hidradenitis suppurativa

anyone else suffer from an acute form of this, i do and its excruciating, it actually stops you using the arm thats affected, the antibiotics are crap but you take them just to reduce it reacurring quicker, there is no cure i've already had my tracts removed under my left arm and skin grafts but it doesnt do that much to relieve the problem.
Anyone else?
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Replies

  • sharon59sharon59 Forumite
    1.1K Posts
    hi strong96 -I do not suffer the same illness as you but just wanted to welcome to the forum.I googled your illness and it sounds like you have a lot to cope with.Sorry your pain is not under control.Wishing you well and keep posting.
    sharonx
    :j this money saving is such fun:T
  • I suffer from this as well. The pain I experience almost weekly from this alone drives me mad. No point with the antibiotics, they dont work. Under arms, under breasts, and groin area all scarred, ugly. I think, its a case of grinning and bearing to be honest, I sympathize with anyone who has this problem, it really sucks.:confused:
  • I to suffer with this and have done for over 10 years. I do not have it anywhere a part from my groin area and dred getting it under the arms! I'm currently thinking of a DLA claim but having done some research on the net, it doesn't look like i will be succesful in getting it. anyone else have experience of claiming with this condition?
    DMP Mutual Support Thread Member No 315
    Married 03/04/2010
    with many thanks to MSE Wedding board
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  • Hi, I have just been diagnosed with HS, despite suffering for years! I was prescribed the antibiotics which started working but then lost effect. The worst thing about these pills is that they are known for causing thrush! I got an almighty bout of thrush like I have never experienced before and then developed oral thrush too which made it too painful to eat! In the end I just stopped taking the pills and had to cut the boils open to relieve the pain. It sounds horrendous but I'm sure you can understand how easy it is to be driven to such extreme measures!! My doc said the pills are the only way to treat them and that I should avoid surgery at all costs because most of the time the problem comes back anyway! Sorry There's no cheery advice or anything, but I do understand what you're going through!
  • Former_MSE_AndreaFormer_MSE_Andrea Former MSE
    9.6K Posts
    1,000 Posts Combo Breaker I've helped Parliament Rampant Recycler
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    Hi everyone

    We've been asked by the owner of a support website if they can post it here to help you. As we don't usually permit sites to advertise I've posted it for them. It's Hidradenitis Suppurativa Support.

    The person who runs the site is an MSE forum user and we're very happy for them to answer questions here if you have any about their site.

    Andrea :)
    Could you do with a Money Makeover?


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  • strong96strong96 Forumite
    127 Posts
    well i put it on my latest renewal as it is something other than my arthritis, not sure if it affected my claim but i now have indefinte period instead of every 2-3 years. i know what you mean about the scaring its ugly to say the least, i have found going on a stand up sunbed once a week actually has reduced the flar ups, as it dries the skin, not a great a solution but hey it works so i dont care
  • lorweldlorweld Forumite
    5.6K Posts
    I've been Money Tipped!
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    Yep o/ me too:(

    Just back from A&E after having an incision and drainage done:o

    It really sucks.
    :hello:
  • heatherw_01heatherw_01 Forumite, Board Guide
    6.3K Posts
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    I am a long time sufferer of Hidradenitis Suppurativa. It is so painful and embarrasing, I just wish there was something that could be done :(

    The last flareup I had, I couldn't walk properly :(
    I'm the Board Guide on Quick Grabbit, Freebies, Overseas Holidays & Travel Planning and the UK Holidays, Days Out & Entertainments boards. I volunteer to help get your forum questions answered and keep the forum running smoothly. Board guides are not moderators and don't read every post. If you spot an illegal or inappropriate post then please report it to [email protected] (it's not part of my role to deal with this). Any views are mine and not the official line of MoneySavingExpert.com.
  • strong96strong96 Forumite
    127 Posts
    they call it an orphan disease and no cure, not good to hear when you have to suffer it
  • heatherw_01heatherw_01 Forumite, Board Guide
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    Anyone sucessfully claimed DLA?
    I'm the Board Guide on Quick Grabbit, Freebies, Overseas Holidays & Travel Planning and the UK Holidays, Days Out & Entertainments boards. I volunteer to help get your forum questions answered and keep the forum running smoothly. Board guides are not moderators and don't read every post. If you spot an illegal or inappropriate post then please report it to [email protected] (it's not part of my role to deal with this). Any views are mine and not the official line of MoneySavingExpert.com.
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