living with a chronic condition (part 4)

pipkin71

Sorry to hear of your loss arealbasketcase

jazabelle

I wasn't around when you were posting arealbasketcase, but just wanted to say I am really sorry to hear your news.

Ruby_Moon

sammy10 wrote: »

Im new and they dont know me but have been supportive to me.

As I said before you do come across as quite aggressive, maybe that hasnt helped.

I may be coming across as very upset (or aggressive you call it) now because lots of people have been rather unpleasant from the beginning.
My first posting was in no way agressive or negative, as explained, I was nervous about posting and very tentative.

All that has happened is the users on here have shown that I was right to be nervous because look at the welcome I did not get!

Ruby_Moon

jazabelle wrote: »

It is really difficult jumping in when you don't know people. I got some really warm welcomes and nice responses to my introduction post, but then when I joined in once more, I didn't get a single response.

I realise it's difficult for you all as well, you know each other, know each other’s history so of course you're naturally going to be talking to each other, but it is difficult for new people.

Perhaps we should have something of a fresh slate - introduce ourselves, maybe where we're from, and what conditions we have? I'm sure you've all done it a million times, but would help to find common ground? I would love to find out there are people near me with similar conditions and what help they've found from their doctors, etc.

For example I'm finding it really difficult to find an organisation near me to help me fill out the disability living allowance forms. I've tried DIAL, CAB, Disability Essex and Essex Disabled People's Association with no luck. Obviously I'm in Essex, Colchester to be exact, and everywhere seems to be an hour away or more that. If there is anyone near me - do you know anywhere that could help?

As for my chronic conditions, I have Fibromyalgia, Hypermobility, Chronic Fatigue, Metatarsalgia, Asthma and flat feet!

Thank you Jazabelle!!

Nice of you to welcome me unconditionally.

What is Metatarsalgia if you diont mind me asking?

jazabelle

Ruby_Moon wrote: »

Thank you Jazabelle!!

Nice of you to welcome me unconditionally.

What is Metatarsalgia if you diont mind me asking?

It's okay Ruby, I hope the recent problems haven't put you off and you continue to post here! New blood is always nice (says me, as new as you really! )

It's okay, I've only just put a name to it myself, after having it for 11 years! It's basically pain in the ball of the foot, usually due to a deformity in the metatarsal bones of the foot. I believe this usually happens in the womb. The podiatrist described them as facing towards the body, but not sure how it works. My foot looks normal, I think! It's not a huge problem, it's just that it aches often and is very tender to the touch. The only reason I mentioned it was because I am curious to whether it led to my Fibro.

soolin

I would just like to remind users of the following from Martin. I have referred this across just so the team can take a look but can we please get back on topic again.

Remember, MoneySaving should be fun. Everyone using these boards is here for the same reason, to save money. The site’s motto is “Please be nice to other MoneySavers”. It should go without saying, but please remember that when using this forum. Please report any abusive/offensive/racist comments to [EMAIL="abuse@moneysavingexpert.com"]abuse@moneysavingexpert.com[/EMAIL].

Ruby_Moon

jazabelle wrote: »

It's okay Ruby, I hope the recent problems haven't put you off and you continue to post here! New blood is always nice (says me, as new as you really! )

It's okay, I've only just put a name to it myself, after having it for 11 years! It's basically pain in the ball of the foot, usually due to a deformity in the metatarsal bones of the foot. I believe this usually happens in the womb. The podiatrist described them as facing towards the body, but not sure how it works. My foot looks normal, I think! It's not a huge problem, it's just that it aches often and is very tender to the touch. The only reason I mentioned it was because I am curious to whether it led to my Fibro.

Ooo it does sound like it could have done.
Was it always painful for you, even as a child? I ask because it could be pain of Fibro that makes it worse too.
I don't know. All these conditions and they are all connected.
Its very interesting to find about how much of these auto immune disorders are related to foods we eat. I read an article (will have to find it) about a pesticide that was used years ago that is thought to have contributed to certain auti I disease.
It certainly makes me aware of what I eat!

jazabelle

Ruby_Moon wrote: »

Ooo it does sound like it could have done.
Was it always painful for you, even as a child? I ask because it could be pain of Fibro that makes it worse too.
I don't know. All these conditions and they are all connected.
Its very interesting to find about how much of these auto immune disorders are related to foods we eat. I read an article (will have to find it) about a pesticide that was used years ago that is thought to have contributed to certain auti I disease.
It certainly makes me aware of what I eat!

It started being painful when I was about 11, and then the fibro started at 15, so I would say the fibro hadn't caused the foot stuff - although it might have been it starting up, I don't know!

In regards to food, I saw the pain doctor recently and he told me to give up all dairy, chocolate, fizzy drinks (even diet) and basically anything fun or nice! I haven't, but was curious if anyone had felt any benefit from changing their diets?

These things all do seem to be connected, don't they!

sammy10

arealbasketcase, Im so sorry to hear your news. Hope you and your oh have plenty of support. xx

suep

Hi everyone, I was on the old thread but have had a lot going on in my personal life lately so havn't been able to post much. To those that dont know me Im Sue, Im 45 and was dx with Fibro 13 years ago, also have IC and suffer from almost constant headaches and migraines and loads of stress. It's nice to see some old faces, and lovely to meet some newbies :hello: Kass, well done with the courses, and good luck with the hairdressing. I have scanned the last few pages and cant remember enough to reply to much. cwta I hope you've recovered from the accident.
Im going to stay with family for a few days tomorrow as I need a break, I will take my laptop but Im not sure how often I'll get online.

I've been doing daily meditations lately and they are getting addictive, it takes my mind off the pain and helps me to relax, also it doesnt cost anything