What Is Your Illness Or Who Ever You Care For

mummytofour

I have 2 boys with ASD aged 8 and 3. I am finding it harder to come to terms with the 3 yr old having ASD as its worse than the 8 yr old and is he quite delayed and has real communication problems.

I am also a full time student and have 3 oher children aged 12.10 and 4, all totally normal (ish)

starnight_2

I'm a working single mother who is bipolar. At the minute my Ds is being assessed for Asperger's. Love him dearly and I couldn't imagine him any other way, even when he's 'acting up'.

elfen

LadyMorticia - it's a possibility. There's definitely more than me out there with this

dogcat_2

Hi I have Ulcerative Colitis...varies from day to day...my ulcer is way down in my anal passage which I've been told is one of the hardest places to treat.:eek:..my son has Tourettes too.

fatou256

elfen wrote: »

yorkiegal - you're the first person I've ever seen to have the same as me. I'm not on my own then.
...
I hate it how when people see a physical sign of an illness or hear you have a mental health problem that you're automatically a thicko and cannot understand basic sentences. I want to go to uni and get a job in the area I love (media, film and TV) as I WANT to prove that BPD does not stop you living the life you want, it just inhibits you.

I have borderline personality disorder, recurrent depressive disorder , dissociative amnesia and also suffer from hallucination and paranoia/delusions .

i agree with you point many point the attitude of some mental healh staff left a lot to be desire. I had soem who refuse to approach me as i am told to be treatment resistant or difficult to manage !

like you i have also problem in social places to the point i don't go out unless i really need too and with supervision .. i ended up geting lost all the time and in a confused states .

My day has to very organised as i cannot cope with new situation and like you too i live in fear and this is extremely hard to live with.

not many people do not know what is BPD or what is like to live with it unless yo have ti or live with someone who has it

dannimaycox

I have Spinal Muscular Atrophy Type 2, it's a rare genetic neuromuscular condition which means that the messages that my brain sends out to my muscles gets blocked because they are unable to travel along the nerves, this results in my muscles wasting away. I have been in a powered wheelchair since i was 2, i'm now 18. I cannot move my legs, or my upper arms and i have little strength in my hands. I cannot dress myself, shower myself, toilet myself and i have to be turned over in the night. I have an inneffective cough, so every cold i get is life threatening because i usually end up with pneumonia because the muscles in my lungs aren't strong enough for me to cough so any secretions i get end up just pooling in my lungs. I have to use a Cough Assist Machine which helps me to cough when i need to by forcing air into my lungs under pressure for 2 seconds and then sucks it straight back out to give me a bigger cough. I use a Bi-Pap machine which helps me to breathe overnight and helps to keep my airways open and my lungs as clear as possible.

I also have scoliosis, due to the SMA, which has been fixed by spinal fusion with titanium rods, my scoliosis was the worst they had ever seen, but after 7 years of 6 monthly operations my spine is now pretty much straight.

I also have osteoperosis/osteopenia, also due to my SMA, i have infusions every 3 months and a tablet once a week to strengthen my bones.

Asthma
Bronchitis
PCOS
And to top it all off, i now have a fungal nail infection in my big toe nail...great! :rolleyes:

Paparika

dannimaycox welcome hun enjoy your stay

dannimaycox

Thank you Paprika

mummyslittleboy

Hi Everyone,

My son and I are both hypermobile as am getting older the pain is getting worse but I am still managing, My son also has a vulgus dyformity,hypotonia, speech and language delay and fine and motor skill delay, but I love him to bits and he is improving.

Paparika

mummyslittleboy wrote: »

Hi Everyone,

My son and I are both hypermobile as am getting older the pain is getting worse but I am still managing, My son also has a vulgus dyformity,hypotonia, speech and language delay and fine and motor skill delay, but I love him to bits and he is improving.

oo my doctor said i was slightly hypermobile.. wasn't sure what it means..