Winter fuel payment petition

jazabelle

krisskross wrote: »

I don't think most of you are whiners/scroungers but many of you do come across as grabby and think you should have hugely special treatment because you are 'disabled'. This is an attitude that I see everyday. Just run me over with the mobility scooter, shouldn't have been in your way on the pavement should I?
Yes I would have stood back to let you get on the bus first anyway, there is no need to wave your stick at me and shout that I should show respect. Now I know you will say that you are not like this but I have met very very many who are. Those who use their disability, real or perceived to obtain preferential treatment or service.

Oh come on, what a stupid generalisation. A brunette pushed me over once trying to get on the bus one time, obviously all brunettes are grabby and think they should get special treatment. :rolleyes:

Trialia

GlasweJen wrote: »

I'm sorry but I had to laugh at some of the lists of disabilities that were posted earlier, no wonder disabled people struggle to get taken seriously when they list heavy periods and short sightedness in among the "real" disabilities.

I can see you didn't read my elaboration on the reasons for listing either of those things in that post, then. It was a list of symptoms, not of what I consider disabling about my state of health. The sight impairment was listed there because it causes me extensive eyestrain and debilitating migraines, and the heavy periods because they are long enough and heavy enough to cause me frequent anaemia, which is draining as hell on top of pre-existing chronic fatigue.

Read the full thread before you judge on one post. As Jazabelle has said, I wasn't listing those things as disabilities by themselves, but it all accumulates, unfortunately.

krisskross, I too have met those people whose attitudes you're describing. I'm not one of them, but I do object to having older people glare at me because I'm in a disabled-and-elderly seat when they get on the bus, even when I have my mobility aid (particularly since I can't actually stand up for more than 10 minutes at a time without needing to move around more than a bus allows, grr). I'm as entitled to that as they are, and hell, in the case of the ones who do the glaring, they usually appear to be quite a bit healthier than I. I'd never ask an elderly or otherwise disabled person to let me have their seat unless I was in a lot more pain than usual; I'm not, though you seem to think otherwise, like that.

willa

Trialia wrote: »

I can see you didn't read my elaboration on the reasons for listing either of those things in that post, then. It was a list of symptoms, not of what I consider disabling about my state of health. The sight impairment was listed there because it causes me extensive eyestrain and debilitating migraines, and the heavy periods because they are long enough and heavy enough to cause me frequent anaemia, which is draining as hell on top of pre-existing chronic fatigue.

Read the full thread before you judge on one post. As Jazabelle has said, I wasn't listing those things as disabilities by themselves, but it all accumulates, unfortunately.

krisskross, I too have met those people whose attitudes you're describing. I'm not one of them, but I do object to having older people glare at me because I'm in a disabled-and-elderly seat when they get on the bus, even when I have my mobility aid (particularly since I can't actually stand up for more than 10 minutes at a time without needing to move around more than a bus allows, grr). I'm as entitled to that as they are, and hell, in the case of the ones who do the glaring, they usually appear to be quite a bit healthier than I. I'd never ask an elderly or otherwise disabled person to let me have their seat unless I was in a lot more pain than usual; I'm not, though you seem to think otherwise, like that.

I'm with you on that Trialia, let's imagine how many people would happily endure (and function with) CFS coupled with dysmenorrhoea

TOBRUK

krisscross, you seem to relish provoking and seeking an arguement. You belittle everyone's else's illness, condition and disabilities, oh sorry, they aren't disabled because you say so!

You keep pointing out your husband's illnesses and suffering on here which is worse than anybody else could imagine. You have worked hard all your life and earned enough towards your retirement, you are lucky it's something I will no longer be able to do. I worked for years but now I can't (but then ofcourse this is my own fault!!) through events beyond my control. I have an illness where I am almost completely housebound.

I have difficulty with mobility along with a disability (paralysis) and because of recent events have had to put my house up for sale - I need to get a bungalow (as the stairs are an issue) and to be able to move near family so that I can get the care and support I need - my doctor thinks this is necessary.

On top of all this, 16th of September last year I almost died after collapsing, was unconscious they reckon for around 13 hours when I was found, was in intensive care for a week and family were told they didn't think I would pull through.

Other things happened since then and at the moment I am recovering after having major surgery (large tumour on the bowel) 4 weeks ago. Although this was nothing to do with my illness and disability it has had an effect.

Before you say, I am not saying 'poor me'at all, I am lucky to be alive. I really think it's unfair to tell someone that they aren't as ill as someone else or how they should be feeling with an illness.

krisskross

sh1305 wrote: »

DLA isn't that generous. Especially when you can't drive and need constant supervision outside.

Many people feel they should get the WFP because they need it. Due to disability, they have higher bills - DLA won't cover these bills.

My husband has nil mobility at the moment. Needs a taxi everywhere because of an illness. So do tell me why he can't get any financial help with this.

I'll tell you.

It is because he is over 65 and thus does not meet the criteria for the mobility element of DLA. So he can't have it.

You lot are not over 60 and therefore do not meet the criteria for the WFP. so you can't have it.

jazabelle

willa wrote: »

Um, excuse me, but 'heavy periods' or heavily painful periods can be extremely incapacitating! Jazabelle, period pain may not be classed as a 'disability' but, from one who has period pains that are basically labour pains, let me tell you they are extremely disabling!
I would think severe short-sightedness can be quite disabling too!

Did you really mean to aim this at me? I've spent half the thread defending having periods on that list!

Yes I said alone they probably weren't a disability, but can quite understand how they could be disabling.

GlasweJen

willa wrote: »

Um, excuse me, but 'heavy periods' or heavily painful periods can be extremely incapacitating! Jazabelle, period pain may not be classed as a 'disability' but, from one who has period pains that are basically labour pains, let me tell you they are extremely disabling!
I would think severe short-sightedness can be quite disabling too!

If you read to the end of my post you would have seen that i too have had problems with periods. I had endometriosis and had to have surgery and pills for that and also had a D and C (i think that's what it's called) to try and scrape some of the extra gunk away because i was just producing far too much of it.


ETA now hows that for too much information!

Oh and another thing, i wear glasses too because i have an astigmatism, yeah you get migranes if you don't wear them but the answer to that is to bloody well put them on when you need them.

Trialia

GlasweJen wrote: »

If you read to the end of my post you would have seen that i too have had problems with periods. I had endometriosis and had to have surgery and pills for that and also had a D and C (i think that's what it's called) to try and scrape some of the extra gunk away because i was just producing far too much of it.

Yeah... try having endo-level periods when you've also got spinal damage and the pills only make them heavier and more painful. Then you can legitimately have a go at me for complaining about pain from them. Half the women in my family have "female problems" - endo, PCOS, dysmenorrhoea, menorrhagia, double uterus, repeated miscarriage. I'd be lucky I came off so lightly in that fashion, if it weren't for the damage to my back, which has royally screwed me up.

They won't do surgery on me to help with that because of how high a risk I would be for abdominal, given my circumstances. What you describe could be D&C, could also be an ablation...

Edit: Also, I wear my glasses all the time, and I do mean all the time. I can't see my hand in front of my face if I don't.

krisskross

TOBRUK wrote: »

krisscross, you seem to relish provoking and seeking an arguement. You belittle everyone's else's illness, condition and disabilities, oh sorry, they aren't disabled because you say so!

You keep pointing out your husband's illnesses and suffering on here which is worse than anybody else could imagine. You have worked hard all your life and earned enough towards your retirement, you are lucky it's something I will no longer be able to do. I worked for years but now I can't (but then ofcourse this is my own fault!!) through events beyond my control. I have an illness where I am almost completely housebound.

Again what a load of nonsense. If anything I have pointed out that my husband doesn't even consider himself 'disabled'. He thinks you have to be a lot worse than him to qualify as disabled. I only mention him because several posters think 'inconveniences' mean they are disabled. Truly disabled people are having their condition trivialised as all and sundry jump on the disabled gravy train.

This thread has just turned into a 'p****ing' contest. Whose ailments are worse than everyone else.

jazabelle

krisskross wrote: »

This thread has just turned into a 'p****ing' contest. Whose ailments are worse than everyone else.

That's hilarious, coming from you.