Aspergers/ASD support thread

covlass

I found this book helpful
http://www.waterstones.com/waterstonesweb/products/sheila+hollins/valerie+sinason/catherine+brighton/susan27s+growing+up/4556344/

My DD has Autism and SLD she was only 9 when the dreaded day came. The first few times where a nightmare in the end I resorted to taking her in the bathroom and using sanitry towels even when i didnt need them just to try an get her to understand that the changes in her body are ok and nothing to be frightened off. We but plent of special pants (just cheap ones from primark) as she became very upset at staining her fav pants. She will only use one type of pad, which was trial and error.

Brenny Have you tried some large slimming pants I know this may sound strange but if she enjoys things tight around her waist it could be for the sensory feed back she is getting from the 'tightness' just a thought.

Brenny

Thanks Covlass - but she just will not put anything apart from skirts on. Short of sitting on her and forcibly putting them on, it isn't going to happen anytime soon!

We went through a stage of eyelash pulling for about a year - stopped when she decided it was going to stop. I think the same will happen for pants/trousers one day when SHE decides it will happen (if ever).

starnight_2

HI just wanted to update everyone, and thanks for the support xx

I wasn't really blasting the friends for helping, I really appreciate that he has such a group of caring children in his year, I just wanted to make sure the teacher was aware of the help and not assuming he was doing it all on his own. After I calmed down I decided to have a meeting with the head anyway, and spoke to the SENCO before hand. The new head seems nice, and really quite helpful. I was able to put across how I've felt with the school up to this point and that I hope we can work together, as obviously anything in the past is in the past. She listened and we discussed a few things about DS and what I would like the Ed Psych to know for their meeting. I felt it went well.

Since then I actually feel the school is listening a bit more. The Ed Psych has been and a few things have happened. One is the teacher seems more understanding, which was really all I wanted we had a good natter and laugh at the parent/teacher meeting last week. Secondly the Ed Psych has told the school to go ahead with a referral to an ASD service the school has access to, apparently the referral generally comes after Ed Psych has assessed DS, but because he has a diagnosis she said she would support the referral (can't remember the name of it, but it's the service than helps with school transitions and staff training etc). They've also added on to his IEP, the use of a buddy when he needs to ask for help (attached onto pt 2 where they want to encourage him to ask for when needed, again making use of his peers, which I don't mind, I think it's good for DS and for the children in class, teacher has adopted this for all children in her class). They also added on a 3rd point to help him finish his work, as this wasn't happening, teacher now remind class of how long they have left to complete work and where they have to get to for it be accepted (this seems a simple thing to do, but apparently it had never been done, hence DS never knew when work had to be finished by and never managed to finish!).

The one most notable thing school have done is move him to an extra SEN english class, now I will admit they have said he is more capable than the others in this class, but they, and the Ed Psych were hoping it would help with social skills. This happened just over 3 wks ago, and I don't know it's improving social skills or giving him a break/time to relax, or a mixture, but DS is a different child, even his teacher admits. For the first time in 6 yrs DS almost bounces out of school, and he'll actually let me ask him what he done in school, and I sometimes get a full conversation, even if it is about how humpty dumpty work was harder than incy wincy spider! Teacher has said especially the past 2 wks she can barely take her eyes off him as he's laughing and smiling for the first time, and he got up in front of the class and read his story out! Although he still has bad days, the change in him is, for me, very noticable. So much that I went in to school a few weeks ago and asked what was being done to help DS (ed psych had only just been and I didn't know about the extra classes etc at this time) and told the school I had come in to ask as he just seemed such a happier child.

But anyway just wanted to thank everyone for listening to me rant when I get a bit worked up ... hugs

raq

Hello all

which is the lowest. Mild or Moderate. Seem a bit confused.

Am actually referring to :

Mild Autistm
Moderate Autistm

Thanks

raq

kazzieg wrote: »

Just want to say my son who is 15 got diagnosed with aspergers/autism in July, is off with 40 other teenagers skiing this weekend for 7 days in france.
He is not severe aspergers but when things do get on top of him he gets away from the situation and calms down.
He has said that he will try to do his best without causing any trouble whilst he is away.
School have been brilliant about this, they have done a risk assesment and he has a designated teacher should he need to talk to anybody about anything on the trip. They even asked him if he wanted a specific diet but he said no he doesn't want to stand out from the othesr he just wants to be normal for the week.

He has been away for school trips before but only for 3 days at a time. Plus his sister went away to uni this year, so I am gonna have a free house for a week.

I am so proud of him wanting to do this, Pretty sure I will miss him more than he will miss me!!

I like your post.. Makes me smile knowing there is light at the end of that VERY LARGE TUNNEL.

Thanks

Savvy_Sue

raq wrote: »

Hello all

which is the lowest. Mild or Moderate. Seem a bit confused.

Am actually referring to :

Mild Autistm
Moderate Autistm

Thanks

I'd say 'mild' was closer to 'NT' (aka Neurotypical) than 'moderate'.

raq

Savvy_Sue wrote: »

I'd say 'mild' was closer to 'NT' (aka Neurotypical) than 'moderate'.

thanks for the reply but still a bit confused.com:D

my little boy had the CARS report from the doctor and it was just over the 29 . Which doctor stated mild or moderate and cant remember. So much going through my mind at the time. Wasnt listening to everything.

Thanks

raq

hi again

Just wanted to say I read up on Neurotpyical yesterday and seems a little clearer. I will post a full thread over the next couple of days with all the details.

thanks

lallysmum

Hi all, first time poster on this thread at least.

My son was diagnosed with ASD in June this year (actually ASD, hypermobility and Motor Co Ordination Difficulties, Eating Difficulties, GDD) he is 4 (5 in Dec)
He has a significant speech delay although it is getting better - as long as he can talk about cars, lol - and has virtually no social skills with his peers. He is, however, off the charts bright, retains info really well, reading and maths skills are brilliant.

I got a letter this morning from his consultant with the results of the genetic tests that they did back in June and it has completely freaked me out.

The result is (from what I understand which is basically nil) that there was a "significant abnormality detected" and it then says
arr 3p26 (1,830,662-2,768,383)x3 and that further testing needs to be carried out. I'd have thought that the consultant would have added a little info to explain to me what it all means, but I have to wait a couple of months for a genetics appointment and I know that I'm not going to be able to stop thinking about it.

A little bit of me thought that everyone was wrong and he is fine, he is fine anyway, happy and handsome and wonderful little boy, but for some reason, this letter has made me fall apart. First time I have cried since they first said ASD. And I don't know what any of it means.

Thanks for reading, and for letting me get it all out. I hate this.

jackieb

lallysmum wrote: »

Hi all, first time poster on this thread at least.

My son was diagnosed with ASD in June this year (actually ASD, hypermobility and Motor Co Ordination Difficulties, Eating Difficulties, GDD) he is 4 (5 in Dec)
He has a significant speech delay although it is getting better - as long as he can talk about cars, lol - and has virtually no social skills with his peers. He is, however, off the charts bright, retains info really well, reading and maths skills are brilliant.

I got a letter this morning from his consultant with the results of the genetic tests that they did back in June and it has completely freaked me out.

The result is (from what I understand which is basically nil) that there was a "significant abnormality detected" and it then says
arr 3p26 (1,830,662-2,768,383)x3 and that further testing needs to be carried out. I'd have thought that the consultant would have added a little info to explain to me what it all means, but I have to wait a couple of months for a genetics appointment and I know that I'm not going to be able to stop thinking about it.

A little bit of me thought that everyone was wrong and he is fine, he is fine anyway, happy and handsome and wonderful little boy, but for some reason, this letter has made me fall apart. First time I have cried since they first said ASD. And I don't know what any of it means.

Thanks for reading, and for letting me get it all out. I hate this.

Your son is still the same happy, wonderful boy he was before he was diagnosed. :A xx

I kind of know how you feel. I actually feel a little bit angry. My daughter has just recently been diagnosed as have Aspergers. She is almost 16. I just think of all the wasted years that she could have been getting some help. She would see the school doctor about 3 times a year and she'd ask how she was getting on. Nothing ever happened until last year and I asked if we could see someone as I thought she might have selective mutism. She was referred to a psychologist and had a long round of tests - both herself, and me being questioned on my own. She is funny, hilarious infact. She's clever, witty, unique. I just wish other people could see her for who she really is - and all this time we've had no help. She has a couple of other medical problems which haven't helped. I feel as though we've been neglected. At primary school I was told to wait until she was at secondary as they were better equipped for 'that sort of thing'. One good thing is that you've had a diagnosis when your son is still young. xx