Aspergers/ASD support thread

jowmonty

mickeymumx wrote:

my son was diagnosed with aspergers syndrome ( autistic spectrum ) at 3 ys old, a very experiencd nursery teacher said she was sending him to be assessed and lo and behold ...ignore any health proffesional and follow your gut instinct until he is properly assessed by a psychologist, my son does not follow to the letter the symptoms of AS and he has learnt very well how to behave " normally " but that doesnt mean he is "" normal "" , i wouldnt change him at all , he is a super kid, goes to normal school, has mates, hobbies, he just is a little different, good luck you ar a great mum, and you will cope better year by year, good luck xx

Your very lucky my son has aspergers but it took me 12 years to get a diagnosis, like your son he had learnt how to behave 'normally' but I knew that something wasn't quite right. It took him refusing to go to secondary school and getting so distressed that I stopped taking him then he got referred to the mental health who in the end gave me the diagnosis. Sadly the help with his schooling only came when my husband left. Now nearly 3 years down the line my son is trying to find work, another challange.

Zziggi

Did anyone see the programme last night about Autism? In the programme the boys with ASD tried some glasses with different coloured lenses to help them at school to read easier, to stop lights flickering, to walk straight etc etc. I have heard of different coloured sheets being used for people who are dyslexic to help stop the letters "jumping" out of the page.

Does anyone know where I could get further information about this or to find out which colours help the best?

Would an average optician know this or is it highly specialised?

Thanks
Zziggi

belfastgirl23

I would try an autism support group. I'm in Northern Ireland so don't really know the referral points in rest of UK, but I do know that there are at least three organisations here which support people around autism. I think go to the specialist on autism rather than the specialist on eyesight

Good luck!

Nicki

Yes - there is an optician called Ian Jordan who specialises in this area and who has posted quite a bit on the asd forum - https://www.asd-forum.org.uk. You can contact him by PM through that site

Savvy_Sue

Be aware that different people find difference colours do the trick and for some people this just dosn't make any difference at all: it does need a specialist to sort it out.

But coloured overlays or glasses can also help dyslexics.

wishiwasarichgirl

info here

Not every optician will be able to do a Colourimetry test as they will not all have the equipment. The practice where I work has one and we charge £17 for the test and arond £60 for the specific tinted lenses.

Not everyone will find that a colour makes any difference but that is what the colourimetry test will tell you.

I was sceptical about it when we first started doing it but so many kids seem to have really benefitted from them that I must accept that they do work for some people.

KizzyK_2

I was lucky enought to recieve good dyslexia support at my college, they did all the colour tests and I fould that a blue overlay helped my work/reading.

I got my blue glasses about 6 weeks after my first visit to student support and they really helped

studentphil

I always thought coloured lens were more for if you have Irlen rather than ASD.

I know from personal experience that a coloured tint for summer really helps with sunlight

pcco

hi all

my 8 year old has just been diagnosed with aspergers syndrome and i was wondering if anyone could help us with some advice of what to do, what happens next, where to look for information, and if there are any good support groups

things seem really confused at the moment

thanks

alba37

Hi Pcco

I am not going to be the person to help, but I am sure you will get plenty of information & advice here. Just wanted to say my thoughts are with you, and a difficult part is over, getting a diagnoses.

My friend's son was eventually diagnosed 3 years ago, and she has hard a hard time getting help & support.

I am sure alot depends on how it affects them. DLA may be a possibility, so start by getting a claims form, and get help to fill it in. If you get DLA then you may be able to get a bus pass & cinema card. Not very helpful, I know, but just something that came to mind.

The best support my friend gets is from her son's Psychiatrist. Unfortunately her PC is down or I would have got her online to give her advice. I also think things differ depending on what part of the country you are in. I have read things on here, which leads me to believe there is quite a difference between Scotland & England, especially re: schooling.

I wish you all the very best.

A x