My 31 year old daughter has a terminal brain tumour.

middlesis

Thanks for the replies, and again, the good advice.

We had a good week.  Treatment went well, and she was only sick twice during radiotherapy.  (Takes an hour to clean up the treatment room, and then we have to start again). 

She is eating dry toast and biscuits, and even managed half a kit-kat out of  the vending machine .

Half term this week. 

Savvy-sue. Yes you are so right.  Support is crucial - nobody can deal with it on their own.

TheJP

middlesis said:

Thanks for the replies, and again, the good advice.

We had a good week.  Treatment went well, and she was only sick twice during radiotherapy.  (Takes an hour to clean up the treatment room, and then we have to start again). 

She is eating dry toast and biscuits, and even managed half a kit-kat out of  the vending machine .

Half term this week. 

Savvy-sue. Yes you are so right.  Support is crucial - nobody can deal with it on their own.

Life can be so cruel.

Thinking of you and your family.

Enjoy the moments, take time to take a breath and just look at her, see her. 

I'm so sorry, i cant imagine how you all feel.

Morglin

Sorry to hear about your daughter.  Look after yourselves.  

Marie Curie have a page dedicated to those that need pets rehoming, due to illness.

https://www.mariecurie.org.uk/help/support/terminal-illness/planning-ahead/rehoming-pets

Best wishes.

london21

middlesis said:

My lovely girl - third of four children - has been diagnosed with a terminal brain tumour. She has 2 children aged 12 and 8. 
At the moment we are attending Christies for daily radiotherapy sessions. 5 days a week for 6 weeks, 1 week done, 5 to go,. 30 sessions of high intensity treatment. After that the chemo begins.

She wont get better, but all this treatment might prolong her life a little. 

How the hell do we deal with this?

Its not fair, and its not right. This is not not how life should turn out.  

At the moment, me, and her step-dad and her siblings are doing all we can to make sure she gets to the hospital and gets the best treatment she can - Christies have been wonderful. Kind and compassionate and so damned good at what they do.

I,m not looking for answers, because there are none.  Would just like to know how other families in the same position have dealt with it.

Sorry for ranting so late at night.  Thats when it hits home. 

Sorry you are going through this.

Would be a tough time for the family and loves ones.

Just from thinking deep, would be good to spend quality time together.

Build memories with the time left.

Ask her what she would like.

Look after yourselves and take each day at a time xx