symptoms are common to Auto-immune type thingies which would be why I could tick so many off. That being said, I really wouldn't want yet ANOTHER dx! *g*

They may be, but EDS isn't auto-immune...

Careful_with_that_Axe

Sounds like you had a good time, but also sounds like you are brewing something? Infection or flare? I know you have a heavy week ahead, but please do try to get some rest.
You've said a couple of really touching things and made me go all warm and fuzzy and I forgot to say thank you. So, thank you!
I normally have to buy approval from the cat with treats; it may be cupboard love, but you take what you can get *g*

p.s. you're one of my faves too. I don't really like the others, but don't tell them, OK?

Careful_with_that_Axe

Trialia wrote: »

They may be, but EDS isn't auto-immune...

I know, but I still remain convinced (I think) that there's something linking all these problems with similar symptoms that hasn't been unearthed yet and, I suspect, at gene level.

Jojo_the_Tightfisted

Careful_with_that_Axe wrote: »

Sounds like you had a good time, but also sounds like you are brewing something? Infection or flare? I know you have a heavy week ahead, but please do try to get some rest.
You've said a couple of really touching things and made me go all warm and fuzzy and I forgot to say thank you. So, thank you!
I normally have to buy approval from the cat with treats; it may be cupboard love, but you take what you can get *g*

I know, due up for a steroid shot at the end of the month - keeping finger crossed (wonky as they are) that the hospital doesn't cancel me again, as it's only been cancelled once so far, and it's usually third time lucky with my appointments.

Pacing myself has always been a problem. I just blunder into things with good intentions and a grin, hoping that they'll work themselves out in the end. Sometimes they do, sometimes I end up patching myself up and thinking 'Well, that wasn't too bright, was it?'.

My positively ancient (he was in his late 70s but refused to retire) primary school headmaster wrote in my leaving present dictionary 'Better to wear out than rust out' - even he had the honour of bandaging me up on one occasion when my knee self destructed in the absence of any female staff. Only in my dictionary, not anyone else's. I listened to him and not the people telling me I couldn't do stuff. I'm stubborn like that

But don't tell anyone I can be - gasp - nice sometimes, as well! That's a secret!

Careful_with_that_Axe wrote: »

p.s. you're one of my faves too. I don't really like the others, but don't tell them, OK?

OK, I won't

SingleSue

Trialia wrote: »

CWTA - not everyone with Ehlers-Danlos syndrome has hypermobility as a major symptom, funnily enough. It's the most common, but there are odd instances of EDS without it.

Sue - well, we already know YOU are, even if you won't admit to it. *snugs*

sunnyone - me, too.

Lol, I'm getting there....slowly, very slowly.:D

Middle son has a very small amount of hypermobility, mainly in his fingers but they think he is a probable too due to other 'symptoms'. He was actually investigated for a bleeding disorder when he was small as he bruised so easily/bled copiously for minor cuts but they ruled out haemophillia (sp?) and didn't go any further. He also takes an absolute age to heal, over a year for an IV site to heal.

Trialia

Careful_with_that_Axe wrote: »

I know, but I still remain convinced (I think) that there's something linking all these problems with similar symptoms that hasn't been unearthed yet and, I suspect, at gene level.

In this circumstance, I don't really think it'd be that. They're almost certain EDS-III is a collagen type III-alpha or Tenascin-X defect, they just can't test for it yet. And it does follow the pattern of many similar connective-tissue disorders. The fibromyalgia symptoms are a secondary consequence, not usually primary like with autoimmune conditions.

Sorry, I'm a science geek or used to be.

SingleSue

Grr, my left hand is driving me barmy! My fingers and thumb keep twitching for no reason and it is really starting to annoy me.

It does it occasionally but tonight, it has been almost constant...for about the last 6 hours, making it difficult to hold a cup, write or type...and now sleep.

formaldehyde_perfume

LadyMorticia - can you come on facebook chat for a bit? x