Winter fuel payment petition

Trialia

You're the one who made it so, krisskross. Not any of us. You were the one who implied your husband not considering himself disabled made him a better person than the rest of us. Realism isn't the same thing as pessimism.

If I could cope with part-time college, let alone work, I probably wouldn't consider myself disabled, but since I struggle even to sleep and wash myself, I do. Fair enough for you?

krisskross

jazabelle wrote: »

Oh come on, what a stupid generalisation. A brunette pushed me over once trying to get on the bus one time, obviously all brunettes are grabby and think they should get special treatment. :rolleyes:

You can obviously only do selected reading. I did point out that not all disabled people are like my examples. Would you like to borrow my myopia, hyperopia correcting spectacles?

jazabelle

krisskross wrote: »

You can obviously only do selected reading. I did point out that not all disabled people are like my examples. Would you like to borrow my myopia, hyperopia correcting spectacles?

Oh, of course not - just many of us.

krisskross

I feel really ganged up on here. But then certain types of people need the egging on and support of their peers don't they? Funny how you all jump to each other's defence no matter how nonsensical the post is and when you really can't be agreeing with it.

GlasweJen

Trialia wrote: »

Yeah... try having endo-level periods when you've also got spinal damage and the pills only make them heavier and more painful. Then you can legitimately have a go at me for complaining about pain from them. erm, i have dysautonomiam, if i was lucky enough not to land in hospital for a week every month I was unable to lift my head because i'd just black out, heart would stop, blood pressure would be too low to measure etc. Half the women in my family have "female problems" - endo, PCOS, dysmenorrhoea, menorrhagia, double uterus, repeated miscarriage. I'd be lucky I came off so lightly in that fashion, if it weren't for the damage to my back, which has royally screwed me up.

They won't do surgery on me to help with that because of how high a risk I would be for abdominal, given my circumstances. What you describe could be D&C, could also be an ablation... They kind of had to do it to me in the end when it latched onto my appendix and caused an infection and then the appendix ruptured, they were in there anyway, i'm not usually allowed anaesthetic, not for the d and c thingy and not for my pacemaker or the extraction of my wisdom tooth.

Edit: Also, I wear my glasses all the time, and I do mean all the time. I can't see my hand in front of my face if I don't yeah me too and no me neither.

but the glasses don't affect how good i am at staying concious so they're hardly relevent.

jazabelle

Oh come on, there have only been two of us steadily posting, and there have been people coming and going on both sides. Hardly a mass ganging up on you session.

And GlasweJen - if you've been through all that, why are you arguing with us because we said heavy painful periods can be really sh*tty? Surely you'd be the first to understand that? Or am I not understanding your posts?

TOBRUK

krisskross wrote: »

I feel really ganged up on here. But then certain types of people need the egging on and support of their peers don't they? Funny how you all jump to each other's defence no matter how nonsensical the post is and when you really can't be agreeing with it.

I don't believe my illness or disability is nonsensical nor my posts whatever you believe. I'm afraid that it is you who have been having a go at everyone's posts giving everyone your opinion on their illnesses and so called disabilities. I don't need to jump to anyone's defence as you put it, but I will stand up for someone if I feel it is right and just.

GlasweJen

Yeah they're crap but they aren't disabling, having a next to non-existant autonomic nervous system is disabling. It just really annoys me when people accuse me of "just" fainting and it's so difficult to be taken seriously as someone with a "real" disability when statistics say I wont live past 40 and then you come on and there are people mixing a list of disabilities with ailments. Yeah I don't like not being able to see in the morning, of course it was rubbish pre-surgery when I couldn't move for 1/4 of the month but when you start banging on about that then the serious disabilities get overlooked and then when disabled people want something or are campaigning non disabled people chip in "oh i was online and there was this lass with a bad back going on about how disabled she is because she has a sore back, heavy periods and wears glasses".

Trialia

I'm not having a go at you, GlasweJen. I know a couple of people who have dysautonomia through the invisible-illness forum I'm on, and I'd hate it. I'm just saying that it's not really fair to have a go at me for listing periods as heavy and painful as mine as part of the list of symptoms that debilitate me on a regular basis. That's all.

Anaesthetic, oh what fun. Heh. I'm allowed it, but local doesn't work on me (thank you, EDS...). I'm sorry you had to go through that. No invasive surgery such as that could ever be a pleasant experience, one would think. (Shoulder stabilisation certainly isn't, that I do know from personal experience.)

Edit: After having seen your post before mine, after I'd finished writing this one, I'll tell you again: that is not a list of disabilities. It's a list of symptoms; apart from EDS-h, rapid-cycling bipolar with psychosis and fibromyalgia, the disability is more of a cumulative condition. Heavy periods are one thing; add them to chronic fatigue and spinal damage and you have a whole other ball game.

jazabelle

GlasweJen wrote: »

Yeah they're crap but they aren't disabling, having a next to non-existant autonomic nervous system is disabling. It just really annoys me when people accuse me of "just" fainting and it's so difficult to be taken seriously as someone with a "real" disability when statistics say I wont live past 40 and then you come on and there are people mixing a list of disabilities with ailments. Yeah I don't like not being able to see in the morning, of course it was rubbish pre-surgery when I couldn't move for 1/4 of the month but when you start banging on about that then the serious disabilities get overlooked and then when disabled people want something or are campaigning non disabled people chip in "oh i was online and there was this lass with a bad back going on about how disabled she is because she has a sore back, heavy periods and wears glasses".

But again she wasn't saying she was disabled because she has heavy periods/bad eye sight - she was saying she is disabled because she has other conditions and they cause a great big list of issues related to them.