Aspergers/ASD support thread

Tinker_Bell_4

softwaremad wrote: »

Re Statementing -

Do your homework! watch everything they do - LEA's can be devious creatures!

Some LEA's will issue statements straight away some will issue Notes in Lieu which are treated like a statement however they are not legally obliged to provide the requirements as noted in the Note in Lieu

You need to contact other parents with statements to establish how they should be laid out and the sort of specifics you are after!

Most importantly if you want your child to stay in mainstream you need to check that the school he is in can provide everything they say he needs! so if they cant provide sensory rooms then the LEA will be looking at another school for him/her!

I went on a course last year which was free for parents & carers provided by the parent partnership! it was amazing the amount that i learnt about the process and how much we had been fobbed off with missing paperwork that they are legally obliged to create!

With regard my local LEA i discover with each statement that they are a little wooly on statistics and when the fog in my brain clears and i try to sort out something for my DD the statement is not specific enough.
Eg

i wanted my DD to attend a school that utilised sports to reduce aggression and frustration - this school made the kids run around the base (beautiful settings) to get rid of their stress (New method of thinking here) so its sort of like a boot camp for kids with ASD that teaches them to live in our world rather than bending our world to accept them as they are! The lea didnt want to pay so in the statement they put daily exercise program - now i have dug deeper this is apparently in her present school break time exercise i.e. running around the yard!

How gutted am i that they have pulled yet another flanker! oh well we live and learn eh!

feel free to contact me if you need help in any way! its a huge daunting process as when a child is diagnosed there is just too much information and its a lot to take on board so help should be taken wherever you can get it from!

as time passes you will be able to think a little more clearly and strive for the best for your kids! GL

[EMAIL="sue.prior@talktalk.net"]sue.prior@talktalk.net[/EMAIL]

Don't think the school have any sensory rooms,or anything else specially in place for autistic children,my son personally doesn't need anything like that. I think his main need there is for him not to be bothered or bullied by others,every child's right He not been much of a problem to them apart from an incident other week,until now they had no reason to statement him and only a few mths ago they said he was responding well to his aims and targets for school to go better for him.
I don't know many people and certainly not anyone with statemented children,a lot of what I heard about it hard to obtain statement is what I heard years back from when he was getting Portage,and a time he went to a nursery,there was a boy there,his mum was after statament and said hard to get. I'd like him statemented but he def needs be kept mainstream,or for at least for some time to see how things go as he gets bit nearer to secondary school.

softwaremad

all you need to do do get your son statemented is to write a letter to the statementing officer at your local council address! simply state that he has been identified with special needs and that you would like the process to be commenced at the earliest opportunity.

A statement takes 26 weeks for al reports to be compiled and formatted! let me know if you require further information.

you will be given an information leaflet which will explain the parent partnership here we have Snap cymru try snap.com and give them a call - ask them if they are doing a course on statementing process - the course is 8 wks long 1 day a week its a fab way to learn what you need - and meet new people!

blue_monkey_2

Just wanted to wish you luck for tomorrow lottielou and madles, great news on the statement and getting the DLA sorted. I used DS to buy a huge climbing frame for the garden for him to waste all of his energy on. He has been out there today. Hoping there is not too much rain tomorrow.

I've been a funny week - terrible night time tantrums due to the change in routine. Still tomorrow is another day.

Oh, and when Boots have clearance offers on stuff I buy all of my bubbls, shampoos etc... there so if it get 'mixed' I do not lose too much money. Did I mention what happened to my big bottle of Santuary Body Wash.... no prizes for guessing!!

lottylouj

well today is the day of the assessment and im so nervous i didnt think it was possible. i wont hear anything till 5pm at the earliest if not tomorrow morning.
i cant believe it all hangs in the hands of strangers. probably a good thing im not going i dont think id be able to keep calm.
i need things to try to take my mind off it if thats possible. i dont know what im going to do if they turn around and say no she is not on the spectrum.
oh well spose id best go and try and do something.

Mandles

lottylouj wrote: »

well today is the day of the assessment and im so nervous i didnt think it was possible. i wont hear anything till 5pm at the earliest if not tomorrow morning.
i cant believe it all hangs in the hands of strangers. probably a good thing im not going i dont think id be able to keep calm.
i need things to try to take my mind off it if thats possible. i dont know what im going to do if they turn around and say no she is not on the spectrum.
oh well spose id best go and try and do something.

Hope it goes well.

Tinker_Bell_4

softwaremad wrote: »

all you need to do do get your son statemented is to write a letter to the statementing officer at your local council address! simply state that he has been identified with special needs and that you would like the process to be commenced at the earliest opportunity.

A statement takes 26 weeks for al reports to be compiled and formatted! let me know if you require further information.

you will be given an information leaflet which will explain the parent partnership here we have Snap cymru try snap.com and give them a call - ask them if they are doing a course on statementing process - the course is 8 wks long 1 day a week its a fab way to learn what you need - and meet new people!

The school are doing it.

Strapped

Tinker_Bell wrote: »

The school are doing it.

That's what my son's school said. Several months on, we applied ourselves - we would still be waiting now I think if we had not. Just drop a letter in to get things started, then the school HAVE to do the paperwork (as opposed to getting around to it when the Head has time).

Tinker_Bell_4

Strapped wrote: »

That's what my son's school said. Several months on, we applied ourselves - we would still be waiting now I think if we had not. Just drop a letter in to get things started, then the school HAVE to do the paperwork (as opposed to getting around to it when the Head has time).

They def are sorting it due to an incident and are all in force to get him out of school into elsewhere.I hope the LA are not easily persuaded.

softwaremad

Its up to you Tinker_bell to fight for your sons right to be there! the access and inclusion is a definate benefit for you in this situation!

3onitsway

Hi everyone! I'm a lurker on this thread, I like to see that its not just me with problems!, but I don't often have much to add.

Right now, i've got DS and DD off school on the easter holidays. The first holidays where i've been on my own with three children :eek: - but its not too bad. DS is spending most of the time posting his bits under the dishwasher - his favorite hobby at the minute.

When they go back to school, on 20th, my DS (11) is going on his first school residential trip. Only about 50 miles away, but its Monday to Friday, and he's never been away from me, apart from the occasional night at my mums!!! And i'm absolutely dreading it!!!!!

He has no speech, but good understanding! I keep telling him he's going on holiday, and talking to him about it - but it's impossible to know what he understands, and he can't tell me if he doesn't want to go.

I just keep thinking how awful it must feel, to go on his usual bus to school with his bags, and not be brought home til Friday. I do want him to go, and i think/hope it will be good for him - but I can see me spending the week worrying and crying!

Anyone been through similar - how do you cope?