Grants and help.

wolfehouse

good- i'm sure it will all work out for you. the building work can be disruptive too. it still may be worth getting some moral support from your carers org.- you have so much on your plate.

vanilla

I've never been given an information about carers org, but you all have been great here.

snails's_pace

im afraid i have no practical advice but would like to say how very admirable you are. I do hope you get all the help and support you deserve.

hugs from snails x

vanilla

Just an update. I asked the benefit office for a community care grant form and it arrived today and after reading it, i'm going to ask for help in knocking down the kitchen wall and making a room in utility room. It startes on the form that the community care grant can help ease exceptional pressures on you and your family, i'm not sure if they will be able to help me but anything is worth a try. All they can say is no.

mummytofour

They key to this kind of situation is to just keep plugging away I am sure you are well aware of this already. Everything seems to take soooooo long. One of my sons has special needs, it took FIVE years for anybody to listen to me and that only happend because of a house move to a new area, its then take a yr to find out what his problem is. We have applied for DLA and thats another 8-12 week wait...
Fingers crossed you get it all sorted soon.

Mrs_B_12

Glad you've managed to get lots of useful help. :T

There are a lot of parents at www.specialkidsintheuk.org on the forum or just useful info and links on the main page.

vanilla

Thanks for all the advice, i'm really going to push it. Have managed to get a number for the ot that is going to be coming out so i'll be phoning tomorrow morning and keep pushing.

vanilla

Just an update, the woman who is to come out and look round the house phoned this morning and she is coming out tomorrow morning at 10am .
As you can tell i'm so happy, i'm not sure how to prepare for it but i'm going to do out a list of questions and a list of why my DD NEEDS this room. My husband has the home treatment team coming out everyday now and i'm hoping to get a letter from them saying how much stress this family is under and how a bedroom for DD would ease that stress so much and would change not only DD life but everyone else's.
I'm really nervous and scared, all i can think is ''what if she say's no and we get no help, then what do we do''.

Any advice would be great on preparing for this, is there anyone else i should contact for letters of support???

Thanks snails's pace for your kind words.

amibovered?

hi

firstly just to reiterate that you seem to be doing a fantastic job in very difficult circumstances!

Only thing I haven't seen mentioned is whether your daughter has a consultant and whether its worth getting them to write in support.

I do hope the ot visit works out for you - if there is a problem it woudl be worth writing to the director of social services. They do seem to have endless waiting lists and suppose its then understandable that staff move on etc by the time people's names get to the top of the list. Fingers crossed everything works out for you.
Are you getting dla for your daughter?

Take care and good luck

Gillianh2

Just a quick thought, I dont want to dampen your spirits ))))))))))HUGS))))))))) The OT although agreeing with your needs will then need to write a report to your local council authority who adminster the grants. Now unless the OT makes your case VERY HIGH PRIORITY you could still be waiting up to a year to be allocated funding for the works. My advice would be to make sure that they stress how HIGH PRIORITY this work is and explain that you can get letters supporting your situation. Just a thought but could your Daughters school 121 support worker give you a letter of support and maybe you could also show the OT the forms etc; you had awarding your Daughter the 121 at school. All the info and paperwork however insignificant we may think it is can only help your siuation.
For yourself please look in your local phone directory for your local "Carers" centre they can offer not only practical help and support for you but could also arrange some much needed respite. You need to be looked after as well.

I hope all goes well for you tmwr and please think about contacting the "carers" centre in your area. As who is looking after you.