OS ways and Poor Health

pollyanna_26 · 19 August 2018 at 4:30PM

Hi everyone I'm back . Virus went to post viral which went on for weeks . We managed to stagger to various appointments and nothing more .

Wolfy I haven't really caught up so wondering how Mr LW is managing on the med . Hopefully it will have improved his mobility somewhat . How did things go with the home visit with the clinical specialist ? I hope you just sat in the garden while she was there weather permitting .

Have read your post AOT , any further progress happening ? It seems to be taking them a long time to act . Meanwhile I assume you still don't have your needed meds .

I notice LL and candy have posted and candy has another staffie . Welcome to Zeus .

Thanks everyone for your good wishes . I'm going to read back properly now . At least most of us seem to have had some cooler weather so hopefully have had better sleep .

See you later

polly x

pollyanna_26 · 19 August 2018 at 6:22PM

Prinzess I'm glad you found a solution to getting some air into your bedroom . My dd has been very interested in your wigs . She is a trained hairdresser and it was the physical illness that led to her not being physically able to follow it up as a career . Like you she has psoriasis , in her case psoriatic arthritis along with fibro and tendonitis .
She does have large patches of hair loss but is good at concealing the loss as she has long thick hair . She's keen to know more about the wigs as coping with hair washing and styling is a nightmare especially during frequent flares . I think she's ready to lose the long hair for an easier solution now .

I hope your usual prep for the festive season is on course . I would really love some of your soup recipes . It isn't at all mse but I haven't kept up the batch cooking and freezing over the last hectic year so soups have been the fresh m&s variety although only when on the 2 for less offer .

Re the lump I'm wondering if you have a tendency to cysts . I know many including dd do when there are immune problems and rheumo conditions . hers often become infected and our GP is constantly having to fight it with strong abs . if it hadn't been for this viral thing happening he would have referred her for possible removal as she's had a very painful crop occur . We've tried to avoid it as she'll have to come off the MTX temporarily to give her immune system a chance to hopefully fight .

I had a few courses of acupuncture years ago LL . It was for the osteo which was diagnosed decades before the fibro and the pSa .
I found it very helpful .

Fibro is really complex . I don't feel any one reason or solution fits all . I agree stress overload does seem a strong factor . Regarding chicken I haven't eaten poultry or pork for decades . I'm not completely vegetarian as I was given a choice of iron injections for life or some meat and lots of pulses . I confess I'm needle phobic so opted for the dietary option . Unlike many with fibro I have never had IBS or food poisoning although my dd has had IBS for years .

I thinks it's a case of finding solutions for each individual as we vary in what works for us .

Wolfy is that Cookie who has visited before ? I must say I find it rather rude of the lady who really didn't want to attend the wedding to waste your time . Leaving aside the stress these meetings cause you which she wont be aware of it's downright impolite of her .

Tink I'm proud of you for raising a formal grievance . Yes it's added stress but good for you having the courage to say stop . It was stressful either way so I hope something has or will be sorted .
Hoping the holidays haven't been too exhausting and the children have run off some surplus energy during good weather . Not long to next term now .

I hope maddie , pauline and other posters are ok .

Take care all

polly x

pollyanna_26 · 20 August 2018 at 12:44PM

Wednesday has that rash cleared yet ? I've been wondering if you've got an appointment yet for the NHS therapy .

Sorry to hear you still aren't feeling too good candy . Hope Zeus is settling in now .

I haven't noticed Cranky around recently but it's school hols so I expect she's out and about with the HT .

LL Have you moved yet ? I've lost track of all sorts recently so no idea if you have or not .

polly x

maddiemay · 20 August 2018 at 7:14PM

Hi Polly and friends, I loved seeing the sun, but the hot weather was just too much for me in the end. On the whole I feel better than I have done for years, but you know how it is, often 1 great day with lots done or places visited and 2 more spent lolling around recovering:eek:

Have recently had 6 month appointments with Immunologist and Endocrinologists. My lovely Immuno consultant is very happy with my progress, as are OH and me. Endos are happy to have a watching brief with the Parathyroid, but has confirmed that the bone scan shows Osteoporosis, I am scheduled for an infusion mid Sept and I said that I was not happy to go onto tablets, (IBS already causes a lot of problems).

I have managed (with a little help from OH) to reclaim most of one 70 ft border in the garden and I have loved being outside doing it, even though it was scorching, and the feeling of achievement is great. Made a small start on another one too:D

OH has finalised booking for a 2 week jaunt in our caravan in a couple of weeks, 1 back near where we lived in West Dorset and the 2nd in Somerset, so lots to look forward too. At long last OH has accepted that I need to just do nothing some days. He is not unkind, but although older than me he thinks that holidays are for doing things, not sitting about, thank goodness he is rarely poorly. We will be packing his bicycle and clothing etc, so he can be energetic while the dog and I chill:rotfl:

Polly - So sorry that the virus morphed into post virus stuff, I hope that you are well into recovery. Lamewolf I expect that you are now counting the hours until the arrival of Cookie:D Our little Westie lodger stayed with us for 10 days while my Bestie and OH were on hols, and the pretty furry one went to them for 3 days to allow for 1 of our long jaunts to the hospital (just under 2 hours journey each way on a good day, and we have to allow an extra hour in case of road delays), she loves being with them and they adore her, so all happy:D

Hugs and spoons to anyone who needs them, and good moving house vibes to LL too, I hope that you are out of limbo soon.

cornishchick · 21 August 2018 at 5:38PM

hi Guys
not been on here for a while. but health and finances mean i am back.
my health is taking a bit of a noise dive. I am always so tired and the only thing that has helped is following a low carb high fat diet. lots of vegetables. eggs and good meat.
i have taken my work contract down to a bare minimum, working as relief and I am living on savings and my widow pension. I did this for 2 reasons. I am attempting to retrain so need the head space for learning and placements. and the theory was time off from working would help me heal... not sure it helps,, there are still days where I stare at the course work and have no idea what it wants from me. my tutor is looking into getting me an education support worker for the next term, someone to maybe type things up for me . so hopefully we will see.
anyway , trying to stock up a bit on some tinned stuff for winter and emergencies. this used to be easy with pulses and rice and pasta. but they are all not allowed on the low carb side, so wondered if anyone had any ideas? vie invested in a few times of steak, green vegetables such as green beans , but that's where my brain dies...
its good to be back on the OS forum, I already feel like I am taking back some control.
xxCC

Elona_2 · 21 August 2018 at 5:50PM

CC

I think pickled onions, gherkins etc might be all right and maybe tinned mushrooms. I think there are some low carb recipes made with flax flour or similar that could be worth a look.

Nice to see you.

pollyanna_26 · 21 August 2018 at 6:13PM

Welcome back to OS Cornish Chick I remember you very well from the old fence thread and others . I recall you weren't feeling too good but that was to be expected following the loss of your soul mate .
Do you have particular health issues , you may have said in the past but brain overload and fibro fog freeze my memory every now and then .

I actually popped online to deal with a pm and spotted you . I'm about to eat so will be back in a while same for maddie .
polly

cornishchick · 21 August 2018 at 6:29PM

Elona wrote: »

CC

I think pickled onions, gherkins etc might be all right and maybe tinned mushrooms. I think there are some low carb recipes made with flax flour or similar that could be worth a look.

Nice to see you.

thank you Elona , of course, why didn't i think of pickles , and olives of course.. I use coconut flour at the moment , i need to find a good price on that..

pollyanna_26 wrote: »

Welcome back to OS Cornish Chick I remember you very well from the old fence thread and others . I recall you weren't feeling too good but that was to be expected following the loss of your soul mate .
Do you have particular health issues , you may have said in the past but brain overload and fibro fog freeze my memory every now and then .

I actually popped online to deal with a pm and spotted you . I'm about to eat so will be back in a while same for maddie .
polly

Hi Polly, ironically. my locum has said i have fibro,plus B12 deficiency and underactive thyroid. a trifecta of low energy conditions. i get regular b12 jabs, and i am due a check up for the thyroid next month .

Primrose · 21 August 2018 at 6:53PM

Cornish chick, are nuts and avocados on your exclusion diet? If not they may add an extra dimension.

-taff · 21 August 2018 at 6:55PM

Can you not use the pulses as protein? Beans or lentils of any kind?

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