Budget - tougher for DLA claimants

summerof0763

sh1305 wrote: »

I know people who have had cataracts, had them removed and are partially sighted. Not as simple as you think.

no its not simple,my stepdad had it done,never made any difference tbh

seven-day-weekend

summerof0763 wrote: »

i apologise sdw,maybe a bit hasty of me to put you there,sorry!!
just hate when people benefit bash those that are entitled to there benefit,i worked as long as i could,and i am not proud am on benefits,but unfortunately its the hand i have been dealt.
would love to be working,had my life planned out till all went pearshaped.

Apolgy accepted, thankyou, I think I understand where you are coming from,

Trialia

summerof0763 wrote: »

would love to be working,had my life planned out till all went pearshaped.

As did I - which is why I hate benefit-bashing so much. It's not like I have much of a choice than to live the way I do. If I didn't apply for/accept benefits I would still be unable to work and thus in an even worse situation than I am.

I've known since I was very small what I wanted to do with my life. That HEDS, BPD and FM have derailed that is not something that makes me happy, but I refuse to feel shamed by these people for claiming IS and DLA at my age - I know I have no real choice in the matter! I've spent most of the last few years getting from day to day and trying, with my doctors, to figure out some kind of treatment plan that will work for more than six months at a time to get me back on my feet. I know I am trying, even if they don't, so they can whistle.

summerof0763

Trialia wrote: »

As did I - which is why I hate benefit-bashing so much. It's not like I have much of a choice than to live the way I do. If I didn't apply for/accept benefits I would still be unable to work and thus in an even worse situation than I am.

I've known since I was very small what I wanted to do with my life. That HEDS, BPD and FM have derailed that is not something that makes me happy, but I refuse to feel shamed by these people for claiming IS and DLA at my age - I know I have no real choice in the matter! I've spent most of the last few years getting from day to day and trying, with my doctors, to figure out some kind of treatment plan that will work for more than six months at a time to get me back on my feet. I know I am trying, even if they don't, so they can whistle.

taken me a good few years to accept,this is now my way of life,just wish others would accept not all people wish to rely on benefits,and yes i know some get benefits rather than go out and work.
i worked from time i was 13yrs old,loved having my money.now i struggle to make ends meet,honestly have no idea where people get the idea that living on benefits is easy,as i would gladly give it up and go out and work again if i could

elaina79

krisskross wrote: »

My husband has had rheumatoid arthritis for 20 years. Just about to commence on anti TNF treatment after failing 2 dmards. Are you having to get someone do the methotrexate injections for you as you haven't the manual dexterity for the needle and syringes?

Think I know what it is about. i've pushed the wheelchair, cut up the food, showered and dried him, dressed him etc. Listened to him groaning in pain everytime he turns over in bed. Fought for him to have the very best treatments available.

i met a lady last month who is having the anti TNFs. She was dancing, running up stairs etc. She said it was like a miracle

Im at the relatively early stages of it at the moment so no. But I'm not talking about the carers here I mean the people who have no clue about disability, whether it be them that suffers or caring for someone.

elaina79

Thanks to the government disability claimants are being tarred with the same brush as the work shy career claimants. This is unfair, I know that fraud does exist but I beleive they are just targeting the people less likely to fight back.

kingfisherblue

KxMx wrote: »

Firstly, the powers that be make the decisions when to check, nothing to do with claimants. DLA can be and is re-assessed in some cases every single year. I'd imagine lifetime awards are what you're referring to? I should think with those it involves detailed examinations with GPs and Consultants etc and are not awarded lightly - perhaps someone with more knowledge that I can jump in?

My son was eight when he was awarded indefinite HRM and HRC. Even the specialist nurse for children with disabilities said that it was unusual. Unless he is one of the few that is picked at random to be checked, he is likely to remain on this award until he is 16, when I will have to fill out an adult form for him.

To the best of my knowledge, the DWP has never contacted any of his consultants, doctors or other specialists, although it is of course possible that they have been contacted and I haven't been told.

My son has a number of conditions that require high levels of care. Where he might improve in some areas (he's just learned to fasten a zip ), he will deteriorate in other areas. He is no longer feeding four times a night - only two or three times - but has started to wander around the house in the middle of the night several times a week. I'm considering putting a child proof gate at the top of the stairs as I am worried about his safety.

Mobilitywise, his condition has not improved. He still suffers pain in his limbs when walking - the only difference is that he can now tell me! As he gets older, the pain is no longer just in his ankles, but is also in his knees. It is likely to progress to his hips by the time he reaches adulthood. His breathing continues to be problematic - at twelve, he sounds like an old man with emphysema

If my son's condition improved, I would contact the DLA office, but in some ways he is actually worse than he was when he was eight. I can only imagine that the DM recognised that his conditions - none of which can be cured - mean that he needs high levels of care and also that he qualifies for HRM.

Indie_Kid

kingfisherblue wrote: »

To the best of my knowledge, the DWP has never contacted any of his consultants, doctors or other specialists, although it is of course possible that they have been contacted and I haven't been told.

They do write to you if they contact anyone.

krisskross

elaina79 wrote: »

Im at the relatively early stages of it at the moment so no. But I'm not talking about the carers here I mean the people who have no clue about disability, whether it be them that suffers or caring for someone.

In that case i hope i haven't frightened you. Treatment is so much better now than it was 20 years ago.

His consultant tells us that if this new treatment fails then there will be something else to try.

The new treatment costs £10K a year, but the criteria for receiving it are very strict.

Oldernotwiser

elaina79 wrote: »

I am astonished by the attitude of some people on here. I remember what it was like to be healthy and working full time taking everything for granted.
Now I have rheumatoid arthritis and I know that my life will never be that way again. If someone had told me 2 years ago that I would be like this now, I would have laughed in their face.
I don't wish illness or disability on anyone but I would just love for people to experience it for a short while before they judge others.

I think that you've missed the point that several people, although perhaps not disabled themselves, look after family members who are.

My husband is in the later stages of emphysema, on oxygen all the time,
has osteoporosis, RH, and takes a variety of drugs, all of which have side effects which interact in an interesting fashion!

The discussion is not as simple as you seem to think.