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The (not so old) Crocks Cafe
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I'm kinda happy today. Found something I can do to help me feel better without getting completely tired out by going into the city - I live near an unstaffed railway station on the Hope Valley Line and, while it doesn't have step-free access so it means going there in good time so I can put my hips back properly after I get up to the platform, I can just go there and get on a train and get off wherever I feel like - nowhere on the route is more than half an hour's journey from home, and it takes me right into the middle of the Peak District, the atmosphere of which which always helps to calm me and makes it easier for me to meditate and relax.
Wow, that was a run-on sentence and a half. Heh. Anyway, the MSE bit of this is that my national bus pass, issued by GMPTE, gives me free travel on trains within the Greater Manchester boundaries, and you'd be surprised how far that actually goes. I only have to get a ticket for two or three stations, which is no more than £1.50 - shiny!
So yesterday afternoon, I got on a train and went into New Mills in Derbyshire. I browsed a tiny but wonderful second-hand bookshop, sat and read by the River Goyt for a while, got myself a new skirt from one of the charity shops for £2.50 (yay bargains), made some new friends, and had coffee and a scone in a little caf! after it started to rain. I also met two gorgeous cats named Maisie and Daisy (I sort of petted them through the window as they were mewing and nuzzling at me through it, then I knocked on the door to tell their owner that I thought they were lovely, and she invited me in to pet them for a bit).
So all in all, a glorious afternoon! It's a hilly little place, but hills aren't so bad for me as stairs, and there are plenty of benches so you can take a break when you need toHomosexual, Unitarian, young, British, female, disabled. Do you need more?0 -
My emotions are a little all over the place right now....
A good friend of mine (my rock as he is always there to chat to me and get me through things and I have been his rock at times), is being urgently sent up for an MRI scan and lump testing on a lump on his face/jaw as they are worried about it being cancerous.
Without him around for the last few years, I dread to think where I would be, it was thanks to him that he dragged me kicking and screaming (ok, reluctantly), out of my break down and made it possible for me to think of the future. Because of him, I lost the attraction of various sharp implements, the black thoughts, the feeling of hopelessness...and now this happens to him, it seems so unfair as he is such a good person.
I know a referral for possible cancer doesn't mean it is cancer but to hear that dreaded C word strikes fear in anyone.
On top of this, Arts week at school, youngest going on school trip tomorrow as part of it and is in meltdown mode, unfortunately the school haven't advised him who his helper will be tomorrow (I don't think they actually know) which hasn't helped and because of his attachment to me, it is not a good idea to his future independence for me to go, although I would absolutely love to, never been to Africa Alive and really would like to - I've not said this to him, just said him he will love it and shown him the maps of the park, the route the coach will take etc and taken him through a visual timetable so he knows where and what time line everything is.
I have spoken to the school about it today and apparently there is assistance for him and I have asked if they can let youngest know who will be with him...my fear is if it is someone he has never worked with before (or very rarely), he won't trust them and ergo, won't feel safe.
I also had to speak to the school regarding middle son as he is also on Arts week and has lots of trips out (today a recording studio, tomorrow the O2 arena and Wednesday back stage at a theatre), he is much more able than youngest but still needs supervision as he has no sense of danger and would wander off with anyone who invited him to see their puppies (or a bag of sweets etc), he doesn't understand bad people and can only see good in people, will wander off, become distracted and will have no sense of time. He only needs to be paired up like in a buddy system with a sensible older student, which they are going to ensure happens (they did thankfully have him down as requiring assistance).
Stress!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
My emotions are a little all over the place right now....
A good friend of mine (my rock as he is always there to chat to me and get me through things and I have been his rock at times), is being urgently sent up for an MRI scan and lump testing on a lump on his face/jaw as they are worried about it being cancerous.
Sorry to hear this, Sue. My granddad went through the same thing- 3 months ago, he got diagnosed with 2 types of cancer.:( He does seem to be responding to treatment.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
*Hobbles in and flops down on sofa*
Greetings, friends old and new. Just checkin' in, don't want anyone thinking I've left the planet.:D
Sorry, too tired to say much, but SingleSue my best hopes for your friend, hope all turns out well.
*Looks at clock* Oops, better go and start on dins, Mr LW will be in soon. Pasta with cheese sauce. Followed by blueberry fool which I made earlier on.
:wave: See ya's.If your dog thinks you're the best, don't seek a second opinion.;)0 -
SingleSue, I hope things improve for you and your lot.
*flops* Tired, here. I've been cleaning and rearranging my flat as best I can to give myself more room to unfold my long table so I can work on some cushions for my friend (/emergency contact/part-time carer) who's just moved into a new place of her own. That, and I have a Canadian couchsurfing guest coming tomorrow, so I need more room so I can lay out the sofa-bed for her.
Very tired, but pretty satisfied with how much I've managed to do. Goodness knows I'll sleep tonight - I am running on sugar and caffeine right now! I'm really glad to have one of those days where I can actually get some stuff done - they are so blasted rare nowadays.
Next task, when I can get off the couch again: litter trays.Homosexual, Unitarian, young, British, female, disabled. Do you need more?0 -
I'm packin' up yeah!
I'm movin' house yeah!
OOh ooh ooh - I got chatted up today as well! By a Gumtree guy with a gorgeous accent!
And I got free boxes from a local factory - I'm being such a floozy!
I am knackered and aching though and would be in bed if it wasn't for the-out -of hours taxi service my children expect!!
Sorry to hear your news Sue. Tralia - you need to eat properly!! And its always good to hear from you LW
Love to all
Jen xOne life.0 -
My there are some confrontational people on this Forum. How does anyone survive it? I had to leave the thread on Blue Badges and having skimmed a few other threads I am amazed at some of the unhelpful antagonstic and downright rude posts people have made.
How do you guys cope? Do you just ignore the obvious barbs and nasty comments and keep talking about the point of the thread? Some of the things have read have made me feel angry but I can tell from the way the post has been made that the person wants a fight not a discussion or an exchange of views.
Does anyone know of a nice supportive disabled Forum? I am sure there must be one around somewhere as the nice people on this thread demonstrate.That did make me laugh. I did that a few times the other day on the Blue badge thread!
Thanks for the advice.
I found the BB thread ridiculous tbh...So true. I said something along those lines in another post. I refer to them as the smuglies; in my head they're just around to try and force people into arguments with their self-righteous bleatings. Nine times out of ten they have no idea what they're talking about and just want to argue. It's very sad as it never used to be like that on here. Whilst I haven't always been much of a poster, I've read the forums for ages and used to find everyone on here so kind, caring and considerate. Now it's a far more accurate representation of reality
Anyway.....I've never posted in this thread before so hello everyone!Lol @ "smuglies" -love it
Some of us came here from another thread that had a great community spirit. Unfortunately someone reported us as being "off topic" (after we'd had our thread renewed by the mods no less than 5 times cos we were on there that much) and we got shut down. As a result MSE have lost a fair bit of traffic cos we ended up, in the most part, going over to facebook and supporting each other there. It's a real shame when @ssholes ruin it for the rest, but there are some really supportive people and places out there, I hope you both (all) find some support here
As for me I've been AWOL for a while - in lurk mode from both real life and online life. I've been feeling rubbish phsically (I can't make that spelling look right!) and mentally/emotionally, so been trying to work through some of that. I'm now getting physio for my HMS, but it's really difficult to reconcile myself/them with the fact that I either completely forget about the exercises I'm supposed to do at home, or I'm just plain to knackered... makes me feel nervous about going each time too. I had to cancel last week's appointment and the one before that was during the heat wave so it took even more out of me...I'm just hoping I get more out of it than guilt & exhaustion
How's you guys all doing?"I am indelibly stained by hope and longing" - Nuts in May0 -
P.s.
Congrats on the house jennihen, hope everything resolves itself singlesue and the kitty is gorgeous Tria
Can't remember anything else:o"I am indelibly stained by hope and longing" - Nuts in May0 -
Hi I've not been around much either, June was a very hectic month for me , I went on holiday for a week and had to have an op the week I came back, also my laptops broken which means Im having to share the main computer with the rest of the family, and I cant sit here too long as the chair hurts my back after a while. I've decided to buy a new laptop as this is the 3rd time my old ones had the same problem, my new one should be here sometime this week.
Congrats jennihen, I hope the move goes well.
Singlesue I hope your friends gets the all clear.
I have to get ready for my reflexology app now, but will be around a bit more once the new laptops here.Real stupidity beats artificial intelligence every time.
Terry Pratchett ( Hogfather)0 -
My emotions are a little all over the place right now....
A good friend of mine (my rock as he is always there to chat to me and get me through things and I have been his rock at times), is being urgently sent up for an MRI scan and lump testing on a lump on his face/jaw as they are worried about it being cancerous.
Without him around for the last few years, I dread to think where I would be, it was thanks to him that he dragged me kicking and screaming (ok, reluctantly), out of my break down and made it possible for me to think of the future. Because of him, I lost the attraction of various sharp implements, the black thoughts, the feeling of hopelessness...and now this happens to him, it seems so unfair as he is such a good person.
I know a referral for possible cancer doesn't mean it is cancer but to hear that dreaded C word strikes fear in anyone.
On top of this, Arts week at school, youngest going on school trip tomorrow as part of it and is in meltdown mode, unfortunately the school haven't advised him who his helper will be tomorrow (I don't think they actually know) which hasn't helped and because of his attachment to me, it is not a good idea to his future independence for me to go, although I would absolutely love to, never been to Africa Alive and really would like to - I've not said this to him, just said him he will love it and shown him the maps of the park, the route the coach will take etc and taken him through a visual timetable so he knows where and what time line everything is.
I have spoken to the school about it today and apparently there is assistance for him and I have asked if they can let youngest know who will be with him...my fear is if it is someone he has never worked with before (or very rarely), he won't trust them and ergo, won't feel safe.
I also had to speak to the school regarding middle son as he is also on Arts week and has lots of trips out (today a recording studio, tomorrow the O2 arena and Wednesday back stage at a theatre), he is much more able than youngest but still needs supervision as he has no sense of danger and would wander off with anyone who invited him to see their puppies (or a bag of sweets etc), he doesn't understand bad people and can only see good in people, will wander off, become distracted and will have no sense of time. He only needs to be paired up like in a buddy system with a sensible older student, which they are going to ensure happens (they did thankfully have him down as requiring assistance).
Stress!
Really sorry to hear that. If it helps at all, my dad had a gigantic lump on his neck which turned out to be advanced metastasised squamous cell carcinoma (think I spelt that right!) and he's responding unbelievably well to treatment. Seriously, this lump was gigantic but it's been removed and he's starting his chemoradiotherapy soon. After he had the lump removal op he was drinking coffee and asking for his NRT chewing gum within 20 minutes of being back on the wardhe was supposed to be in for up to 10 days but they let him out after 3! It looked soooo grim to start with but it's looking much more positive now.
Never argue with an idiot; they'll bring you down to their level and then beat you with experience.0
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