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living with a chronic condition (part 4)

edited 30 November -1 at 12:00AM in Disability Money Matters
412 replies 20.5K views
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  • raehraeh Forumite
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    raeh I am so sorry to hear about kipper. How very sad for you and no doubt, as you say, this upset has contributed to you feeling low. Hope the 11 week old (what sort?) helps to fill the gap left. How about the name "Guilty"?! *g*


    thank you :) as we got her from the rottie rescue she is a rottie ;) shes 11 moths old as we felt a new baby would be hard work for me. The name they seem to have got their hearts set on now is Trinity and not Mabel as i hoped.
    Im not sure if iv missed the joke about calling her guilty :confused: was that aimed at me?
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  • PaparikaPaparika Forumite
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    welcome please come in Rubymoon, take a seat :)
    we are all a bit excited BZ gets married today, and we've all had a little too much bucks fizz..

    hiya all, been relaxing at OH house, where my right thumb has gone all funny, its painful and numb.....i think something is flaring up again,thank god i have the nuro appointment tuesday afternoon.

    Hope everyone has had a good weekend so far..

    raeh sorry to hear about kipper (hugs to you)
    Life is about give and take, if you can't give why should you take?
  • raeh No! No way! I've always thought it was a good name for a dog and slightly humorous - calling a dog back by yelling "Guilty".
    Sorry you took it that way - it wasn't meant like that at all?
    I must go, I have lives to ruin and hearts to break :D
    My attitude depends on my Latitude 49° 55' 0" N 6° 19' 60 W
  • edited 13 September 2009 at 11:08AM
    Jojo_the_TightfistedJojo_the_Tightfisted Forumite
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    edited 13 September 2009 at 11:08AM
    This is a good one, considering my earlier posts about rheumatology appointments...

    Had appt on 1 Sept, had blood tests in order to assess suitability for methotrexate injections. Told I needed to return in 8 weeks. Appointment came through last week for 17 November - 11 weeks (so far so good). Letter came yesterday. Cancelled and rebooked for 12 January - 19 weeks. Sigh. It would be quicker to be discharged and rereferred every time, as the government has only set targets for new patients, not follow ups. Strange how the patients without targets seem to get cancelled so frequently when the hospital proudly states that all waiting time targets are being met, isn't it?


    I am a bit worried, though. I have a three hour exam in October as part of my degree. The tutor at day school has just asked a general question to the group 'can you actually write non stop for 3 hours?'. It hadn't occurred to me before, as I have word processed everything, and as it costs to get a doctor's report to get on the list to get a grant to get assessed for the disabled students' allowance, I'm not able to get any rest breaks.

    Does anyone have any ideas what I could do to keep my hands working for the period? I'm wondering if fingerless gloves might have some effect. Or recommendations for the best pens to use?

    Stuff the practicalities of travelling to Holborn for the exam. I'm used to that kind of nonsense - I shall just leave 5 hours before the exam and take lots of meds in the days leading up to it, hoping that I don't wake up with a flare on the morning. Now I'm worried about actually being able to do the exam itself.
    I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.
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  • Hello Folks - I have an appointment at the Pain clinic :j:jwhat happens there please? Thanks
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  • UnityUnity Forumite
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    raeh wrote: »
    thank you :) as we got her from the rottie rescue she is a rottie ;) shes 11 moths old as we felt a new baby would be hard work for me. The name they seem to have got their hearts set on now is Trinity and not Mabel as i hoped.
    Im not sure if iv missed the joke about calling her guilty :confused: was that aimed at me?

    I'm glad you have a new four legged friend in the house :D how old are they when fully grown?
    raeh No! No way! I've always thought it was a good name for a dog and slightly humorous - calling a dog back by yelling "Guilty".
    Sorry you took it that way - it wasn't meant like that at all?

    I've always thought a good name would be 'Fire' try shouting that and see what reaction you get :rotfl:.
    This is a good one, considering my earlier posts about rheumatology appointments...

    Had appt on 1 Sept, had blood tests in order to assess suitability for methotrexate injections. Told I needed to return in 8 weeks. Appointment came through last week for 17 November - 11 weeks (so far so good). Letter came yesterday. Cancelled and rebooked for 12 January - 19 weeks. Sigh. It would be quicker to be discharged and rereferred every time, as the government has only set targets for new patients, not follow ups. Strange how the patients without targets seem to get cancelled so frequently when the hospital proudly states that all waiting time targets are being met, isn't it?


    I am a bit worried, though. I have a three hour exam in October as part of my degree. The tutor at day school has just asked a general question to the group 'can you actually write non stop for 3 hours?'. It hadn't occurred to me before, as I have word processed everything, and as it costs to get a doctor's report to get on the list to get a grant to get assessed for the disabled students' allowance, I'm not able to get any rest breaks.

    Does anyone have any ideas what I could do to keep my hands working for the period? I'm wondering if fingerless gloves might have some effect. Or recommendations for the best pens to use?

    Stuff the practicalities of travelling to Holborn for the exam. I'm used to that kind of nonsense - I shall just leave 5 hours before the exam and take lots of meds in the days leading up to it, hoping that I don't wake up with a flare on the morning. Now I'm worried about actually being able to do the exam itself.

    When I was at uni, they wrote to my GP to ask how my disabilities affected me - hence I didn't have to pay for a report ;), I only had to sign a form to confirm that my GP could speak to a third party about my condition. It might be worth asking them to do this.

    Looks like the "Indian Summer" is at an end and the weather is back to normal :( - bummer
    Some people hear voices, some see invisible people. Others have no imagination whatsoever :D
  • jojo All I can think of is an ergonomic rollerball pen. I got mine from a craft shop but heard a rumour that Tesco stocks them sometimes. I'll wandrer off and try to find a link for them so you can have a look see.

    mousey Can't help wih pain clinc info I'm afraid.

    Unity It's stll sunny here - will try to send some your way.
    I must go, I have lives to ruin and hearts to break :D
    My attitude depends on my Latitude 49° 55' 0" N 6° 19' 60 W
  • poohbear59poohbear59 Forumite
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    bz Have an amazingly fantastic day. You probably wont see this until after but I am thinking of you all day!!

    cwta Just raid about you being knocked down. You poor thing I hope you are feeling better

    I am days away from having read any posts on here. I will try to get DH to go to work tomorrow and I can then catch up. He isn't well again, black dog, and I feel that I am causing his depression as we can't do any of the things we planned to when the kids left home.
    Grocery challenge £35/£200 business mortgage £13798))''(+ Barclay's business kitchen loan £7116=Total of £20914, 69% paid off was £68105 Weight to lose [STRIKE]42lbs[/STRIKE] 0 to go!! :D PPI claimed and received £13527 Save 12k in 2017no 116. £0/5000
    'I had a black dog, his name was depression".
  • pooh I am sorry that you have problems, but you really can't hold yourself responsible for someone else's emotional state. That's a hell of a burden to place on yourself. Have you or him or both of you had any counselling at all?

    It's wedding time - raise your glases to Mr & Mrs BZ!
    I must go, I have lives to ruin and hearts to break :D
    My attitude depends on my Latitude 49° 55' 0" N 6° 19' 60 W
  • jojo
    http://www.staedtler.co.uk/ergonomic_rollerballs_uk.Staedtler
    This is similar to the one I have but the one I got was about £6.50. I don't know if you can find somewhere you can physically try it out first to see if it will suit you or not.
    I must go, I have lives to ruin and hearts to break :D
    My attitude depends on my Latitude 49° 55' 0" N 6° 19' 60 W
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