living with a chronic condition (part 4)

pipkin71

Unity wrote: »

but developed an allergy - it made my mouth come out in ulcers. You're obviously in a lot of pain and Oramorph is very useful in short term pain relief. The pain clinic told me not to worry about addiction because it's being used to relieve pain, not to get 'high'.

Interesting Unity, as I've been suffering with mouth ulcers lately.

Agree with the rest of your comments to TOBRUK. I've been taking oramorph for a while and no addiction, if that helps TOBRUK

TOBRUK

Hello again, had a sleep around 5pm and woke up at 6.45pm and didn't know whether it was morning or evening!

Hi unity

Unity
Hi Tobruk,
We can't give medical advice on here so all I can do is sympathise and say that I've been prescribed this in the past, but developed an allergy - it made my mouth come out in ulcers. You're obviously in a lot of pain and Oramorph is very useful in short term pain relief. The pain clinic told me not to worry about addiction because it's being used to relieve pain, not to get 'high'. Hope this helps :hello:

Thanks for that Unity.

Well I saw a pain clinic nurse (she was wonderful) at the hospital and she wasn't a bit worried in me having this. She wasn't best pleased with them, when I went into hospital they asked me for my prescription medicine because they would need them so I managed to get my sister to fetch them in. I didn't know what happened when you went into hospital! They locked them into a draw section of my locker and they dispensed them when they did the drug round.

Well amongst my tablets were co-codamol and I was never given them. The pain nurse was cross because they had been giving me paracetamol, she said those are absolutely useless for you, I shall have to get them to give you the co-codamol and you are also allowed tramodol, you can ask for them! I'd never heard of tramadol. She also wanted to give me ametriptilin (no idea why) - I told her that I thought I'd had them before but they didn't agree with me. She said that we could try them and if I was fine with them we should then increase the dose as she would see me the next day. Trouble is I was discharged the next day before I saw her again! I wonder if they will arrange for me to see her again? Do you think? Anyway, I shall be seeing my GP on Friday so hopefully I shall remember to ask her, I'll see if she gives me a repeat of the amitriptilin anyway.

Bigzippy: Hi Tobruk I've been wondering where you beggared off to! Sorry to hear about your medical troubles (on top of the "norm":rolleyes:)...I hope they get it sorted soon. Does it require surgery? My sister had a cyst the size of a coke can on her ovary years ago and bounced back pretty quickly, if that helps at all?

Thanks Bigzippy, I hope it gets sorted too I've got a scan on Monday for them to investigate further and see the surgeon a week Tuesday so I'll see then what they decide to do. They will know what kind of cysts they are and the size!

I've just had a bad episode, well from Friday night until yesterday evening, doubled up most of the time and vomitting - I'm exhausted! It's just so nice to have some relief and be able to lie down!
Sorry if I'm rambling or breaking the rules - whatever they are! I've got brain fog!;)

Paparika

OMG the flaming council / social services..

Had a visit from the council surveyor today she is due tomorrow but was in the area..
(I'm a council tenant)

She came to see my damp (ooer) in my bedroom which i have had for 14 years that i have been here, spoke about a ramp so i can stop being housebound.

She said because i have a communal walkway outside my home, i will not be allowed a ramp... ok so how do i get out with wheelchair?!!?

she suggested that i move, so have to go thru more blinking paperwork join the millions wanting to be re homed, but the good side i guess is i get to bid on homes already adapted

so now need to go through my tatt and i have lots, so when the time comes its all organized, (yes i know it could take years)

TOBRUK

Thanks Pipkin, I was worried when I realised what Oramorph was. On the bottle it says take twice a day but I haven't been taking it twice a day, I only take it if I have extreme pain and then I'm worried to take it. You and Unity have eased my mind a bit about taking it. I'll see what my GP has to say when I see her on Friday and whether she prescribes it when this bottle finishes.

kassandra

Isolus wrote: »

Thank you very much bigzippy (hope i did that right!)

Welcome Isolus, glad you found us!

TOBRUK wrote: »

Hi Isolus, I have ME (almost housebound, lie down most of the time but do get around the house just about - I live alone) and have visited here before and they are very friendly and welcoming.

Hi TOBRUK, good to see you again!

TOBRUK wrote: »

Well amongst my tablets were co-codamol and I was never given them. The pain nurse was cross because they had been giving me paracetamol, she said those are absolutely useless for you, I shall have to get them to give you the co-codamol and you are also allowed tramodol, you can ask for them! I'd never heard of tramadol. She also wanted to give me ametriptilin (no idea why) - I told her that I thought I'd had them before but they didn't agree with me. She said that we could try them and if I was fine with them we should then increase the dose as she would see me the next day. Trouble is I was discharged the next day before I saw her again! I wonder if they will arrange for me to see her again? Do you think? Anyway, I shall be seeing my GP on Friday so hopefully I shall remember to ask her, I'll see if she gives me a repeat of the amitriptilin anyway.

I have Tramadol and Amitriptyline. The Amitriptyline is prescribed for me to help me sleep. The serotonin in it is supposed to help too. Can't remember why!

bigzippy

pipkin71 wrote: »

Hi bigzippy.

This is a rollator. You can get different types.

http://www.discountwheelchairs.co.uk/c7126/Walking-Aids-Walkers-Rollators.html

I'm going to phone the OT tomorrow, to see what they say

Cheers dude, I thought it might've been something like that but didn't know the technical word I'm always slightly envious of the old dears with them that have a seaty bits in the middle and can have a sit down when they like :rolleyes:

TOBRUK wrote: »

Hello again, had a sleep around 5pm and woke up at 6.45pm and didn't know whether it was morning or evening!

I know that feeling well!!

TOBRUK wrote: »

Well amongst my tablets were co-codamol and I was never given them. The pain nurse was cross because they had been giving me paracetamol, she said those are absolutely useless for you, I shall have to get them to give you the co-codamol and you are also allowed tramodol, you can ask for them! I'd never heard of tramadol. She also wanted to give me ametriptilin (no idea why) - I told her that I thought I'd had them before but they didn't agree with me. She said that we could try them and if I was fine with them we should then increase the dose as she would see me the next day. Trouble is I was discharged the next day before I saw her again! I wonder if they will arrange for me to see her again? Do you think? Anyway, I shall be seeing my GP on Friday so hopefully I shall remember to ask her, I'll see if she gives me a repeat of the amitriptilin anyway.

I got amitriptyline when I was having loads of pain and nerve spasms. It helped immensely. There are side effects but the relief it gave me (initially at least) was well worth it! I have Tramadol too, which is a blessed relief when you need it, but I have been known to combine them with cocod and diclo...:rolleyes:
Weirdly, having watched a few things etc, it seems that the sort of fibro nerve inflammedness and spasms have to in common with epilepsy too, which explains the choice of pregabalin/gabapentin that the docs are beginning to dish out.

Let us know how the scan goes etc.

pipkin71

bigzippy wrote: »

Weirdly, having watched a few things etc, it seems that the sort of fibro nerve inflammedness and spasms have to in common with epilepsy too, which explains the choice of pregabalin/gabapentin that the docs are beginning to dish out.

I've been taking the gabapentin for a while now, and have to say it has really helped the nerve pain. Before I started taking it, I honestly felt like chopping off my foot to get some relief from the pain.

I'm also taking the tramadol - slow release though, and it all helps

Paparika

Just a question, i forgot to ask the doctor this actually..
any of you get what i can only describe as stings..

when in France i had a stabbing sensation on my leg like i was being stung, OH and my mum thought maybe something stuck in my trousers, and when i looked there was nothing there and it continued for a few hours, then last week i told OH that i had 'stinging sensation' on one of my toes, could he look as i couldn't see anything... again nothing to be seen, and for the past week the feeling has moved to the bottom of my foot on the fleshy bit, just below the toes..... nothing again to be seen, its strange, it doesnt hurt bad, just feels like i am being stung.

anyone get this... is this nerve pain at the nerve endings?

no diagnosis i know, just wanted to know if anyone else got this..
i will make a list to ask the neurologist next week and that will be on the list

TOBRUK

bigzippy wrote: »

Cwhen they like :rolleyes:

I know that feeling well!!

I got amitriptyline when I was having loads of pain and nerve spasms. It helped immensely. There are side effects but the relief it gave me (initially at least) was well worth it! I have Tramadol too, which is a blessed relief when you need it, but I have been known to combine them with cocod and diclo...:rolleyes:
Weirdly, having watched a few things etc, it seems that the sort of fibro nerve inflammedness and spasms have to in common with epilepsy too, which explains the choice of pregabalin/gabapentin that the docs are beginning to dish out.

Let us know how the scan goes etc.

I take baclofen (90mg a day) for spasm, also have pregabalin 500gm a day, cocodamol. Now amitriptyline 10mg (apparently low dose to begin) lanzoprazole. I also have domperidone prescribed but have stopped taking it.

I shall let you know the result of scan - I should know in 2 weeks when I see the consultant, although the scan is a week today I doubt if I'll be told that day - I don't expect they are allowed to say their findings there and then.

black_paw

i don't have stings, but have lots like pins and needles ..numbness...and stab and twist knife feeling !