My journey to a debt free life

CRANKY40

I have hypermobile joint syndrome and I have the same joint pains as you. I only score 5 on the Beighton scale but that is because I'm older now (55) and arthritis has set in. When you are hypermobile your muscles aren't properly supported by ligaments so your muscles have to work harder to make up for this hence the pain. Fybromyalgia has been suggested to me this past month but my primary problem has always been hypermobile joints and also piriformis syndrome (where the sciatic nerve is pinched by the priformis muscle). If the blood tests don't show anything then a good physiotherapist would be helpful as they are much better at looking at what your joints do (or don't do and why). If you claim PIP then a proper diagnosis of everything that is wrong is a good thing to have. Good luck.

Onebrokelady

badmemory said:

I find ibuprofen really upsets my stomach now (as does the omeprazole which is supposed to sort that).  Have you tried ibuprofen gel?  I believe it doesn't work for everyone but at least it doesn't affect your stomach.  But that is an awful lot of painkillers - especially if they aren't working.

I would need to use too much gel I think for all my joints,I did try it on my ankles and it worked but only for about an hour. I also take Omeprazole which I worry about because it can cause problems with your bones, I've managed to cut it down to 10mgs a day now so hopefully that will be ok. I've been on these painkillers for the last 18 years but with breaks along the way.

Onebrokelady

CRANKY40 said:

I have hypermobile joint syndrome and I have the same joint pains as you. I only score 5 on the Beighton scale but that is because I'm older now (55) and arthritis has set in. When you are hypermobile your muscles aren't properly supported by ligaments so your muscles have to work harder to make up for this hence the pain. Fybromyalgia has been suggested to me this past month but my primary problem has always been hypermobile joints and also piriformis syndrome (where the sciatic nerve is pinched by the priformis muscle). If the blood tests don't show anything then a good physiotherapist would be helpful as they are much better at looking at what your joints do (or don't do and why). If you claim PIP then a proper diagnosis of everything that is wrong is a good thing to have. Good luck.

Thanks for the info Cranky,I am very flexible in my body so I can touch the floor with my hands flat on the floor and if I lie on my back I can bring my legs up so that my knees touch the floor either side of my head but my actual joints aren't that mobile at all . The problem I have when being assessed is that I can do all the movements while they are examining me and they also won't always cause pain at that time,then I go home and come bed time I'm in agony. I have also been diagnosed with piriformis  syndrome several months ago but this has settled down now. I will make sure I go back to the physio as soon as I get my results 

milann

It sounds very painful OBL. I can totally relate to having to pace yourself. 

CRANKY40

Onebrokelady said:

CRANKY40 said:

I have hypermobile joint syndrome and I have the same joint pains as you. I only score 5 on the Beighton scale but that is because I'm older now (55) and arthritis has set in. When you are hypermobile your muscles aren't properly supported by ligaments so your muscles have to work harder to make up for this hence the pain. Fybromyalgia has been suggested to me this past month but my primary problem has always been hypermobile joints and also piriformis syndrome (where the sciatic nerve is pinched by the priformis muscle). If the blood tests don't show anything then a good physiotherapist would be helpful as they are much better at looking at what your joints do (or don't do and why). If you claim PIP then a proper diagnosis of everything that is wrong is a good thing to have. Good luck.

Thanks for the info Cranky,I am very flexible in my body so I can touch the floor with my hands flat on the floor 

That's one of the tests on the Beighton scale. One point to you....I can't do some of the things on the scale now but I can most definitely still do that. 

Onebrokelady

CRANKY40 said:

Onebrokelady said:

CRANKY40 said:

I have hypermobile joint syndrome and I have the same joint pains as you. I only score 5 on the Beighton scale but that is because I'm older now (55) and arthritis has set in. When you are hypermobile your muscles aren't properly supported by ligaments so your muscles have to work harder to make up for this hence the pain. Fybromyalgia has been suggested to me this past month but my primary problem has always been hypermobile joints and also piriformis syndrome (where the sciatic nerve is pinched by the priformis muscle). If the blood tests don't show anything then a good physiotherapist would be helpful as they are much better at looking at what your joints do (or don't do and why). If you claim PIP then a proper diagnosis of everything that is wrong is a good thing to have. Good luck.

Thanks for the info Cranky,I am very flexible in my body so I can touch the floor with my hands flat on the floor 

That's one of the tests on the Beighton scale. One point to you....I can't do some of the things on the scale now but I can most definitely still do that. 

I can't do any of the others 😊

milann

Mmm interesting. I’d never heard of the Brighton Scale but could do every one except touching the floor with my hands…..I used to do this but can’t anymore. It mentioned the bone condition I have in one of the articles. Thanks for the info.

CRANKY40

milann said:

Mmm interesting. I’d never heard of the Brighton Scale but could do every one except touching the floor with my hands…..I used to do this but can’t anymore. It mentioned the bone condition I have in one of the articles. Thanks for the info.

The problem is that by the time arthritis etc kicks in the person can no longer do most of the things mentioned. The physiotherapist said that giving exercises to do is like closing the stable door after the horse has bolted.... i could only touch one of my forearms with my thumb as the pain in the other thumb joint is too bad to be able to do it now. 

Onebrokelady

God it's been warm and sticky today, I am sitting here feeling like a hot sweaty mess 🥵

I was up early today to go for my blood tests so got that out of the way and should hear back by the end of the week 🤞I was going to go and have a look round the shops but my legs were hurting too much so I came home instead and sat down for a couple of hours with a coffee.

I had then recovered enough to clean the house and I also managed to sneak a load of washing out on the line before the rain arrived. It's being getting ominously darker and darker over the last half hour and now it's properly raining 🎉🎉🎉 the air has that quality about it that suggests it might thunder but I won't raise my hopes too much.

I still need to go out and sort the 🐓🐓but will wait to see if the rain stops, they are currently hiding under the hedge in the garden, they could shelter in the run that has a roof but they won't 🙄.

foxgloves

It really has been a close, muggy day OBL, I agree. Just the same here, even though we are at opposite ends of the country. I have been very lucky since the menopause, as I had all my horrible symptoms & feeling like absolute cr*p during the perimenopause instead, but today, 6+ years after the event, I stood in my kitchen chopping apples & was sooooo hot, I thought it might be delayed hot flushes starting! Then when I walked down the garden to open the greenhouse, I realised it was very muggy outside & therefore not me at all! Somehow, muggy weather seems to be even more tiring than just heat, I don't know why.
A nice shower here too now, so no need to water the veg tonight for a welcome change.
F x