living with a chronic condition (part 4)

kassandra

jazabelle wrote: »

Oh that's awesome! If you need a guinea pig to try things out, I will volunteer! I have yet to try reiki or crystal therapies. Mixing the two is great idea, people can visit to heal and beautify at the same time!

Blimey - what does your daughter have done?! I hate how much they charge to do women's hair. My grandad was moaning the other day about it costing £8 to do his hair! I was like are you joking, you can't get a trim for less than £30 in town for us!!

I'll remember the tomato sauce tip, thanks!

Thank the gods you offered cos DD1 laughed and said "like I'd trust you!" charming!!!:eek::rotfl: She always has a re-style as they put it but it never looks any different to me other than them cutting it too short on her recent visit. She has highlights too.

pipkin71 wrote: »

You sound busy Kassandra

I wish you well with your studies, and may well start a topic on reiki, as I'm quite interested in that.

It sounds like I'm doing a lot more than I actually am. I'm in 10-12 then 1-3pm on a Monday then 10-12 on a Wednesday until March when I add 10-12 on a Tuesday as the Reiki doesn't start until then, although we do a litttle Reiki on the Alternative Therapies course. So I think I can just about manage it what with the new tablets settling down a bit and seeming to quite helpful. Thankyou pip :T

arealbasketcase wrote: »

Hi Everyone

just wanted to pop in and say thank you for the wonderful support and advice you gave me last night.

Sadly my mother-in-law passed away this afternoon which has left us all feeling very sad. In the end it was a blessing.

I have spoken today with several people regarding my mum and I feel a little more prepared for what is ahead. The consultants secretary has arranged a further consultation for my mum, unfortunately not until next week, but at least this time I can go with her and my dad and, hopefully, if nothing else, I will be albe to take in a bit more and be able to help my mum and dad more.

I have also spoken with the thorasic specialist nurse, who very gently tried to explain just how poorly my mum is.

Thank you, thank you, thank you, for being around when I needed support.

I hope everyone makes miraculous recovery and gets all the help and support they need.

Aaaaww, I'm so sorry to hear that. Hope OH is bearing up ok. Let us know how your mum gets on xxxx

Anyone heard from Sammy yet? I've only just caught up with the thread as I've been so busy helping my friend. I'm quite worried about her, don't like the thought of her being on her own. I wonder if she can get some sort of system that alerts someone in an emergency. Can't think of the name for them but I'm sure ykwim, they have them in sheltered housing???

If you come on Sammy just wave, you don't have to post anything if you're not up to it but just let us know you're ok, alright hun?

pipkin71

Careful_with_that_Axe wrote: »

pipkin I very rarely feel the cold (which saves me a fortune on heating!), but I've had one of those days where I'm hot then cold then hot again. Hot flushes don't help too much either. I always get cold if I'm overtired - could that be the case with you too?

I am very tired careful, as I suffer from insomnia and every so often it overwhelms me. I've felt quite teary today, and of course felt the cold, leading to aches and feeling sorry for myself so more tears It's a bit of a vicious circle really, but managed to grab 20 minutes whilst watching Law and Order - and missed the ending. Typical!

Are you having the cyst removed as a day patient?

bigzippy

Careful_with_that_Axe wrote: »

bz He's quite poorly - he's had a small bleed on his brain (they think - from a high temperature) but they think the whole thing is down to an inner ear disorder. Doc will be going to see him again tomorrow and I'll spend some time there as well. He ws quite obviously feeling really sorry for himself, poor love.
How is Mrs S? *g*
Love the photos!

Keep us informed, one way or the other, won't you?
Loving being Mrs BZ feels...peaceful is the best way I can describe it?

Careful_with_that_Axe wrote: »

pipkin I very rarely feel the cold (which saves me a fortune on heating!), but I've had one of those days where I'm hot then cold then hot again. Hot flushes don't help too much either. I always get cold if I'm overtired - could that be the case with you too?

I'm always cold if I'm tired. And [STRIKE]DF[/STRIKE] DH(!) has been the same this week too...

jaz I know what you mean - my MIL had one a while ago, it cost something like £2.50 a week to have and it was patched into the phone line with a button on a lanyard thing round her neck (not that she ever wore it :rolleyes:) and if they got no response from ringing her (the speaker thing broadcast them asking if she was alright and there was a remote mic in the thing round her neck) or she responded that she was in trouble they would notify the next of kin and/or emergency services. It's a great service, I can find out what it was called if sammy's interested? Hope you're ok sammy.

Careful_with_that_Axe

bz/sammy My Mum also had somethign like that but it ws a fall alarm - it detected whether she was upright or not and prompted someone to telephone her if it registered she had fallen. Then if they had no reply, someone went round. It worked when she remembered to wear it!

mesb210776

Please let us know you're ok sammy, I know it can leave you very drained after a seizure (1 of my friends has them). Thanks pipkin, after going to useless physio yesterday, went to docs as have started getting numbness and pins and needles in leg as soon as I stand up. He has now referred me to spinal neurosurgery..... at a private hospital!! On the NHS!!!! Just got to wait for an appointment now...... a bit scared it will mean surgery.... haven't really got time to be laid up iyswim....
Hello to everyone and hope we're all in for a good day

Paparika

Morning all

ohh i feel so tired and blughhhhh... i have no energy today, and i need to snap out of it.

I really really really need to declutter and i just don't have it in me today, or yesterday or the day before....

my bum aches....as if I've been over groped, not had one grope i really want to slap myself accross my face and say pull yourself together, i think i am on a downer from yesterday at the neuro, there is nothing more they can tell me right now, so they need more tests etc to declare if it is ms or not....i think i built myself up thinking that yesterday was gonna be the day, they have the results and can see things are progressing in my body.. i really thought.. this is it I'll get told, then i can start on dealing with it etc....

ahhh well whinge over, that felt better, sorry


oh my so much going on here, CWTA my thoughts are with you with your dad.
mesb210776 hope they get your appointment through soon
Hello Mrs BZ, loving those piccys
pipkin71 i'm having major sleep issues too, i have sleeping tablets, but as yet not taken one, i don't feel brave enough, but i bet as soon as i do i should have a decent nights sleep
Jazz hope you feel better this week with the support here

and hello to everyone else,

Got OH to take me to tescos yesterday, choose lots of healthy fruit and veg etc.. then OH dropped me home with the shopping DS and me packed it away then promptly had burger and chips, ohhhhh i was naughty, especially after i had rivita for lunch.

sammy10

Morning everyone Sorry for worrying you all, I didnt even know I had posted on here. I tend to do odd things before a big seizure. My DH was at the pub but I have an sos setting on my phone where I just press a button and it lets him know I need help so he came home.

I slept most of yesterday and as well as the normal pain that follows a seizure, I managed to hit my head on the coffee table as I fell.

Thank you all for your good wishes.

Hope you are all ok today and cwta hope your dad is feeling better.

mesb210776

sammy10 wrote: »

Morning everyone Sorry for worrying you all, I didnt even know I had posted on here. I tend to do odd things before a big seizure. My DH was at the pub but I have an sos setting on my phone where I just press a button and it lets him know I need help so he came home.

I slept most of yesterday and as well as the normal pain that follows a seizure, I managed to hit my head on the coffee table as I fell.

Thank you all for your good wishes.

Hope you are all ok today and cwta hope your dad is feeling better.

Phew... you had us all a bit worried there... glad you have someone to help you!
Paparika just been onto choose and book system to be nosey and it has dates for me now, so have booked for 1st October!! 2 weeks tomorrow!

Paparika

mesb210776 wrote: »

Phew... you had us all a bit worried there... glad you have someone to help you!
Paparika just been onto choose and book system to be nosey and it has dates for me now, so have booked for 1st October!! 2 weeks tomorrow!

wow thats fantastic and so quick well done

mesb210776

I know, the wonders of going private on the NHS!!!