Aspergers/ASD support thread

Savvy_Sue

Louisepp wrote:

Last night on returning from the evening shift, he asked if I mind if he brings home some crates of wine. He explains that he doesn't like wine, yet he has been told that it is good for him, he feels that he must drink it every day to get used to it. Ummm. Do I think that would be wise? What should he do if he finds he still doesn't like it...should he drink it anyway? How much longer will he live if he does drink some each day? Is there a particular brand that he should focus on? Am I proud of the fact that he's doing this? Where should he put the bottles? Should he leave them on the floor in his bedroom? Should he put them on his cupboard? Is it important to open one bottle at a time.

Ack....it was 2:30am!!

:rotfl:

I havel always felt that DS1 would not cope well with working in a pub, too noisy and demanding, but maybe I am wrong. However I will continue to be grateful for the fact that he dislikes alcohol and has not yet seen a good reason to try and acquire a taste for it!

He was fascinated when he first went to Uni by the amount of alcohol his fellow students could put away, and entertained by the effect it had on them, but still not tempted!

moggins

LOL, DS can't stand the taste of alcohol. I hope it continues in the same vein not like his Dad (who I strongly believe is mildly AS too)

mamamia

My 10 year old lovely nephew has AS, he is very clever but finds it very difficult to make friends. His parents have been trying very hard since his diagnosis three years ago to get a 1 to 1 support for him in his school but it seems the school are not willing to help them. My sister feels very let down by the school and she is depressed b/c of this. Does anyone know what she can do and how we can all help my nephew to fit into the society. He is a lonely little boy that neds help. Thanks in advance for your advice and suggestions

Js_Other_Half

Have a read through this thread :

http://forums.moneysavingexpert.com/showthread.html?t=163210

hth

lewt

mamamia wrote:

My 10 year old lovely nephew has AS, he is very clever but finds it very difficult to make friends. His parents have been trying very hard since his diagnosis three years ago to get a 1 to 1 support for him in his school but it seems the school are not willing to help them. My sister feels very let down by the school and she is depressed b/c of this. Does anyone know what she can do and how we can all help my nephew to fit into the society. He is a lonely little boy that neds help. Thanks in advance for your advice and suggestions

Sadly this is a problem alot of suufers have and it often hurts the family more so than the child. What my sister does(primary school teacher) is find out the child's speical subject before he joins the class one day then she trys to do a really interesting and active lesson one that the other kids enjoy, but might not know much about then when its time to ask questions to the class the AS child knows about it already so can explain to the other kids what its all about.

She has had mixed results as with anything in tec=aching but its an idea for you....

ps. have you read the curuios incedent of the dog in the night? it really is an insight and could give yourselfs a few other ideas...

MyUserNamesTaken

The problem with "The Curious Incident..." is that it gives an insight into one boy with AS. Asperger's syndrome is an ASD. In other words, no two people with AS are the same. Each individual will be different in terms of the triad of impairments.

OP, I know how your sister feels. I have exactly the same problem. Without a statement, there's not much she can do. The first thing she should do is apply for a statement of special needs. It's damn hard to get one, though, esp. if the child is academically bright. Basically, if he's not falling behind in class (academically) and he's not being really disruptive in lessons, they don't see any real problems. The other thing she should do is contact the NAS. They'll put her in touch with local support groups, etc. She needs all the support she can get, as AS gets harder to cope with as the child gets older - the child becomes more aware that he/she is different from his/her peers, which leads to depression, anger, paranoia and anti-social behaviour. Eventually, it can lead to giving up. Believe it or not, there are lots of people out there in the same position as your sister. The problem is down to lack of awareness. If those affected by Autism were to talk to each other, they wouldn't feel so alone. Most people know someone who is affected in some way by Autism - they just don't realise how common it is.

The worst thing for me is that I know what my son is going to go through, as I have AS myself. School was not a happy time for me.

lewt

thanks for that My user names taken (i was gunna cut it down but didnt think you'd like m.u.n.t) your right that book is only one child with as. my experience is when i left school i wirked in a day centre for a few years in which i met a couple of people with as. After i left there and went to college i bumped into one of the chaps who had as he was doing a life skills plus a catering course. amd he would always speak to me but i used to see him in the lunch area on his own looking like he wanted a m8 really it's just when i offered to share my table and what not does he want to go for a pint? he seemed to pull out of the conversation. is there anything more i could do next time i see him to make him more comfortable?? what did you think of what my sis does in school does that help? and do you know anything more a teacher should be doing?

Jo_R_2

Has he been statemented? Is he getting any kind of support from the school other than 1 to 1 support?

mamamia

Thanks all for your reply. In response to Jo_R, he is not getting any real support from the school, the school gives my sister the impression that my nephew's problem is not their cup of tea. MyUserNamesTaken, my sister has joined a couple of local support groups which she says are helpful. I am just hoping that the school will be able to help her with the support that this child needs.

Savvy_Sue

IPSEA are very helpful wrt statementing.

lewt, there may not be anything more you can do for this chap. He may not actually mind being on his own. You could ask him? He might prefer to be left alone - or rather than going for a pint he might prefer something else. If you can find out if he has any special enthusiasms that might form a bridge!