living with a chronic condition (part 4)

Careful_with_that_Axe

Welcome Isolus. We only started putting user names in bold when we were replying to specific things said by specific posters. It seemed easier iyswim.

Can't wait til bloke finishing my fence beggers off - am dying for a hot bath to ease my aches.

TOBRUK

Hi Isolus, I have ME (almost housebound, lie down most of the time but do get around the house just about - I live alone) and have visited here before and they are very friendly and welcoming.

Hi again Bigzippy, hope your glands are a bit better now - there's always something! I haven't been here for a while now and not sure what has been going on to have changed the thread and all this on/off topic lark! Had a job to find you all again!!

Been in hospital for 6 days with abdo pain - went to surgery and doc got an ambulance to come and get me from the surgery! They let me out a week ago but have to go for a scan next Monday - cysts on ovaries, I suppose it's something new ha! It's certainly something I could have done without. It's left me absolutely shattered and I've had a few episodes with my stomach since being doubled up in pain and vomitting.

They sent me out and prescribed me oramorph - didn't realise until I got home and read the leaflet and saw it was morpharin!!

Unity

Careful_with_that_Axe wrote: »

Flamin Nora Unity! You're all down with it?! Maybe I should make a trip to you after THE WEDDING OF THE CENTURY (getting seriously excited *g*)
Seriously hope that you all improve fast.

Pipkin I'm a lupite, but when I get very tired, my feet don't pick up - like a type of drop foot, but it's very transient. Awful to suffer from it the whole time.

Got new ergonomic keyboard and it's larger than one on diddy laptop apart from the ergonomic layout. Must've taken me 10 mins to type this - many, many typos *g*

That'd be great CWTA how about you pick up my prescription while you're on?:D GP left it this morning - but since we're all ill, it's going to have to wait until someone is well enough to get it :rolleyes:.

Isolus wrote: »

*pokes head around the door*

Hi lovely people, i'm a sufferer of severe M.E (am bedbound with it) would i be welcome here?

Absolutely :T. I was dxd with fibro and m.e. back in 1994 secondary to various other things, so welcome - you're among friends.

Unity

TOBRUK wrote: »

Hi Isolus, I have ME (almost housebound, lie down most of the time but do get around the house just about - I live alone) and have visited here before and they are very friendly and welcoming.

Hi again Bigzippy, hope your glands are a bit better now - there's always something! I haven't been here for a while now and not sure what has been going on to have changed the thread and all this on/off topic lark! Had a job to find you all again!!

Been in hospital for 6 days with abdo pain - went to surgery and doc got an ambulance to come and get me from the surgery! They let me out a week ago but have to go for a scan next Monday - cysts on ovaries, I suppose it's something new ha! It's certainly something I could have done without. It's left me absolutely shattered and I've had a few episodes with my stomach since being doubled up in pain and vomitting.

They sent me out and prescribed me oramorph - didn't realise until I got home and read the leaflet and saw it was morpharin!!

Hi Tobruk,

We can't give medical advice on here so all I can do is sympathise and say that I've been prescribed this in the past, but developed an allergy - it made my mouth come out in ulcers. You're obviously in a lot of pain and Oramorph is very useful in short term pain relief. The pain clinic told me not to worry about addiction because it's being used to relieve pain, not to get 'high'.

Hope this helps :hello:

Ok CWTA - I am stepping away from the laptop before you sort me out for not resting:D.

Trouble is I can't get comfortable - if I lie down my chest hurts and if I sit up my nerve endings are going bananas _pale_ so the laptop takes my mind off it .

Isolus

Thank you so much all of you for the warm welcome, sending gentle hugs to each of you.

raeh

:hello: to all the new and old people posting, its lovely to see that a change of thread name can bring in people

back to work has left me in a bit of a flare at the moment and I'm feeling a bit negative because of the pain, so im trying to concentrate on the nice chat in here

Unity I hope you start to feel better very soon, so much all at once wasnt it? Has your son [or you?] plans for his birthday? I hope he feels better for it and can celebrate properly.

Tomorrow 'apparently' is going to be nice weather so I hope it brings a good day for everyone x

bigzippy

TOBRUK wrote: »

Hi again Bigzippy, hope your glands are a bit better now - there's always something! I haven't been here for a while now and not sure what has been going on to have changed the thread and all this on/off topic lark! Had a job to find you all again!!

Hi Tobruk I've been wondering where you beggared off to! Sorry to hear about your medical troubles (on top of the "norm":rolleyes:)...I hope they get it sorted soon. Does it require surgery? My sister had a cyst the size of a coke can on her ovary years ago and bounced back pretty quickly, if that helps at all?

The thread change and on/off topic malarky is a contentious subject for some methinks, but hopefully things'll settle down into a nice rhythm again. I'm still hoping soolin will put a link on the old thread to this one in her closing post...

Unity wrote: »

That'd be great CWTA how about you pick up my prescription while you're on?:D GP left it this morning - but since we're all ill, it's going to have to wait until someone is well enough to get it :rolleyes:.

Do you have a "flu buddy"? Someone that could come over and get the script and take it to be filled? Maybe one of DS's friends even?

raeh wrote: »

Unity I hope you start to feel better very soon, so much all at once wasnt it? Has your son [or you?] plans for his birthday? I hope he feels better for it and can celebrate properly.

If it helps Unity, t'other B2B's got a reader (her MOH's OH) for her wedding who's come down with oinkers and his doc reckons he should be ok for the weekend...

raeh wrote: »

Tomorrow 'apparently' is going to be nice weather so I hope it brings a good day for everyone x

I've been told the weather's gonna perk up through the week and last for the weekend...but tbh, I'm not holding my breath!! I'll only be devastated if the weather's carp
What did you do with your summer hols raeh? Anything nice?

pipkin71

Unity wrote: »

Pipkin - can I ask is the drop-foot part of MS? A friend of mine has this and had a support made at the hospital that greatly helps him. I bought and used a Rollator for a very short time after escaping the wheelchair, and must remember to put it on eBay :rolleyes:. It's an American one that doesn't have those bicycle type brakes on the handles - as the problems with my hands and wrists made these impossible. If you aren't actively pushing it along and leaning on it, the brakes kick in automatically. I use crutches now - I can't remember the name of the specially shaped handles, you sometimes see them on walking sticks, where they fit your palm. it's something like "Fischer" or "Fishwick" - I think :rolleyes:.

Hi Unity.

I have peripheral nerve damage, following a spinal injury which is causing the drop foot, as signals aren't reaching the brain that it needs to move, pick up ect.

I've recently started having problems with my hands - trigger finger being quite a problem at the moment, and the walking sticks are adding to the problems with my hands as I have to rely heavily on them

I've got an AFO for the foot, but it does rub and causes open sores if I'm not careful. It's a horrible plastic thing, but I tried an AFO made from fabric but it didn't give enough support.

How did you get on with the rollator?

pipkin71

bigzippy wrote: »

I don't even know what one is? Please explain for the thickos in the back?


My instincts tell me that if it's something that would aid with your walking/independance and is, in itself, an aid then it should be covered by the OTs.

Hi bigzippy.

This is a rollator. You can get different types.

http://www.discountwheelchairs.co.uk/c7126/Walking-Aids-Walkers-Rollators.html

I'm going to phone the OT tomorrow, to see what they say

pipkin71

Careful_with_that_Axe wrote: »

Pipkin I'm a lupite, but when I get very tired, my feet don't pick up - like a type of drop foot, but it's very transient. Awful to suffer from it the whole time.

Thanks Careful.

It's got worse over the last 12 months, my health in general has actually, but it is difficult - any sort of lip in the pavement, or going into a shop for example, means I catch it as I can't lift the foot.

Getting on trains and buses sometimes my foot wont cooperate, which can be embarrassing.

I do lose my balance quite a bit, but for most of the time, the sticks do keep me upright.