Winter fuel payment petition

tenmah

krisskross wrote: »

Sorry what is it I don't get? Elucidate.

I don't need to - you just need to read the thread again and take in what people are saying.

Don't judge anyone until you have walked in their shoes would be my message to you.

I know it is hard to appreciate what other people are going through, but just because you are not going through the same, does not mean that you can't sympathise or try to understand.

Indie_Kid

seven-day-weekend wrote: »

This is a little-known and little-understood condition that you can't even explain to people properly because the symptoms are so wierd.

I have something completely different; but can sympathise with you there.

your head is in a state due to the sleep deprivation - but people don't understand, why should they?

Again, I can sympathise with you there. But with me, I'm much more awake at the start of the week (so can do work) and much more tired at the end of the week.

But now I've found it's messed up my sleeping pattern - it's not unusual for me to be more awake at 2am than I am at 6pm.

Indie_Kid

seven-day-weekend wrote: »

But really, to fall asleep like that because a physical condition causes sleep deprivation to that degree, is not actually funny at all!

I agree. I have fallen asleep in exams before (:o) but thankfully woke up before they finished. And I failed that particular exam.

Trialia

seven-day-weekend wrote: »

But really, to fall asleep like that because a physical condition causes sleep deprivation to that degree, is not actually funny at all!

You're not kidding... I've fallen asleep in class at school a couple of times before, but an American friend of mine has narcolepsy and cataplexy, and before they got her condition under control (she was 17 when diagnosed, 20 when they finally managed it), she couldn't even go anywhere alone in case she fell asleep unexpectedly.

seven-day-weekend

Just in case anyone is interested (in case you meet someone with RLS):

http://www.rls.org/Page.aspx?pid=477

krisskross

tenmah wrote: »

I don't need to - you just need to read the thread again and take in what people are saying.

Don't judge anyone until you have walked in their shoes would be my message to you.

I know it is hard to appreciate what other people are going through, but just because you are not going through the same, does not mean that you can't sympathise or try to understand.

What absolute tosh. I know what is like to live with an extremely disabled husband, even if he doesn't accept that he is disabled. I see his pain every day, I see his suffering, I do for him all the things he can't do. We have been together for over 50 years, do you really not think his suffering becomes my suffering?

I also know that a lot of people complaining on this thread about not getting a miserable extra £5 a week because someone else gets it are just so greedy. Their turn for it will come when they reach pension age. In the meantime they should count their blessings that they live in a country where they are supported with housing and enough money to provide a reasonable lifestyle. Everyone on here has a computer, internet access, no doubt TV plus licence to pay, mobile phone etc. Loads of areas where the small economies required to produce £5 a week could be made.

And if saying that makes me ignorant then so be it. Sometimes things have to pointed out. You feel you can tell me I am ignorant, horrid etc. I could be as rude as you are, but I am above gratuitous rudeness. But sometimes the truth hurts doesn't it?

jazabelle

krisskross wrote: »

What absolute tosh. I know what is like to live with an extremely disabled husband, even if he doesn't accept that he is disabled. I see his pain every day, I see his suffering, I do for him all the things he can't do. We have been together for over 50 years, do you really not think his suffering becomes my suffering?

I also know that a lot of people complaining on this thread about not getting a miserable extra £5 a week because someone else gets it are just so greedy. Their turn for it will come when they reach pension age. In the meantime they should count their blessings that they live in a country where they are supported with housing and enough money to provide a reasonable lifestyle. Everyone on here has a computer, internet access, no doubt TV plus licence to pay, mobile phone etc. Loads of areas where the small economies required to produce £5 a week could be made.

And if saying that makes me ignorant then so be it. Sometimes things have to pointed out. You feel you can tell me I am ignorant, horrid etc. I could be as rude as you are, but I am above gratuitous rudeness. But sometimes the truth hurts doesn't it?

You're still missing the point. By a mile.

krisskross

jazabelle wrote: »

You're still missing the point. By a mile.

So what is the point? Do let me in on the secret point.

Trialia

Above gratuitous rudeness, krisskross? Really? You have been acting, as tenmah has said, in an extraordinarily offensive and ignorant manner yourself throughout this thread.

And no, even though you empathise deeply with your husband because you love him, his suffering will never become yours unless you develop his disabilities. He probably would feel loved by your saying that, but as an objective observer, it's a pretty selfish thing to claim to people who do endure extensive physical pain and incapacity every day of their lives.

I have a computer and internet access and a phone because I need them to be able to lead a life anywhere close to normal. I shop for food and its delivery over the internet as I'm frequently unable to leave the house, I keep in touch with my family and my doctors through the telephone, and I don't have a TV.

krisskross

Trialia wrote: »

Above gratuitous rudeness, krisskross? Really? You have been acting, as tenmah has said, in an extraordinarily offensive and ignorant manner yourself throughout this thread.

And no, even though you empathise deeply with your husband because you love him, his suffering will never become yours unless you develop his disabilities. He probably would feel loved by your saying that, but as an objective observer, it's a pretty selfish thing to claim to people who do endure extensive physical pain and incapacity every day of their lives.

I have a computer and internet access and a phone because I need them to be able to lead a life anywhere close to normal. I shop for food and its delivery over the internet as I'm frequently unable to leave the house, I keep in touch with my family and my doctors through the telephone, and I don't have a TV.

No one has still explained why they think the WFP should be means tested and DLA shouldn't be. Or why people already receiving fairly generous benefits via the Disability Living Allowance feel they should be able to hijack someone else's entitlement to a benefit meant exclusively for that sector of society. It's rather like you all demanding you get child benefit.

You are trying to tell me I can't understand pain and suffering unless I experience it myself? Now that is rubbish. I think you are trying to say I lack empathy right?I think several of the 'disabled people posting on this thread have come over as very 'poor me'.