OS ways and Poor Health

Good afternoon all :wave:

Hugs to LW and AOT :grouphug: I hope you are both feeling a little better today x

The last few days have still been quite low energy. I have been forcing myself to get down the allotment for a few hours, for fresh air and light as well as to make myself feel like I have 'done something'. I harvested the onions so my friend and I each have a small sackful Today I am going to take my SSST (super-sexy shopping trolley:p) with me to bring mine back, along with a red cabbage. I'm just trying to plod along and do what I can.

Hope everyone has a happy Sunday xxx

Nomoonatall wrote: »

Hi folks,
Been having a few rubbish nights lately. Bad insomnia last night, so thought I'd batch cook some veggie curry at 3am.

Here's a tip...don't batch cook curry when you're feeling ill. It'll just taste of illness! Also, if you have a migraine at the time, don't think about using turmeric. The bag split, I have bright yellow hands..the sink is yellow too, didn't notice for hours!

I'm having toast for tea. x

I once had a full bag of turmeric fall lut of the top cupboard, all over my white kitchen units.It was a !!!!!! to get rid of
Am feeling exhausted with mynew pup.She follows me everywhere, n has just ended up inside the duvet, as I was changing the bed :rotfl: She is addorable though
LW I hope you soon feel better hun xx:A

Quite a busy week here, interspersed with spells of being too fatigued to do much (only short spells:D)

Got my blood test results on line, new level of IgG up there at the level consultant told us was desireable:j:j

Home visit from Immunology Nurse at "the big hospital" in "the big city" (can you tell that I live in the sticks and love it:rotfl:). She was happy with the way that OH and I are doing the infusions, so all good.

Made some more delish soup in my new soup maker, love it and gets more veggies down us, great for the "too tired to cook much days" and no additives, fillers etc.

Did my last volunteer stint at animal charity CS for the Winter, I decided it was foolish to expose myself to too much people contact during the cold and flu season while my immunity so poor. I will miss the people, but did find it knocked me back energy wise.

Doing more research and a review of my supplements and trying to be good and take them all each day:o dug out 7 day pill organiser and will try and keep it running.

Cooked a couple of more special meals for OH, he deserves treats as he has been taking up all the slack at home while I have been unwell.

Pretty good week:D:D, sorry this has turned into rather an essay:(

Virtual hugs and good vibes to all that need them. x

This is a brilliant thread, I just read through all the comments and, although I wish no-one had to suffer, I'm glad to know I'm not alone. This is going to be a long, rambling post so you might want to skip it! I just feel like letting off some steam...

I was diagnosed with Fibromyalgia a few days before my 23rd birthday; I'm now coming up for 25. I still haven't found a proper way to deal with it, but I have had pain since I was 11 and mainly just ignore it. Some days it's really bad, especially at work (sitting in front of the computer) and also in bed at night. I often have a little cry to myself because I feel so helpless and hopeless. I have seen osteopaths, chiropractors, physiotherapists etc. with no luck, and I haven't found any medicines that really help the pain. At the moment I have some sort of Diazepam but it makes me really woozy and doesn't help that much, and I also take Zopiclone to sleep, though I never feel like I have slept properly! I'm also really struggling with the dreaded brain fog, especially coupled with the fatigue. Before I had to drop out of uni due to my symptoms, I could read a few books and a tonne of essays every week for my courses; now I can barely manage a few pages of my OU textbook before I zone out and can't remember what on earth I just read. It's driving me MAD because I know I can do it but my brain just won't work - grrrrr!

Random list of things I do:

• Short but hot shower before bed to relax my muscles
• Rub Tiger Balm or Arnica into the painful bits
• Keep myself wrapped up very warm, even if I look a fool with scarf and hat in the sun!
• Mindfulness practice (got a book from the library, seems very interesting)
• Remember to sit down to put on socks, trousers etc – I only just realised that I don’t have to stretch whilst standing on one leg and potentially hurt my back more…
• Pace myself – just because I’m young doesn’t mean I’m fit and healthy
• Keep going! Instead of just lying in bed, watching television all day…
• Eat well (sometimes)
• Accept that I need to take medication (I’m against animal testing but sometimes needs must, even if I feel guilty)
• Don’t multi-task
• Write lots of lists and sticky notes so I don’t forget things or get muddled
• Leave myself plenty of time to get everywhere
• Always have snack and a drink with me
• Ask for help if I need it! And let people help me instead of soldiering on
• Take myself out of situations that make me feel rubbish
• Keep food in the freezer for days when I don’t feel great (we call it brown food at home haha)
• Buy shopping bags with long handles so I can put them on my shoulder instead of hurting my elbows and wrists; carry my backpack with me everywhere as it’s the best thing for my back
• Keeping annoying the doctor until they help me find a solution that actually works for me!

As I said, a very rambling post but it feels good to share! I don’t know anyone else my age who struggles with things like I do so it’s lovely to know that there are people out there to reach out to

haras_nednats wrote: »

• Mindfulness practice (got a book from the library, seems very interesting)

I find this site (FREE) https://www.headspace.com/ to be fantastic - I keep doing Take 10 over and over but I intend to try a subscription with saving up of birthday/Christmas pennies. Worth subscribing to newsletters for subscription offers.