When you say terminally ill, do you mean 12 months or less left to live? If so has he claimed under the special rules using the SR1 form? (previously known as DS1500) If she then he will automatically be placed into the Support Group without the need for an assessment. https://www.gov.uk/government/publications/dwp-factual-medical-reports-guidance-for-healthcare-professionals/e5b3b502-9067-4b20-93c0-1006d9cb0edbsarah1972 said:Hi everyone
My husband is terminally ill and sick pay ends this month so we applied for ESA a couple of months back giving the dates.My question is, I saw that the disability element is automatically paid but how do they know that you cannot physically work unless we tell them?Sorry if this is a silly obvious question, I’m new to all this x
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New to ESA

sarah1972
Posts: 19,380 Senior Ambassador



Hi everyone
My husband is terminally ill and sick pay ends this month so we applied for ESA a couple of months back giving the dates.
My husband is terminally ill and sick pay ends this month so we applied for ESA a couple of months back giving the dates.
My question is, I saw that the disability element is automatically paid but how do they know that you cannot physically work unless we tell them?
Sorry if this is a silly obvious question, I’m new to all this x
I’m a Senior Forum Ambassador and I support the Forum Team on Competitions Time, Shopping & Freebies boards, Employment, Jobseeking & Training boards If you need any help on these boards, do let me know. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com. All views are my own and not the official line of MoneySavingExpert.
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poppy12345 said:sarah1972 said:Hi everyone
My husband is terminally ill and sick pay ends this month so we applied for ESA a couple of months back giving the dates.My question is, I saw that the disability element is automatically paid but how do they know that you cannot physically work unless we tell them?Sorry if this is a silly obvious question, I’m new to all this x
I’m aware he will be placed into the support group but a friend of mine said about an additional disability add on? XI’m a Senior Forum Ambassador and I support the Forum Team on Competitions Time, Shopping & Freebies boards, Employment, Jobseeking & Training boards If you need any help on these boards, do let me know. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com. All views are my own and not the official line of MoneySavingExpert.0 -
I would advise you to use the SR1 form because he would be placed into the Support Group straight away, rather than having to wait 13 weeks.
There's no disability premiums payable with New style ESA because it's a contributions based benefit only. ESA Support Group is £138.20/week and that's the maximum amount.
Are you both claiming Universal Credit as well?2 -
I would give ESA a call and just tell them you’re claiming under special rules / due to terminally illness.The SR1 will be logged if PIP have already had it (HCP sends it via a dedicated email portal thingy), but unless you prompt someone at ESA to “look” it might go unnoticed.2
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poppy12345 said:I would advise you to use the SR1 form because he would be placed into the Support Group straight away, rather than having to wait 13 weeks.
There's no disability premiums payable with New style ESA because it's a contributions based benefit only. ESA Support Group is £138.20/week and that's the maximum amount.
Are you both claiming Universal Credit as well?
We’re not eligible for Universal credit.I’m a Senior Forum Ambassador and I support the Forum Team on Competitions Time, Shopping & Freebies boards, Employment, Jobseeking & Training boards If you need any help on these boards, do let me know. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com. All views are my own and not the official line of MoneySavingExpert.0 -
Those disability premiums relate to income related legacy benefits rather than new style ESA. It’s the Support Group / LCWRA premium that would be added to the NS ESA as a result of the SR1 form.1
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sarah1972 said:poppy12345 said:I would advise you to use the SR1 form because he would be placed into the Support Group straight away, rather than having to wait 13 weeks.
There's no disability premiums payable with New style ESA because it's a contributions based benefit only. ESA Support Group is £138.20/week and that's the maximum amount.
Are you both claiming Universal Credit as well?
We’re not eligible for Universal credit.1 -
8dayweek said:Those disability premiums relate to income related legacy benefits rather than new style ESA. It’s the Support Group / LCWRA premium that would be added to the NS ESA as a result of the SR1 form.poppy12345 said:sarah1972 said:poppy12345 said:I would advise you to use the SR1 form because he would be placed into the Support Group straight away, rather than having to wait 13 weeks.
There's no disability premiums payable with New style ESA because it's a contributions based benefit only. ESA Support Group is £138.20/week and that's the maximum amount.
Are you both claiming Universal Credit as well?
We’re not eligible for Universal credit.I got confused as it says
If you get income-related Employment and Support Allowance (ESA) you cannot get the disability premium, but you may still qualify for the severe and enhanced premiums.
So our nurse said that he will get the severe or enhanced but obviously not.XI’m a Senior Forum Ambassador and I support the Forum Team on Competitions Time, Shopping & Freebies boards, Employment, Jobseeking & Training boards If you need any help on these boards, do let me know. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com. All views are my own and not the official line of MoneySavingExpert.0 -
Hi @sarah1972I'm afraid that your nurse is a few years out of date with her information.Those premiums only apply to Income Related ESA - and nobody has been able to make a brand new claim for that since 27th January 2021. (so those premiums can only apply to IR ESA claims made before that date).The ESA that you can still claim now is Contribution Based ESA which does not include those premuims. It is also referred to as 'New Style ESA' to point out that it has different rules.However UC has replaced 'Old Style' Income Related ESA for new claims, and if you qualify for UC then you can claim UC as well as New Style ESA.
If you do that then although what you get paid as ESA is deducted from the UC you do end up with more money overall because the LCWRA element of UC is much more than the Support Group Element of ESA.UC LCWRA Element is currently £416.19 a month, ESA Support Group Element is currently equivalent to £128.91 a month.
You will also get the UC standard allowance for a couple of course.
If you tell UC that you are caring for your spouse then you should also get a UC Carer Element of £198.31 a month.
Overall you may be much, much, better off each month by claiming UC too, so you should also claim UC if you can, ie. if don't have over £16,000 savings/captal between you, and you yourself are not earning a high wage..Enter your circumstances into one (or more) of the benefits calculators here to find out what you should be claiming now, and how much you should get overall if/when you do: https://www.gov.uk/benefits-calculators
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Newcad said:Hi @sarah1972I'm afraid that your nurse is a few years out of date with her information.Those premiums only apply to Income Related ESA - and nobody has been able to make a brand new claim for that since 27th January 2021. (so those premiums can only apply to IR ESA claims made before that date).The ESA that you can still claim now is Contribution Based ESA which does not include those premuims. It is also referred to as 'New Style ESA' to point out that it has different rules.However UC has replaced 'Old Style' Income Related ESA for new claims, and if you qualify for UC then you can claim UC as well as New Style ESA.
If you do that then although what you get paid as ESA is deducted from the UC you do end up with more money overall because the LCWRA element of UC is much more than the Support Group Element of ESA.UC LCWRA Element is currently £416.19 a month, ESA Support Group Element is currently equivalent to £128.91 a month.
You will also get the UC standard allowance for a couple of course.
If you tell UC that you are caring for your spouse then you should also get a UC Carer Element of £198.31 a month.
Overall you may be much, much, better off each month by claiming UC too, so you should also claim UC if you can, ie. if don't have over £16,000 savings/captal between you, and you yourself are not earning a high wage..Enter your circumstances into one (or more) of the benefits calculators here to find out what you should be claiming now, and how much you should get overall if/when you do: https://www.gov.uk/benefits-calculatorswe aren’t eligible for UC but thank you for your help xI’m a Senior Forum Ambassador and I support the Forum Team on Competitions Time, Shopping & Freebies boards, Employment, Jobseeking & Training boards If you need any help on these boards, do let me know. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com. All views are my own and not the official line of MoneySavingExpert.0
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