Epilepsy

NatFeerick

Anyone else on here suffer from Epilepsy?

It is covered by the DDA and you can get help with certain things depending on the severity of the condition, but as it's one of these 'hidden' conditions it can be difficult to justify why you should get the help.

Is anyone able to help compile a list of help available or any successes people have had with getting assitance?

I'll start with Free Prescriptions if you are on continuous medication...

kiwifruit_2

this may help you http://www.epilepsy.org.uk/info

jackthenipper

I knew that epilepsy was covered by DDA, but i didn,t know that you could get financial help apart from free prescriptions. What else do the government give?

NetalBeattie

Epilepsy is a physical impairment that can have an adverse and long term impact on your ability to carry out day-to-day activities. You can claim the Mobility and Care component of Disability Living Allowance if you have epilepsy. For example:

• You may need someone to supervise you while you are cooking or eating in case you have a seizure
• You may need supervision when you are out and about in case you fall and injure yourself after having a seizure
• You may need help at night, such as to be given valium when you have a seizure
• You probably are not able to go swimming or take a bath without supervision, as you could drown if you have a seizure
• You are not able to drive and may need supervision on public transport
• You may not be able to walk a long distance because too much stress from exercise causes you to have a seizure
• Your medication may cause sleepiness, which means you cannot fully take part in daily tasks.

Once you get DLA you can apply for a Blue Badge and Tax Credits. If you are not working you can get a higher premium on Income Support.

You also qualify for a concessionary bus pass as you would be refused a drivers licence on medial grounds

GlasweJen

I have non epileptic seizures and was awarded DLA MC LM but had it taken away recently, they're currently reviewing the award before it goes to appeal.

jackthenipper

GlasweJen wrote: »

I have non epileptic seizures and was awarded DLA MC LM but had it taken away recently, they're currently reviewing the award before it goes to appeal.

So what was your payments based on if you didn't have any seizures?
What did you put in your form?

I have never registered myself as disabled do you think i should & if so how do i do it?

GlasweJen

I wasn't registered disabled. The payments were based on the fact that my NES were sudden and without warning so i can't ever be left alone in case i fell and injured myself. I can't cook because i could collapse onto the cooker or when carrying hot plates or something and i can't go out alone.

tonson

Hi,
I have been receiving DLA for brain injuries I suffered in a road accident a few years ago. I applied to the Social Services for a bus pass and they told me I had to apply to my local Housing Office. They also told me that I might not get a bus pass - which I did`nt. I was told that I did not come into "that catergory" Then in March of this year, I was diagnosed with Epilepsy, which the Doctors think is related to my injuries.
Would I now be able to re-apply? And why does it have to be the Housing Office. What has it to do with them?

[Deleted User]

I have epilepsy, previously Grand Mal and now after surgery Partial Complex and night seizures.

I most definetly is covered by the DDA, goods, services and employment. Heres a list of help I get or have had at some point.

Free Prescriptions
Free local Travel - now national bus travel also
Disability Living Allowance
Incapacity Benefit
National Rail Card - got to buy but saves you a 1/3
Access to Work Support - can include equipment to help you do your job ie I have a PDA to help with memory problems and a lamp. Also money for travel to work and whilst on the job. This is from DWP.
Discounts where ever their is a disability rate
Housing Benefit when I was a student (normally students can not get this)
Disabled students allowance when in uni.

There is prob more. Anyone want any info on these PM me I'll be happy to help. Though Martin has info on here already

Shel

seaside

my son has only sleep seizures and in the past 2 months has had 2 after 5 years seizure free he gets very tied and gets bad tummy pain do you think there is anything he might be intitled to

[Deleted User]

seaside wrote: »

my son has only sleep seizures and in the past 2 months has had 2 after 5 years seizure free he gets very tied and gets bad tummy pain do you think there is anything he might be intitled to

I think he could get DLA and you, if you claim them, can get extra help on tax credits as he has a disability, he does not need to be on DLA to get the disability element of tax credits he only has to be disabled as defined by the disabiltiy discrimination act....


The Disability Discrimination Act (DDA) defines a disabled person as someone who has a physical or mental impairment that has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities.

http://www.direct.gov.uk/en/DisabledPeople/RightsAndObligations/DisabilityRights/DG_4001069

Although I would never advise someone to apply for DLA alone especially if they have never claimed it before. Ask the CAB or a like organisation to help. The forms are tricky, and not disabiltiy friendly. the way you answer the quesions is important. ie saying he is ok 80% of time but the other 20% he is real bad, he may not get it. The thing with epilepsy is seizures can happen at any moment, for some people with no warning and someone and he ahs to be aware fo that, but the CAB can help with that )