Epilepsy

sniperpenguin

woodbine wrote: »

The above surprises me somewhat
would you prefer to still have seizures and thus be labelled disabled and get benefits,or be controlled by medication and be able to work and drive and have your freedom?
Given a choice of the 2 I know which i`d choose....

I'd rather not have it, so that if I feel a little rubbish / light headed I dont feel like Im about to undo 5yrs work in one fell swoop.

The closer to normality you get, the further you have to fall.

NatFeerick

I'm so glad I started this thread!!
So many people out there struggling with this often invisible condition - I'm glad to see so many of you sharing your stories, your battles and successes.
I hope the information has helped people and I have enjoyed sharing your stories - stay well and keep the thread going!

mgn83uk

I'm epileptic, I was diagnosed in October 2006 after two convulsive seizures. I had a long period of none in 2007, for them to return later that year with avengence! I read in various places that epilepsy does not automatically qualify you for DLA so I never applied, until a few months ago, when a friend suggested I did.

I was awarded the middle-rate mobility and lower rate care components - although this is not based solely on me being epileptic, there are other mobility, balance and memory issues I have.

It's worth applying, if they decline it you can always appeal. Also, ensure you elaborate on the form (some people have been known to write something simplistic like "yes" in response to questions such as "How does X affect Y...?").

-Mark

GlasweJen

Just thought I'd update, my DLA was reinstated indefinately upon review and i was issued an apology as the DM had appeared to not have read my form properly which caused the initial application to be rejected.

peediedj

although controlled fairly well now(tocuh wood) my 12 year olds son has had 6 2 1/2hr+ fits since he was 3,very frigthening,he gets high rate care+mobility dla

minigirl762003

Thats great news GlasweJen. We are still waiting for them to make a decision on my hubbys appeal.

GlasweJen

Mine never even got to appeal, i sent them back their letter with the contradictions highlighted and 6 weeks later i got a nice apology from them and my award back

minigirl762003

Well they have told us it would take 11 weeks to come to another decisions. This is after he has been recieving it for 3 years and they reviewed he file and wrote to us saying they were stopping it.

GlasweJen

I'd been on it for 4 years, my other decision could take up to 12 weeks but only took about 6 in reality, because i got my forms in early it led to no breaks in the claim at all.

kimberley111

my son is seven and recieves DLA,he was diagnosed with epilepsy in march after three tonic clonic fits in three weeks,my son has juvenile epilepsy which he will never grow out of.My son has myoclonuc jerks all night,everynight and needs care during day and night,he goes to school but the teachers have to keep a diary to monitor him because he has absences about ten times a day which has caused him to a lot of accidents such as falling off his chair,running into metal gates,falling off the bed.we applied for DLA and got turned down so we appealed and he now recieves middle rate care and lower rate mobility,plus he has just recieved a bus pass which let's him and a carer travel throughout England for free.As he recieves DLA my tax credits improved by an extra £50 a week,and I now recieve carers allowence for him,keep trying as if you a have a disability you are entilied to something,don't give up!!!