hidradenitis suppurativa

strong96 · 20 January 2009 at 9:39AM

anyone else suffer from an acute form of this, i do and its excruciating, it actually stops you using the arm thats affected, the antibiotics are crap but you take them just to reduce it reacurring quicker, there is no cure i've already had my tracts removed under my left arm and skin grafts but it doesnt do that much to relieve the problem.
Anyone else?

sharon59 · 20 January 2009 at 10:07AM

hi strong96 -I do not suffer the same illness as you but just wanted to welcome to the forum.I googled your illness and it sounds like you have a lot to cope with.Sorry your pain is not under control.Wishing you well and keep posting.
sharonx

Justice1_2 · 21 January 2009 at 11:12PM

I suffer from this as well. The pain I experience almost weekly from this alone drives me mad. No point with the antibiotics, they dont work. Under arms, under breasts, and groin area all scarred, ugly. I think, its a case of grinning and bearing to be honest, I sympathize with anyone who has this problem, it really sucks.

cleomolly · 22 January 2009 at 4:24PM

I to suffer with this and have done for over 10 years. I do not have it anywhere a part from my groin area and dred getting it under the arms! I'm currently thinking of a DLA claim but having done some research on the net, it doesn't look like i will be succesful in getting it. anyone else have experience of claiming with this condition?

fairydust07 · 27 January 2009 at 11:46PM

Hi, I have just been diagnosed with HS, despite suffering for years! I was prescribed the antibiotics which started working but then lost effect. The worst thing about these pills is that they are known for causing thrush! I got an almighty bout of thrush like I have never experienced before and then developed oral thrush too which made it too painful to eat! In the end I just stopped taking the pills and had to cut the boils open to relieve the pain. It sounds horrendous but I'm sure you can understand how easy it is to be driven to such extreme measures!! My doc said the pills are the only way to treat them and that I should avoid surgery at all costs because most of the time the problem comes back anyway! Sorry There's no cheery advice or anything, but I do understand what you're going through!

Former_MSE_Andrea · 30 January 2009 at 8:25PM

Hi everyone

We've been asked by the owner of a support website if they can post it here to help you. As we don't usually permit sites to advertise I've posted it for them. It's Hidradenitis Suppurativa Support.

The person who runs the site is an MSE forum user and we're very happy for them to answer questions here if you have any about their site.

Andrea

strong96 · 30 January 2009 at 9:44PM

well i put it on my latest renewal as it is something other than my arthritis, not sure if it affected my claim but i now have indefinte period instead of every 2-3 years. i know what you mean about the scaring its ugly to say the least, i have found going on a stand up sunbed once a week actually has reduced the flar ups, as it dries the skin, not a great a solution but hey it works so i dont care