We'd like to remind Forumites to please avoid political debate on the Forum... Read More »
📨 Have you signed up to the Forum's new Email Digest yet? Get a selection of trending threads sent straight to your inbox daily, weekly or monthly!
The (not so old) Crocks Cafe
Options
Comments
-
Jojo - what do the medical people think about your DD doing gymnastics? Surely, it's up to them and your DD. Surely, they both know her limitations?
I think trainers are much better than plimsolls, support wise.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
Jojo - what do the medical people think about your DD doing gymnastics? Surely, it's up to them and your DD. Surely, they both know her limitations?
I think trainers are much better than plimsolls, support wise.
The GP thinks that it's harmful to give DD a diagnosis as that would impose societal limitations and constraints upon her. :mad:
But if she were to be back doing her SHO training again in rheumatology, she would score her on her thumb to wrists, her elbows, her knees and touching the ground, never mind the fact that DD can also practically headbutt her backside when bending over backwards.
So I told her I was giving her the descriptor and she agreed that it will make DD's school life easier to do so.
Sometimes I could take the social model of disability's political correctness and tell them to shove it right up where someone shouldn't be able to reach unless they have HMS!I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.Yup you are officially Rock n Roll0 -
Jojo_the_Tightfisted wrote: »The GP thinks that it's harmful to give DD a diagnosis as that would impose societal limitations and constraints upon her. :mad:
I don't see how? It would help her if later on in life she needed support.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
I don't see how? It would help her if later on in life she needed support.
I agree, but until then, we shall just have to do what we can.
She went to school with a basket strapped ankle today, following a rough time during PE (she hadn't eaten much for lunch, so was down on energy and they sprang an army style circuit training session on them). The ensuing distress at the school gates when I met her necessitated immediate chocolate milkshake and panettini from the coffee shop down the road.
Unfortunately, a child in the class broke her ankle in early February, so is currently using up the class's sympathy (other than one lovely boy who was genuinely concerned whether DD was alright when coming out the gates).
Broken ankle child is unable to pick up a pencil without collapsing in pain, cannot leave the classroom (other than when her mum picks her up early, when she sprints down the stairs like Hussain Bolt doing the 100m), can't possibly do homework and cannot be left alone at any point during the day or she complains to the TA that x is bullying her (ie, not waiting on her every whim, doing her work for her, hanging on her every word, giving up every single playtime to sit with her, etc, etc).
Broken ankle child has been DD's best friend for 6 years.
DD has told me that she hopes best friend is put in a different class to her in high school, as she wants to be allowed to make 'nice friends, for a change, without her whining I'm bullying her because I want to play with someone else occasionally'
Meh. No wonder DD gets stroppy sometimes.I could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.Yup you are officially Rock n Roll0 -
Had eldest son in absolute bits last night, so stressed he was shaking (literally!)..the pressure is just getting to him now.
It has been an absolute horrendous time for him and no sooner has he finished the diagnostic process and before it has had time to sink in and for him to start coping with it but his GCSE's start. He was worried about his ICT coursework (which they changed the course very recently and gave the whole class 2 weeks to complete about a years coursework!) plus the fundraising for his Honduras trip next year when the straw that broke the camels back was my ex mother in law asking him has he found a job yet.
Now, he is only looking for a part time job as he will be going into 6th form in September, he already helps out a neighbour across the road weekly with odd jobs, for example, grass mowing, putting up shelves, making cupboards etc (for which they insist on paying him for, he has tried to refuse it). I had advised him to not stress so much about looking for a PT job for a few weeks while he has his exams as these are far more important plus also because the stress he has been under in recent weeks.
Mother in law though thinks he should be out there, banging on doors all the time and leaving the study at home, to her, his revision is not important and he should be doing something more productive than "having his head stuck in books" (her words).
Mother in law leaves, eldest falls apart saying he can't cope with all the pressure, the stress, his father not being supportive (eldest has rung and left messages for him to contact as eldest wants to go up and visit him, no reply at all) and the impact of his HEDS on his future life and children...2 hours later, I finally calm him down enough for him to stop shaking a little.
Now who is in the right? Am I wrong for advising eldest to chill out on the part time job applications and to concentrate on his exams, or is mother in law right about needing to get something sorted for now? I do worry that she sees me as being on benefits and making him just follow the benefit route but that is not my intention at all....my gut feeling is that it is better for him to do well in school to enable him to find employment easier when he does leave school/6th form/Uni.
I have spoken to his school this morning regarding his ICT stuff and they are going to have a word with him...turns out the coursework doesn't actually have to be in tomorrow but they didn't tell the students that!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
Sue, if he wants to go to college then he needs to do the revision, part time jobs will be hard to come by until the year 13's go off to uni anyway! That's when the majority of vacancies come up. I'm definitely with you, if he's job hunting now he can't be revising, he can job hunt in the summer when exams are over! It's only a few weeks away! Ultimately though it's up to him, but I'd imagine MIL is going to be the one he *wants* to listen to, if only to shut her up! Could you keep her away for a few weeks whilst he concentrates on revising? Less stress then, though not always possible!
Jojo, even if DD's "friend" is in the same class there are generally a larger group of people to make friends with, and it's a little easier to avoid people you don't want to be with... It's silly really, girl with broken ankle will be done and sorted soon, whilst DD will be hypermobile permanently... but people don't see it like that do they?! Hate people who make a fuss to get sympathy whilst the quieter ones who don't moan continuously get ignored, and are made out to be the whiner if you mention it!
Hopefully once her cast is off she'll leave off it, or maybe it'll take a few extra weeks...! x0 -
Sue - if I was your son, I would do my revision now and concentrate on exams. When this is all over, only then would I look for a job.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
Anyone feeling really bad/worse now the the warm sun as gone away.
Joints are giving my absolute agony, god this is a hard day
Sorry just had to get it off my chest0 -
Anyone feeling really bad/worse now the the warm sun as gone away.
Joints are giving my absolute agony, god this is a hard day
Sorry just had to get it off my chest
it's the opposite for me - I have a slightly dodgy knee (no, I still haven't been to the doctors yet...:o) and find the cooler weather makes it less painful.
Apart from this morning when I woke up with cramps in my shoulder and calf.:(Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
Delurking briefly to *wave* and express hope that everyone's having a reasonably good Thursday.
*Returns to Lurksville*If your dog thinks you're the best, don't seek a second opinion.;)0
This discussion has been closed.
Confirm your email address to Create Threads and Reply

Categories
- All Categories
- 351.1K Banking & Borrowing
- 253.2K Reduce Debt & Boost Income
- 453.6K Spending & Discounts
- 244.1K Work, Benefits & Business
- 599.1K Mortgages, Homes & Bills
- 177K Life & Family
- 257.5K Travel & Transport
- 1.5M Hobbies & Leisure
- 16.1K Discuss & Feedback
- 37.6K Read-Only Boards